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Interstitial cystitis

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Jimâ€™s Story- Chlamydia Pneumoniae and Chronic Fatigue/Fibromyalgia

Submitted by Jim K on Sat, 2005-09-17 19:56.

The Tunnel of Illness

I want to update my story on the front end so readers know even before reading the "agony post" how much benefit I've gotten from the treatment. It is August 26th, 2006. Coming up on two years I've been on the Combined Antibiotic Protocol (CAPⁱ) for Chlamydia pneumoniae (Cpnⁱ). A recent forum poster asked if anyone with CFSⁱ has improved on the CAP. My response:

Damned right I'm getting better!When I started the CAP I was in a 2 year slide after 25 years of CFS, then added FMSⁱ. For many years I'd struggled and somehow maintained a semblance of a life. Then over 2 years my pain, brain fog, restricted functioning, etc. slid to a point where I had to stop traveling and could for the first time see the possibility that I would become bedridden eventually.

Could I heal this quickly?

Submitted by kimberlyskach on Tue, 2010-01-26 22:45.

What if I'm healing quickly?

I feel like I am living a miracle. After 25 years of interstitial cystitisⁱ and fibro, the CAPⁱ has me basically well within 4 months. I had the high antibodies for cpnⁱ. I had started Cortef for adrenal exhaustion and thyroid meds for Hasimotos...so I was already about 70% well from tackling those issues.

I contacted Dr. Stratton and he gave me his protocol (doxyⁱ, Biaxon, Flagylⁱ) and I seem to be healing quickly. I tried stopping after 2 months and the pain came back in 10 days....it was horrible! I just finished 2 more months and am commited to going at least 6 full months.

1 year and 9 months on CAP.

Submitted by arthritic on Thu, 2009-09-24 17:11.

I didn't even notice how time went by. It's been 1 year and 9 months since I started CAPⁱ. When I started, I thought I'd be on it only for a year. Then I hoped to stop at 2 years mark but now I see that I may need a bit more time b/c I still have a few unresolved symptoms.

I am guilty though for taking about 3-4 weeks break from treatment this summer. It happened sponteneously. I ran out of meds, didn't refill on time, we needed to go away for vacation, oh well, many excuses. The truth is that I am burnt out. I put myself back on track but I can't wait when the treatment will be over.

New to site:Ohio doctor suggestions & My health issues

Submitted by lizohio on Fri, 2009-06-05 20:52.

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