Here's an update and a full account of my experience with CAPi, which appears to have utterly cured my inflammatory bowel diseasei. My bowel symptoms completely disappeared as of November 2007. I'm continuing with CAP to ensure that all traces of Cpni have left me.

I first consulted a gastroenterologist in August 2005 when I developed rectal bleeding. I had had occasional indigestion and bowel symptoms for several years prior to that time, but never before had had rectal bleeding. A colonoscopy revealed "active chronic colitis", which my doctor interpreted as Crohn's disease. He prescribed a moderate dose of Asacol (600 mg), twice a day, warning me that I would have to continue to take it for the rest of my life. For a few weeks, my symptoms abated.

Sunday night I went to the emergency room with severe abdominal pain (upper/lower left quadrant, front and back – [as an aside, I have experienced pain on my left side since almost the beginning of my ABXi in April of last year –2007].  I kept contributing the discomfort to possibly die off and/or my spleen.  My dr. could never find anything on x-rays or a cat scan, so I just kept plodding along, as it was not intolerable.

I need any information anybody can give me on overcoming depression associated with CFSi. I am currently taking 40 mg/ day Nortriptyline, 300 mg/day Wellbutrin, 75 mg/day DHEAi. I'm on a lot of anti-oxidants too.

Still experiencing moderate to severe depression. Most days, severe depression. What will help? Anything? Does Vitmain D help? I have to hold down my full time job and the depression (along with the fatigue) is REALLY taxing me and my motivation and could cost me my job if I can't find something to help.

Any thoughts or suggestions would be greatly appreciated.

Thanks, Lynn

 Cpni, Mpn, CFS, CAPi - Doxy, Erythromycin, NACi

Good afternoon!

I've been having fibromyalgiai symptoms for the past 4 days- neck, left shoulder, back of head, band across my head from 1 temple to the other, down my spinal cord. I haven't dealt with fibro symptoms in several years and I can't remember what I can do to relieve my pain and stiffness.

I've been taking Lortab (Hydrocodone with acetaminophen) and/or Ultracet, aspirin, using a topical analgesic oil rub and a moist heat wrap. I'm also stretching. I've considered the chiropractor and massage therapist just haven't made appointments yet.

Restless legs?? Need answers quick please! I was out last night with my friend when all of a sudden I felt like I was going to have a seizure.  I have felt this way on and off since starting the protocol so I know it's part of the cpni (besides having a hx of these sizures which i now know is Cpn related seizures). Had not had feelings of a seizure in a couple of years before CAPi protocol. Anyway, after that I realized that I felt I could not stand up. My legs were so weak and I started having the sensation that ants were crawing inside legs. Haven't had restless leg syndrome since last winter with EBVi. And it got really bad last night.

Best day yet! Quick update on my health... I'm in 2nd week of NACi 600mg, Doxyi 200mg, and Erythromycin 250mg and I actually had a decent day. Had stamina for about 6 full hours of work today and I've been online a while tonight. I was only nauseated once today and was able to knock it out with some good ole' fashion compazine. I've been stuffy for several days and sneezing, but not so bad that I can't deal with it! Much better than the NAC flu!

I'm tiring now, but actually feel like I can say I felt better today than I have since starting CAPi. I'm trying not to set myself up by reminding myself that tomorrow is a new day, come what may, and not to get discouraged if this doesn't last.

Need to talk to someone soon.  I'm feeling a little desperate at the moment.  Don't know how to IM, willing to learn or willing to just e-mail back and forth. 

Hello everyone-I'm so glad to find this site and others who understand what I'm going through!  I have suffered for at least 17 years with various illnesses that I now see may all be related to CPni.  My most recent addition to the plethora of illnesses I've experienced is severe tinnitusi with 5-10% hearing loss. I recently had to purchase hearing devices, $3000 worth to drown out the ringing noise as it was driving me insane, literally! Finding out about CPn has made me feel like I have found a gold mine, thanks to my doc, (MD and toxicologist) that knows how to think outside the box. Sure has given me renewed hope. I actually found out I had it after my friend was diagnosed with it.  I had referred him to my doc as he had been experiencing CFSi and ADD symptoms.

If you ever ponder, while you're washing your hands, on which specific pathogens you are trying to protect yourself and others from, make a mental note about this group.  Bacteroides bacteria are the rabble masses of our gut flora.  They are indispensable to us for the work they do inside the gut, but when they leak out of the gut, they become our enemies.  To make matters worse, they "aid and abet" our other enemies (yes, I'm wondering if that includes Cpni).  That's pertinent to people with chronic inflammatory bowel conditions, but it also applies to all the rest of us.  When it comes to nasty infections, bacteroides are true "team players."  You'd be surprised at the places they can collaborate to cause

The following is a condensation of a slightly longer post which can be found at this link.

Jim K