So I'm on the verge of giving up after a horrible night.  Called Dr. Stratton to whine (no, I'm not joking) and he was so helpful.  Is he the nicest man on the planet or what?

TO NOTE:  When I told him my tongue is covered with children's glue, he told me I needed to have a doctor confirm it is yeast.  He said a coated tongue during the CAPⁱ is more likely to be the chlymedia than yeast. He said to buy a tongue scaper as well as wiping my tongue with a rough face cloth.  If it is yellowish, it is definitely chlymedia. He also confirmed for me that my 1:256 is a fairly high number & I need to keep going. Oh, how I wish there was a better way to determine when the cpnⁱ is gone than waiting 6 months for a titer test.

Ok, seriously, I wish I knew the answer to this.  Getting myself back in remission from IC Disease after stopping the CAPⁱ for a month.

I have Interstitial Cystitisⁱ and have been doing antibiotic therapy and the NP that I am have treating me wants me to take plaquenil to see if I have a die off reaction, I am currently taking ammoxicillin and augmentin and flucanzole for yeast.  Plaquenil has drug interactions with cymbalta which I am also talking. i am nervous to take it....Two years ago I took minocycline and rifampin and had horrible die off reaction and then for months I barely had any bladder pain or issues. then it came back again.  She is basing this on the Fry bug theory, she thinks I might have that. Idont know any input would be great. thanks, Michelle

reminder to self to complete

What if I'm healing quickly?

I feel like I am living a miracle.  After 25 years of interstitial cystitisⁱ and fibro, the CAPⁱ has me basically well within 4 months. I had the high antibodies for cpnⁱ. I had started Cortef for adrenal exhaustion and thyroid meds for Hasimotos...so I was already about 70% well from tackling those issues.

I contacted Dr. Stratton and he gave me his protocol (doxyⁱ, Biaxon, Flagylⁱ) and I seem to be healing quickly.  I tried stopping after 2 months and the pain came back in 10 days....it was horrible!  I just finished 2 more months and am commited to going at least 6 full months.

I didn't even notice how time went by. It's been 1 year and 9 months since I started CAPⁱ. When I started, I thought I'd be on it only for a year. Then I hoped to stop at 2 years mark but now I see that I may need a bit more time b/c I still have a few unresolved symptoms.

I am guilty though for taking about 3-4 weeks break from treatment this summer. It happened sponteneously. I ran out of meds, didn't refill on time, we needed to go away for vacation, oh well, many excuses. The truth is that I am burnt out.  I put myself back on track but I can't wait when the treatment will be over.