Iritable bowel syndrome

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Stomach and bowel problems

12 days on... somewhat of a result!

Still off work. Lungs are a bit sore and coughy/phlegmy this morning.

I managed to get in to see my GP this morning (as opposed to next month), and found out that all my concerns had been for naught. He is only too willing to help and prescribe the abxi. So, all in all, I'm ecstatic about that. Makes it all so much easier to know that you have him on board.

One other small thing of note. I also managed to get some ointment for my eczema. I've has a nasty patch on left ankle and leg for 5 years There's only one cream that has really ever worked for any length of time, and that's Betnovate-N. Its active ingredient is neomycin. I had always assumed that it was an anti-fungal, but apparently not. It's anti-bacterial, and he was interested to learn that this works, considering everything else he was being asked to prescribe.

11 Days on... feeling defensive...

Not in work today. Feeling rough. Have been sneezing lots and am very snotty. I suspect it's viral. It would have to be! Nice dripping nose. Over the last few days, my temperature has been all over the place with sweats during the day and night, and mild headaches as well. Feel fatigued today.

 I also think I'm battling with candida at the moment (off and on, I have a coated tongue), and have been attempting to respond in kind with probiotics and yoghurt. Feel better today than I did yesterday.

 In other news, the numbness in my left hand appears slightly decreased, but that could be down to a lower ambient temperature at the moment, being that autumn is underway. For me, heat is a killer for numbness.

I have suffered from eczema for about five years, and there is some decrease, although it's too soon to read anything into that. I won't know for sure whether it's all helping for a few more weeks.

Inflammatory Bowel Disease

Does anyone suffer from an inflammatory bowel disease?  If you haven't seen it there is a new sister site of ThisisMS<, called ThisisIBD<  It uses the same format, but is obviously in the very early stages, because no body has posted in the forums yet. Described as "A bowel disease community with a scientific focus on potential treatments", it has the following introduction to the site:

How IBD Feels

Normally our stories cover breaking news regarding research in the world of inflammatory bowel disease, and the implications of that research on our lives. However, a recent human interest story on Mike McCready of the American mega-band Pearl Jam-- and a Crohn's sufferer-- had what we felt was an extremely interesting nugget in it. In this interview, McCready provided an evocative and concise description of what living with IBD is like that we thought might be useful in describing the disease to friends and loved ones.

Musings

Second posting. 6 days and counting.

Doxycycline and Azithromycin have been well tolerated first thing, providing I eat breakfast. NACi 1200mg, twice daily is also causing me no probs. Carnitine, Lipoic Acid, B12 and D3 in the evening, along with supplementary Cal/Mag & Zinc and Vit C. Also, 5-htp, without which I'd probably be a basket-case by now.

I'm loading up on probiotics and natural yoghurt in the evening (around 10 differing strains), and taking the antibioticsi in the morning, and I think this is the way I will continue. It seems to suit me, unless anyone has any strong opinions either way.

The stiffness is definitely lessened in my hips, as I observed before. I have also had a return of energy and enthusiasm at the same time. The world looks less 'grey', and there's a slight perceived improvement in depth perception as well.

4 days on...

Saw David Wheldoni on 15th September 2006. A truly heart-warming experience. 

4 days on the CAPi now. For RR-MSi<

 After 2 days on doxycycline, I noticed I could stand with less stiffness, which I am imagining could be due to the anti-inflammatory effect of the antibiotic. Pins and needles are already reduced!

 This morning, I was somewhat foolish and tried the doxycycline and NACi on an empty stomach. Not a good idea. Quite nauseous. Won't do that again in a hurry.

 No real die-off symptoms yet. I have a feeling I may have kept my bacterial loadi down over the years with constant vit c and other antioxidantsi. I can't help but feel my MS would be worse than it is if I hadn't supplemented so furiously over the last 3 years.

 Anyway, I am going to try and keep this journal ongoing. Probably in weekly installments.

Essential Observations by Dr. Charles Stratton on Chlamydia Pneumoniae Infection and Disease

I am very excited to present the following article that summarizes Dr. Stratton's recent observations on Chlamydia pneumoniae infection. Putting it together has contributed greatly to my own understanding of Cpni as well as to my appreciation of Dr. Stratton's generosity with his time, and his great depth of knowledge of this area. Thanks to him for his contribution.

Jim K

Recent observations by Dr

Recent observations by Dr. Charles Strattoni on Chlamydia Pneumoniae (Cpn) Infection

Yes indeed, I have improved!

In an email to me, one of our new members noted how long I'd been on the protocol and asked me if I'd improved on it. It was a legitimate question, and one that on a day to day basis is not always clear to me, since I continue to have symptoms, and the slope of my improvement has been very gradual. As has been said elsewhere on this site by experts, the longer you've had Cpni, the more systems involved, the higher the bacterial load and so on, the longer and more arduous is the treatment. My CFSi diagnosis means that it's been a chronic condition- underline the C in FS.

