Rosacea

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A common disorder of the facial skin exhititing redness on the cheeks, nose, chin or forehead, small visible blood vessels, bumps or pimpleson the face or irritated eyes.

The Elephant(s) in My Room – Blog Update

I haven't posted much and my last blog update was in May of this year. I wish the reasons were because I was enjoying a recovery and had my health back, but it's not.   I now join the ranks of some of the others here who came to this site about the time I did.  

 

Last week I had Bioenergetic Testing done which indicated I have:  Bartonella Henselae, Babesia Nosodes, Mycoplasma Fermentes, Borrelia Burgdorferi and high levels of systemic yeast (as well as EBVi, HHV-6 and CPNi) -- "my elephants" and reasons for not recovering. 

 

Is this going the right direction?

This is probably going to be fairly long since it's my first blog entry.

 

I started an empirical CAPi in October on suspicion of a Cpni infection, as my 10 years worth of symptoms find a ton that fit in with a Cpn infection. Not long into starting, I went through a series of old symptoms that hadn't bothered me in years that reminded me that way back at the start of all these symptoms, I had legitimate concern of a lyme or other TBD infection. Bullseye rash, joint pain, muscle twitching, sore throat, increased floaters and neck pain. I saw my doctor about all of that, but it was explained away. Anyway, maybe 2 weeks into the CAP, I re-experienced all of that except the bullseye rash.

 

Dianna's GFA victory.

Dianna did a one-year CAPi for GERDi, rosacea">i, high blood pressure">i and several other complaints, all of which started approximately simultaneously. This CAP ended nearly a year ago at this writing.

The GERD and high blood pressure are still gone. Today, after walking from the parking deck into the clinic, it was 113/75. The GERD returned briefly after she had general anesthetic for an unrelated condition, but went away after about two weeks.

The rosacea was completely gone at the end of her CAP, however, it has rebounded slightly. A doctor involved in the treatment of the unrelated condition took her off "all that funky stuff," including NACi, so. . .

I dont know where to start NAC test

hello,

 

I have had rosacea">i for several years. Started topical ketaconizole and it mostly went away.

 all blemishes went away and most redness. some slight redness remains. 

also had low grade fevers often for weeks in a row, every night, started 8 years ago in college.

also diagnosed graves disease, went on methimazole and it is in remission according to my endo.

also have general feeling of bodily malaise, weakness

also have non-crusting type of blepharitis, or dry eye syndrome producing sharp needle like pain in eyes, meibomian gland disfunction, the oil part of the tears is too thick like toothpaste, eye not lubricated. occasional eye redness, sometimes halo around iris.

 

Antibiotics to be available without prescription

This is the news:  In England, possible antibioticsi to be sold over the counter, to treat CHLAMYDIA!

This is the story form http://www.guardian.co.uk/society/2008/aug/06/health<

Oral antibiotics are to be made available for the first time without doctor's prescription under guidelines approved yesterday by the medicines regulator.

A pill to treat chlamydia, the most commonly diagnosed sexually transmitted infection, will become available for purchase in pharmacies across England later this year.

introduction and inquiry about topicals

Hello, and thank you for taking the time to read this post.

I was not able to locate information referencing contraindications to my Rx topicals.

Please pardon me if this is covered elsewhere.

I'll start with a bit about where I'm at and have been.

Mental

I'm a graphic designer who works from home. I have a happy homelife and a positive worklife. I believe that i am a healthy person, I just do not physically feel like one. I have long suspected that everything I experience is tied together, so am really happy to see this Web site. I want to live my life again: I want to go outside into the sunshine; ride a bike; shop in a store!



Physical

JUST started CPN protocol

wow, i dont know where to really start without saying HELLO first.  its been a LONG 8-10 years of being sick, seeing MANY physicians, and thousands of $$$ later before i really have some what of a guide to getting well.  to just give you a BRIEF summary of my illness, i worked for a poultry processing plant for >10 years and @ the time did NOT think it would cause such heartache, but in a educated hindsight, it created my current condition.  prior to working there i was ENERGETIC and full of life.  well, because it was SUCH a subtle deterioration i didnt put my finger on the enviornmental toxins until 2-3 years ago.  some of the few things i contracted while working there was eczema, asthmai, fatigue, brain fog, dry skin (my skin had always be sooooooo oily) among other things.

