I was going to post updates with my progress monthly but having being overwhelmed with trying to keep up with life and treatment, I am way  behind.

Anyway, here I go. I started back in Jan'08 with big doses of CAPi (3 abxi) and after extremely severe die-off reactions and stopping a couple of times, I re-started nice and slow in Feb'08, adding 1 abxi at the time, making small changes and ramping up.  

Finally on full doses of current protocol - Rifampin 600 mg/day and Doxyi 100 mg x 2/day - since mid-March. 

Hello, and thank you for taking the time to read this post.

I was not able to locate information referencing contraindications to my Rx topicals.

Please pardon me if this is covered elsewhere.

I'll start with a bit about where I'm at and have been.

Mental

I'm a graphic designer who works from home. I have a happy homelife and a positive worklife. I believe that i am a healthy person, I just do not physically feel like one. I have long suspected that everything I experience is tied together, so am really happy to see this Web site. I want to live my life again: I want to go outside into the sunshine; ride a bike; shop in a store!



Physical

I went to see my Lyme dr for a monthly appt. and came back home all disturbed and worried. This was my 4th appt with this dr and I am still in the beginning phase of the CAPi tx. By this time my dr and I should be developing a working relationship but it's not happening. During appt he asked - Remind me, how long have you been sick? So I told him my story again very briefly. As I mentioned that I saw rheum dr before finding him, he asked - And Rheum didn't find anyhting? That surprised me completely b/c on my 1st appt with this dr I brought to him consult notes from the rheum dr stating the dx and plan of tx (not CAP, of course but prednisolone & Sulfasalazine). I felt he didn't remember my case at all.

When I saw my dr a few days ago we went over my labs results that had come back. The Western Blot for Lyme disease. IgGi was negative. Good news, right? But strangely enough, IgM was positive by both standards - unconventional Igenex (where the labs were actually done) and CDC.

I was floored, I really didn't believe that I may have Lyme.  The dr told there may be a false positive and we ordered a confirmation test with Igenex.

The reason I think it is strange to have IgM (+) b/c my sx started so long ago and logically it's IgG that should be (+) if I have Lyme.

I started CAPi with Minocycline 100mg x 3 + Rifampin 300/day only to stop it due to huge reaction. My dr was thinking in the lines that's one of the abxi causing side effects, perhaps the Mino. Soon I re-started only with Doxycycline 100 mg x 2/day. At first it was OK but I had abdominal pain, aggravated hypertensioni, hypoglycemia and porphyriasi again and by 10th day it was too severe for me to continue. I mean, I felt like it was life-threatening at the time.

I stopped Doxy a week ago yet still haven't recovered completely. Today I feel that like I was hit very hard on a head but a bit better in general.

I am on Doxycycline 100 mg x2/day since 01/14/08. Before Doxy I started with Minocycline/Rifampin CAPi but had to stop in a few days due to severe reactions and overwhelming hypoglycemia as well. Now, on Doxy, hypoglycemia continues. I was feeling good for a couple of days earlier this week but on Wed evening relapsed with weakness, tiredness, shaking/shivering due to feeling cold, tachycardia, BP's up, nausea, hunger and so on. Most of the Thu I felt waves of the same effects and had to leave work. Today, Fri, I am feeling much better but I have to eat something every 2 hrs to keep re-occurrence of hypoglycemia away.

Last Fri I saw my new dr who is an integrative MD specializing in Lyme. Very nice, compassionate and down to earth person. The appt was early morning when I am not yet in my best shape. I was so exhausted and brained fogged, my BP was soaring 170/110 so that my hubby had to drive me over and was a big support at the dr's office as well.