I found this interesting...

CFIDSi is ranked 9 and "autoimmune illnesses" with a mention of MSi ranked 6.  The common cold ranks 2. 

http://www.livescience.com/health/top_10_diseases-1.html

 

I'm getting the NHS doc to come out again tomorrow to have a look at Paula's teeth and ears again as they have both got worse (especially in past couple of days) since coming off the 150mg daily dose of Roxyi.

We are both almost certain that Paula's hockling issues stem from either her ears or teeth.  I only wish when she was well, she had seen an ENT specialist.

When her hockling first started back in 2007 (pre CAPi) her NHS doc perscribed the abxi Flucloxacillin 250mg (which Paula wouldn't take but we still have and doesn't expire til May 09).

I have a question:-

If when Paula's NHS doc sees her tomorrow and advises the above abxi, is this anti CPni?

Whilst looking through http://www.thyroiduk.org.uk

I have come across some people using hormone free natural products instead of Armour or Thyroxine etc for the Thyroid like this :-

http://www.nutri-online1.co.uk/Portals/1/3201.pdf

Also instead of hydrocortisone, I found this:-

http://www.nutri-online1.co.uk/Portals/1/3206.pdf

I know that Paula will need the proper meds instead, but I wondered if anyone had taken anything like this before?

Thanks,

Mark

I searched the site and read some threads regarding this. The best I could find was someone mentioned Oregano Oil and Onions, someone else mentioned lamisil (relating to fungal).

About 2.5-3 years into my CFSi the prostatei symptoms started and have progressed steadily and now they are at their worse. When I take things that kill bacteria (Cat's Claw, Andrographis, Olive, Uva Ursi, etc.) It makes the nightly symptoms worse. When I workout it makes the nightly symptoms worse. When I do the CHeney breathing evercise I posted it makes the nightly symptoms worse.

Hi Gangmembers!

Just wanted to ask if Bartonella can become resistant to Azithromycin?

Background: I am on Wheldon capi since February with Atzi.250 M/W/F and Doxyi, Tinii. A few weeks ago we found also an Bartonella Coinfection.

For Bartonella Azi.250 3x week is very few. That is why I am asking if bart can become resistant due to low dose of azithromycin?

I am finishing a 10 day Tini pulse today for an anaerobic diarrhea infection. The last 5 days I increased the Atzi. Dose to 500 mg per day and am feeling much better. I am dropping the doxy next monday and start with rifampin 2x300 p.d.

So my new very sporty protocoll Is Rifampin 600 + Azithromycin 500 per day.

Why is it these studies appear to not always ask "all the right questions".   I found this one (done in 2006) on the effects of Azith on CFSi patients.

What's funny is, it was concluded:  "They (the patients) improved only to an estimated maximum of 80% of their premorbid capacity".. hey 80% is pretty good when you've got CFS.  And, this was on 500 mg of Azith for 3 consecutive days for (only)  6 weeks (monotherapy).  Of course, we don't really know how incapacitated  these patients were..... but it doesn't really matter, 80% is pretty significant.

Hi to all !

I got my test results for bartonella back today. Positive!  So it seems that I harbour other nice Bacteria from the privileged circle.  Does anyone have experiences how to treat bartonella alongside with the capi. I think adding rifampicin should be the clou....

Anyone has experiences with bartonella treatment?

 

Thanks in advance

As per Rica's wishes, her computer has now officially broken down so she will be out of commission for a while. I do speak to her on the phone and she says if any of you need to get a hold of her and you have her phone number, please call. She misses you all.

 

Loulou

COINFECTIONS: A SYNOPSIS
Compiled By: Melanie Reber

Babesiosis

Explanation: Protozoa that invade, infect, and kill the red blood cells
Symptoms: Fatigue, night sweats, fever, chills, weakness, weight loss, nausea, abdominal pain, diarrhea, cough, shortness of breath, headache, neck and back stiffness, dark urine or blood in urine
Treatment: Atovaquone (Mepron) plus Azithromycin (Zithromax), Clindamycin and oral Quinine
Other: Alternative treatment may include Riamet or Artemisinin

Bartonella

Explanation: Bartonella spp. bacterium
Symptoms: Fever, chills, headache and severe pain in the tibia, weight loss, sore throat, papular or angiomatous rash

I'm assuming once you get rid of CPNi then you have no risk of reinfection later in life as you should have antibodies?

Does anyone believe they have upregulated NO? It might be something that occurs with a chronic parasitic/bacterial illness.

Does anyone get this? If so how do you fix it? B12? It is very troublesome for me.

http://www.msnbc.msn.com/id/25511729 Drugs like acyclovir kill viruses only when they are in the active phase. The viruses lay dormant and activate over and over again. Research at Duke University may lead to a treatment to cause all the viruses to activate all at once, and kill them once and for all. A drug called antagomir would cause a cold sore to erupt, but then all copies of the virus could be eradicated once and for all. Getting rid of something like shingles would likely be trickier.

Ancient Retrovirus May Contribute to Chronic Fatigue Syndrome, Multiple Sclerosis and Autoimmunity Smoldering Infections of Two Common Viruses EBV and HHV-6 Cause Inherited Retrovirus Genes to Activate http://www.marketwire.com/mw/rel_us_print.jsp?id=871774

Is there anyone here who is treating Epstein Barr only or has knowledge of testing and treating this condition?

My CFSi began after "a glandular fever type illness" in 1995 and I still get months long bouts of swollen neck and throat glands, sore throat and generally feeling crappy.

 Is there a valuable test to see if this is part of my problem?Are there any Docs in Europe treating this condition?

Kittykins