Arthritus

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Inflammation of joints

The Elephant(s) in My Room – Blog Update

I haven't posted much and my last blog update was in May of this year. I wish the reasons were because I was enjoying a recovery and had my health back, but it's not.   I now join the ranks of some of the others here who came to this site about the time I did.  

 

Last week I had Bioenergetic Testing done which indicated I have:  Bartonella Henselae, Babesia Nosodes, Mycoplasma Fermentes, Borrelia Burgdorferi and high levels of systemic yeast (as well as EBVi, HHV-6 and CPNi) -- "my elephants" and reasons for not recovering. 

 

Chlamydia Pneumoniae and Reactive Arthritis

I'd like to know:

-Could CPni cause a Reiter syndrom?

-Could Cpn cause urinary tract problemsi? If the answer is "yes", how can it do it?

-Could a Cpn's infection be asymptomatic?

It's so important for me to have answers to these questions!

 

Thank you so much 

3 Years, 8 Months, 2 weeks and 2 days.....(Revised 2/14/2011)

It has been 3 years, 8 months, 2 weeks and 2 days since I started CAPi<i<.   I have reached a point, not by choice, but rather by necessity, that I have had to back off the protocol for a while. 

HI,AS or REA

Hi, my name is Shauna.I am new here.I was dxi with Ankylosing Spondylitis in July 09.Me and my antibiotic Dr actually believe it is reactive arthritis. Through my research I believe it started after a nasty parrot bite in Jamaica in May 07.I immediately had the symptoms of ReA right after. Parrots carry Chlamydophila Psittaci which causes ReA and so I believe this is what did it for me.I go see my AP Doc Aug 6th and hope to add zithi and flagyli and get a psittaci antibody test. I am currently on 200 mg doxyi a day since April feeling a tad better but not a lot! Just wanted to introduce myself! Also take my vitaminsi and just started NACi.

Shauna

New thyroid regiment

This week I switched to a new thyroid regiment. Instead of 100 mcg/day of Synthroid, I am taking now a combo of Synthroid 50 mcg + Armour Thyroid (canadian equivalent) 15 mg x 2/day.

I've been only a few days on this and so far the result is amazing. Some hours of the day I feel like a normal person (with the exception of the joint issues). I mean my head is clear and I can think. My "drunken" & unbalanced feeling is reduced to almost nothing. Though I do experience brainfog late afternoon. I am going to take my second dose of Armour earier in the afternoon today to counteract this.

My workout in the GYM yesterday felt very easy too and my digestive tract working just fine. I am just crossing my fingers it's going to last.

1 year and 9 months on CAP.

I didn't even notice how time went by. It's been 1 year and 9 months since I started CAPi. When I started, I thought I'd be on it only for a year. Then I hoped to stop at 2 years mark but now I see that I may need a bit more time b/c I still have a few unresolved symptoms.

I am guilty though for taking about 3-4 weeks break from treatment this summer. It happened sponteneously. I ran out of meds, didn't refill on time, we needed to go away for vacation, oh well, many excuses. The truth is that I am burnt out.  I put myself back on track but I can't wait when the treatment will be over. 

Looking for a doctor in Massachusetts

I am looking for a doctor in Massachusetts that is familiar with the protocolsi mentioned on this website, who is familiar with CPNi, and takes insurance. Any suggestions would be appreciated. Thanks.

Do I add more drugs?

I saw both my endocrinologist and my CAPi prescriber this week. I have a painful heartbeat that's been bothering me mainly with some movements and deep breaths. So my endo wants me to take Advil in addition to my CAP. My CAP prescriber didn't have any suggestions in that regard but wants me to add Diflucan into the protocol for possible candida issues just b/c I've been so long on abxi.

Right now I am taking Amoxicillini 1000 mg x 2/day, Clarith 500 mg x 2/day, Minoi 100 mg x 2/day, Flagyli 500 mg x 2/day. If I add Advil and Diflucan, would it be too many drugs for my poor liver? On the other hand, I'd like to try something for that painful heartbeat.

Any thoughts? Thanks for any input.

My new dr

My previous LLMD who was my CAPi prescriber moved out of state and I transitioned to another dr in the same practice group. Yesterday was my first appt. I was a bit apprehensive to change the dr but I am happy now I must say.

My new dr has a different approach to the disease in terms of that he treats whole body. If my previous provider just gave me CAP rx, this dr wants to address all my conditions - hypoT, hypertension">i, nutritional issues, wants to check heavy metals as well. He even asked if I have a ObGyn and do regular pap smears.

Can bacterial cryptic form develop resistance to Flagyl?

Yesterday I took my first Flagyli 250 mg, no reaction. Today took 2 x 250 mg and started to wonder, is it possible to develop resistance to Flagyl if taken in small doses? I'll be increasing the dose in future pulses if tolerated. My dr wants me to take 500 mg x 2/day for 14 days a month eventually.

Chlamydia pneumoniae--a new causative agent of reactive arthritis and undifferentiated oligoarthritis.

Chlamydia pneumoniae--a new causative agent of reactive arthritis and undifferentiated oligoarthritis.
J Braun, S Laitko, J Treharne, U Eggens, P Wu, A Distler, and J Sieper
Department of Medicine, Klinikum Steglitz, Free University of Berlin, Germany.
 
This article has been cited by< other articles in PMC.

First CAP anniversar, progress report and thoughts...

It's hard to believe but I am on 13th month of CAPi treatment. I started on January 02, 2008, twicked my protocol a little for a couple of months. Since March'08 I settled on Doxyi 200 mg/day and Rifampin 600 mg/day. In Nov'08 Bactrim was added twice a day. 2 weeks ago I switched from Doxy to Minocycline. So, right now I am on Mino + Rif + Bactrim.

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