Iritable bowel syndrome

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Stomach and bowel problems

It is official.....update


Vitaminsi are ramping up, Niacin">i 375 mg, NACi for 3 wks now 2gms, D 1600U, along with all the rest of the Wheldon recommended supplementsi & what I normally take.

They're in the starting gate...&...they're offff....

Well, finally today my additional supplementsi recommended for the protocol have arrived!

I just had a snack, took the NAC & a few others, sorted & wrote on all the bottles & now I am tired & I need a nap!  Oregano Oil makes your lips feel funny!  I will have 3 weeks of NAC under my belt when I see my MD next on June 22.  Then I will have my prescriptions for the switch to the Wheldon Protocol.

My sustained flagylation leads to porfyric vicious circle

Maximouse, with her pink ear tag indicative of sustained flagyl, has had to switch places with Minimouse wearing a blue one indicative of fall back to less flagylation.

I'm feeling a bit sheepish (or maybe mouseish) after high hopes of improving the rate of die off and speed the recovery a bit along the way, but after taking 400mg of metronidazolei daily for 6 weeks (with a 5 day pulse of 1200mg in the middle) I have had to give my poor liver a break for the past week.

Peeling the paint off the walls....

 I have CFIDSi & with that Irritable Bowel,

I was wondering if anyone has anything that helps with noxious gas.  Phew weeeee, I may poison my poor husband in his sleep with this stuff in addition to the paint coming off the walls.  I  did a search but nothing specific came up???  Soo far, my bestest buddy, our Irish Terrier Stanley hasn't left the room, lol


Gasious Clay CAPricorn



ruthless1, Canada

Multiple Symptoms, here is my diatribe!!  I was new to the site April 06 & I have Fibromyalgia-FMSi, Chronic Fatigue Immunei Deficiency-CFIDSi/Myalgic Encephalomyelitis">i- ME, Chronic Lyme Diseasewith the usual cornucopia of underlying symptoms, crashes, flu like symptoms, migraines including CPNi, Babesia & recently hereditary genetic Hemochromatosis. 

Plodding on

Pulse update:

Michele: pulse 14 went well, some relief from IBSi pain during pulse, feet felt practically normal, two nights in a row with 7 hours sleep. Post pulse very painful IBS cramps and upset tummy, taking extra acidophillus and anti fungals, gradually improving. Strange things is that when there is little pain in my gut my feet feel much better too...

#13 unlucky for some...

So here I stand at the threshold of one year on the site, having completed 13 purgatory pulses and still bitching about the fact that my most painful ailments are still with me. But what have I got to bitch about, after all I now have a pratically full head of hair, my sinuses are much less painful, I can breath better and I at times enjoy a couple of tummy pain free days in a row. Added to that I constantly remind myself that I have been suffering from a Cpni infection since my early childhood, and it has persisted all my life, so its not going to go away in 9 months...

pot belly pig


Fighting to get out!

So now I have a dozen self inflicted flagyllations under my belt and the Cpni is fighting to get out!   How do I know this?  Because my arms, back and thighs are errupting.   Yes, those parts of my body look like a string of volcanoes that have suddently surfaced from the ocean.   They are of different sizes and are at different stages of evolution and when they stop errupting they leave a lovely pattern of red flesh with a pale crusty crater and a tiny red spot in the middle.   This has been going on for a couple of months now, started off with a rash of little widespead spots, some of them grew and some of them stayed small.   All very itchy, but I think that things are quietening down now.   No new ones since I started the last pulse (#12)

3 months, 3 weeks & 2 days... pulse 2 due soon...


Finally had a minute to put finger to keyboard after Christmas!

Initial thoughts about the first metronidazolei pulse: It didn't really cause me too much grief at all. I've come to the conclusion that the bitter taste was an absence of any kind of bacteria in my mouth, which I quite clearly wasn't used to (that and the actual taste of the pills themselves). I certainly became very sensitive to any  smell, during, and after that week. It would have taken a very brave one-celled critter indeed to get past three different abxi AND NACi...

I felt interesting after the first couple of nights. My vision improved slightly, the remnants of the so-called retinopathy have been slightly less bothersome ever since. I felt very sharp during the pulse, head-wise, and that has persisted. Quite looking forward to number two, actually. I didn't suffer nearly as much as I thought I might as Christmas, either. The numbness in my left hand appears to be progressing intermittently, afftected by all the usual variables (heat, etc), although it's eased again somewhat.

Findlay Family fights on

Yes, that's us, Ella, Hamish and I, fighters, scrapper, survivors; however heavy our concrete boots, so far we have always made it back to the surface.

Stricktly speaking of course Hamish should not feature in this blog as he is not likely to ever follow a CAPi for his treatment, but I thought you would like to know that he is slowly making progress after his stem cell transplant.   Someone suggested that Cpni might be implicated in CLL (chronic lymphocistic leukemia), but my husband is much too conservative to try anything as controversial as the CAP, instead he has received a treatment which cost the NHS (National Health Service) $235,000.   At present he is still in hospital, in isolation and getting very impatient to get out.   He is likely to be there for at least another fortnight (two weeks).

Digestive system improvements?

I'm feeling like being a little vague about this, but you guys should get it:

My digestive system tends to run... umm... "fast". Food moves through me too quickly and isn't digested all that well, especially fibrous stuff like raw veggies, etc.

Going on these antibiotics has not helped that.

Have any of you started with those sorts of symptoms, or maybe even developed them from the abxi, then got better?

I am taking some super-potent probiotics, but they have never really helped this.  Rather, I just want to protect against the abxi.


IBS and antibiotic news<

I think this drug is related to rifampin and the new one rifatbutin because it says if you are allergic to these don't use it.


20 days in...

Feeling pretty good now. The viral infection cleared within 3-4 days. My temperature fluctuation has standardardised on a slightly warmer feeling all over. Still getting reduced night-sweats. I felt like someone was pulling at my ribcage for a couple of days, and my chest is still a little sore, but nothing like it was.

For the last two days in particular, I've felt really very good indeed. More energy, mental focus and enthusiasm. I won't count my chickens, but I'm also getting some colour back into my face.

Something else which I've noticed is that an ever-present (so much so that I didn't really even acknowledge it anymore) tickle in the back of my throat has cleared. Explain that if you can!

Carrying on with the yoghurt and probiotics, as well as NACi 2 x 1200mg, and they are, of course, helping greatly. I spoke to my G.P's surgery this morning and they have a prescription waiting for me, explaining that I'll start the first pulse of Flagyl (metronidazolei) in January. That's good. Didn't fancy a dreadful Christmas after last year's episode of the whole house having some sort of r.t. infection, then D&V over Christmas/New Year!

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