Feb. 21 - Mar. 11, 2009

I've just finished a seven-day course of Flagylⁱ, and - after warnings from both the doctor and pharmacist to stay away from alcohol - Googled "Flagyl" and "alcohol" and came across this site. Didn't know ether was a virtual support group for chlamydia pneumoniae |(how do you explain that to the uninitiated? I've been asked "sexually transmitted, eh"?)

So this is rather exciting and quite interesting as well. My story is quite a bit like so many I've heard or read about.

It has been some time since I have updated my blog so here goes.  What to say???, breath, wind me up &&& …. I have been disengaged on the site as I just haven’t had the mindset to handle the stress.  I apologize for this as I know that my support has made a difference to some.  I found myself reading the posts and was getting stressed out & frustrated with it all.

A word of encouragement?? I haven't checked in for quite a while. Been doing ok, but have been undergoing Vitamin C IV treatments for 4 weeks followed by Rifampin 150mg twice a day for 4 days.  My energy is zapped and the Rifampin feels like poision to my body.

This is the news:  In England, possible antibioticsⁱ to be sold over the counter, to treat CHLAMYDIA!

This is the story form http://www.guardian.co.uk/society/2008/aug/06/health

Oral antibiotics are to be made available for the first time without doctor's prescription under guidelines approved yesterday by the medicines regulator.

A pill to treat chlamydia, the most commonly diagnosed sexually transmitted infection, will become available for purchase in pharmacies across England later this year.

My friend Isabelle is suffering a severe Tinnitusⁱ and she has been told that she just have to learn  to live with it.  It is true that she worked in a very loud environment, but I remember her having very strong "colds" and "flus"; so, because I saw that this illness was mentioned here, I would like to ask if it might be relationed with CPNⁱ and if it is treated as the MSⁱ?

Can someone help my friend guiding her as to what to do?  she is living in South America...

Thank you very much to everyone!

Marie. 

Luivac, Bronchovaxom, Imunor, Imudon, Biostim, Isoprinosine a Wobenzym but without success.

I need any information anybody can give me on overcoming depression associated with CFSⁱ. I am currently taking 40 mg/ day Nortriptyline, 300 mg/day Wellbutrin, 75 mg/day DHEAⁱ. I'm on a lot of anti-oxidants too.

Still experiencing moderate to severe depression. Most days, severe depression. What will help? Anything? Does Vitmain D help? I have to hold down my full time job and the depression (along with the fatigue) is REALLY taxing me and my motivation and could cost me my job if I can't find something to help.

Any thoughts or suggestions would be greatly appreciated.

Thanks, Lynn

 Cpnⁱ, Mpn, CFS, CAPⁱ - Doxy, Erythromycin, NACⁱ

Good afternoon!

I've been having fibromyalgiaⁱ symptoms for the past 4 days- neck, left shoulder, back of head, band across my head from 1 temple to the other, down my spinal cord. I haven't dealt with fibro symptoms in several years and I can't remember what I can do to relieve my pain and stiffness.

I've been taking Lortab (Hydrocodone with acetaminophen) and/or Ultracet, aspirin, using a topical analgesic oil rub and a moist heat wrap. I'm also stretching. I've considered the chiropractor and massage therapist just haven't made appointments yet.

Hi everyone: 

Restless legs?? Need answers quick please! I was out last night with my friend when all of a sudden I felt like I was going to have a seizure.  I have felt this way on and off since starting the protocol so I know it's part of the cpnⁱ (besides having a hx of these sizures which i now know is Cpn related seizures). Had not had feelings of a seizure in a couple of years before CAPⁱ protocol. Anyway, after that I realized that I felt I could not stand up. My legs were so weak and I started having the sensation that ants were crawing inside legs. Haven't had restless leg syndrome since last winter with EBVⁱ. And it got really bad last night.

Best day yet! Quick update on my health... I'm in 2nd week of NACⁱ 600mg, Doxyⁱ 200mg, and Erythromycin 250mg and I actually had a decent day. Had stamina for about 6 full hours of work today and I've been online a while tonight. I was only nauseated once today and was able to knock it out with some good ole' fashion compazine. I've been stuffy for several days and sneezing, but not so bad that I can't deal with it! Much better than the NAC flu!

I'm tiring now, but actually feel like I can say I felt better today than I have since starting CAPⁱ. I'm trying not to set myself up by reminding myself that tomorrow is a new day, come what may, and not to get discouraged if this doesn't last.

Need to talk to someone soon.  I'm feeling a little desperate at the moment.  Don't know how to IM, willing to learn or willing to just e-mail back and forth. 

Hello everyone-I'm so glad to find this site and others who understand what I'm going through!  I have suffered for at least 17 years with various illnesses that I now see may all be related to CPnⁱ.  My most recent addition to the plethora of illnesses I've experienced is severe tinnitusⁱ with 5-10% hearing loss. I recently had to purchase hearing devices, $3000 worth to drown out the ringing noise as it was driving me insane, literally! Finding out about CPn has made me feel like I have found a gold mine, thanks to my doc, (MD and toxicologist) that knows how to think outside the box. Sure has given me renewed hope. I actually found out I had it after my friend was diagnosed with it.  I had referred him to my doc as he had been experiencing CFSⁱ and ADD symptoms.