So I wanted to report my assessment of this based on some recent experience.

Yes, the protocol has indeed helped. I've had this bug seriously (undiagnosed) for at least 20 years, so my tissue loadi was very high to begin with, and I had to go very gradually to get at it. As you can read in my Patient Story, I was not feeling very patient about the whole thing, wanting to push up doses too fast, suffering more because of that, and so on.  The longer you have had it, the harder to treat, the more reactions to treatment, etc. Certainly so for me. And the slope on the curve of improvement is also very low in such cases.

I've reported other changes in my Patient Story and in previous blogs, but had a very clear reference point recently as to how much I've improved. I travel and teach workshops overseas. By Spring 2004 I could no longer tolerate the travel and feel I could deliver quality teaching. I stopped traveling for a year and started treatment in fall of 2004.

GASTRO INTESTINAL SYMPTOMS ANYONE?

ANYONE HAVE ANY GI RPOBLEMS.  TWO DAYS AGO I STOPED MY 7TH DAY OF MY FIRST PULSE BECUASE I COULDN'T HANDLE HOW AWFUL I FELT.(ACHY, ETC.)  THAT DAY I ALSO TOOK THE FULL ARSENAL OF  VITAMINSi (RECOMMENDED IN THE DW PROTOCAL) INCLUDING THE NIACIN">i, NACi ETC. BY WEDPM, I WAS FEELING JUST A BIT OF INDIGESTION, BLOATING AND REFLUX. IN THE MIDDLE OF THE NIGHT I ATE , TOOK YOGART, PROPPED UP ON PILLOWS, TOOK MEGA NATURAL LAXATIVES, & ANTACIDS.  BY THURSDAY I STOPPED ALL ANTIBIOTICSi BECAUSE I FELT LIKE THEY WERE JUST STUCK IN MY THROAT.  I'VE ALWAYS HAD REFLUX AND OCASIONAL BLOATING, BUT I NEVER HAD ANYTHING LIKE THIS.  I DIDN'T KNOW IF I HAD TO BURP, OR HAVE A HEART ATTACK, OR THROW UP, OR IF I HAD GAS AND WAS GOING TO BLOW UP!!!????.

  I FINALLY DISCOVERED AFTER GINGER ALE , THAT BURPING ADDED SOME RELIEF.  I'VE BEEN BURPING FOR TWO DAYS NOW (NOT VERY LADY LIKE). IT WOULD BE  HUMOROUS IF IT DIDN'T ACTUALLY HURT AND IF IT WASN'T SO UINCOMFORTABLE. I'M ALSO TAKEING PHAYZYME FOR GAS & BLOATING, AND CONTINUING ON THE LAXATIVES.  IT IS STARTING TO DISSIPATE SOMEHAT AND I'M GETTING A LOT OF LOWER GUT PAIN.  I KNOW I HAVE TO GO BACK TO MY DOXYi AND ZITHRO, BUT I WANT TO WAIT UNTIL THIS IS GONE.

Diseases associated with Cpn: the exhaustive list

I have culled from Mitchell & Stratton patent #6,884,784 an exhaustive list of diseasesi where Cpni has been implicated as a possible cause or co-factor (reference: Mitchell & Stratton patent #6,884,784):

Diseases where an association has been discovered between chronic Chlamydia infection of body fluids and/or tissues with several disease syndromes of previously unknown etiology in humans which respond to unique antichlamydial regimens include:

Editorial comment: Strong findings from their research. If you have any of these it suggests to me that at least an empirical course of the combination antibiotic therapy is strongly indicated, with or without serologyi.


Multiple Sclerosis (MSi)
Rheumatoid Arthritis (RA)
Inflammatory Bowel Diseasei (IBD)
Interstitial Cystitisi (IC)
Fibromyalgiai (FM)
Autonomic nervous dysfunction (AND neural-mediated hypotension);
Pyoderma Gangrenosum (PG)
Chronic Fatigue (CF) and Chronic Fatigue Syndromei (CFSi).

Connect the Dots

I am trying to connect the dots, and was wondering if I could get an opinion from some of you who have been here a while, and know more about CPni.  Several years ago, and I can pinpoint it to within a couple of months, I began feeling "not right".  I was first dxi with pernicious anemia after complaining of brain fog and fatigue, then irritable bowel syndrome for chronic unrremitting diarrhea.  These were followed by numbness in two toes, which the neuroi determined was caused by diabetic nueropathy (after three glucose tests, one came up a little off, and he dx'd glucose intolerance).  I beleive I have glucose intolerance, but diabetic nueropathy from it?  Anyway, after that, psoriasis, which I had had problems with for years without knowing what it w
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