"ACE Chlamydia levels" -- anyone heard of it?

My niece took a fistful of papers to her doctor because she has rosacea">i, chronic bronchitis/asthmai, chronic sinusitis, and what looks to me like GFAi. I highlighted the appropriate passages.

He

ruthless1, Canada

Multiple Symptoms, here is my diatribe!!  I was new to the site April 06 & I have Fibromyalgia-FMSi, Chronic Fatigue Immunei Deficiency-CFIDSi/Myalgic Encephalomyelitis">i- ME, Chronic Lyme Diseasewith the usual cornucopia of underlying symptoms, crashes, flu like symptoms, migraines including CPNi, Babesia & recently hereditary genetic Hemochromatosis. 

Help I am so confused

I am still trying to get a grasp on Chlamydia Pneumoniae, I just found out on 4-11-07.  But I have been sick for awhile  Cry.  I am just starting Antibioticsi again......eeeeek Foot in mouth.  My symptoms have been sinus infectionsi and uppper respitory infections , Phlaringitis, Broncotitis, Asthmai.  In and out of the Dr. office the month of April, and my throat swelled shut I could go on and on.  I ended up at an Infetious disease Dr.

New Handbook page on Cpn & Rosacea

I'm very please to announce the addition to the Cpni Handbook of a page on Rosacea">i and Cpn put together by our own intrepid member Red. Red has been a pioneer in applying the CAPi for Chlamydia pneumoniae to his own condition of rosacea, and has been instrumental in educating many of us about this condition through his own experience on the CAP, as well as his careful studies of the biology and research which connects them together. I know that all of you reading his page will learn more whether you have rosacea as part of your own Cpn difficulties or not.

As we have prevented comments in Handbook pages, this thread might be a good place for any feedback or discussion about this addition.

Chlamydia pneumoniae and Rosacea: A potential link?

 

While the exact pathology of rosacea is not completely understood or widely agreed upon, recent studies suggest that chronic inflammation likely plays a role in many of the symptoms associated with this disease.

 

Background

On Jim's recent pages on rosacea and Red

Hello Everyone,

I just wanted to thank Jim so much for his recent pages on "Facing Cure - Red's Rosacea">i Story" and "I'm so Proud of Us".

The word "cure" to those of us in the rosacea community is as elusive and sought after as the Holy Grail (as I know it is to any disease, like MSi, CFSi, etc that dramatically affects one's life).  So many of us early in our diagnosis have prayed that each trinket we found was the Holy Grail, only to find out it was a rusty, cruddy old tin can, and just as useless.....

It is understandably difficult for anyone who has not suffered from rosacea to know its true impact and pain.  Beyond the obvious cosmetic aberrations that can significantly impact one's self-esteem, self-confidence and psychological well-being in general, there is great physical pain and discomfort.  For many of us in the moderate to severe stages of the disease, the constant pain of feeling like your face is on fire, like your epidermis is sizzling and burning like a round of bacon in a frying pan, the increased hypersensitivity to anything you put on your skin, sometimes even water burns and irritates, the inability to enjoy social gatherings or public places because of social flushing and heat intolerance, renders many of us disabled by the condition.  The impact on our relationships can be profound.  The impact on our ability to work, or do normal activities like cooking or cleaning (anything that raises body temperature), etc, can be immense.  To control my rosacea for example, I have to spend thousands a year on anti-inflammatory topicals and supplementsi, take cold showers (any warmth will cause me to flush and burn for hours), avoid any environment above 15 - 17 degrees Celsius or I will be in agony, stay out of the sun and bright lights, only eat cold food, no hot drinks or thermally hot foods (again, one bite of something even lukewarm sets me off), I can barely even sit close to someone because their body heat will start me to burn up (you can imagine how difficult relationships could be), avoid all foods and spices which are high in histamines and salicylates which are triggers for me, and on and on.  I started out with mild rosacea but it progressed over the years through the moderate and now severe stages.  I thought it would get better after I treated my H.Pylori infection 3 years ago.  Little did I know then that other pathogens were lurking. We liken rosacea in our community to a "beast".  There is just no controlling it's anger and vengeance it seems.  It seems the "beast" may at least in part be Cpni...........

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