look inside the box and see what's in there .........

SUPPLEMENTSi!!!

All sorts of pills in different shapes and sizes, and BRANDS.  So here's the question - Does anyone detect differences between one or the other?  Does it matter where we buy them? Is NACi the same regardless of where it's bought?

Went to my Dr on Monday after six weeks of Doxyi 200mg/MWF of Azith 250..time to add the  bad boy.  Flaygl.  He voted for 250 1x day for 5 days since I had only minor reactions to the other meds.

 Went straight to CVS and took my first dose Monday night.   Tues, Wed, Thursday came and went, I have been working about 50 to 58 hours the past couple of weeks and still doing reasonably well.   Sat in the infrared sauna for 30 mins on Tues evening and got shaky so no more for the week.  

I have been counting the days since pulse 19 and waiting for some sign of improvement to indicate when pulse 20 should commence,but no such luck. The myalgia/inflammationi set in within 3 days of starting #19 and has remained firmly entrenched. Advil round the clock helps a bit. Pain has cropped up in surprising places: neck, shoulders, tight, ropy spinus erectus muscles have been the name of the game making ambulation so trying that I have found myself in tears just attempting the simplest things. I think I feel worse than I did two weeks post pulse. I admit some of it must be posture-related as I have been too tired to do much. I can be tough about this, but I fear another pulse may just worsen things further?? Am I wrong? -kk2

Wow-- the brain fog, been meaning to begin documentaton so I can track progress and it seems I remember at all the wrong times and can't get to it or don't have the stamina at the time I remember either.  

 Really can't remember when "true" symptoms appeared but have always been super busy with career, kids, outside activities and many many stressors.  The stressors increased in 2003 when I lost my job, began work for a bi-polar verbally abusive physcian and put myself in a spiral of deprecating "prove myself" work behavior.  Then add a 13 week horrilbe ICU stay for my mother to finally lose her, other major family issues and 3 miscarriages in 2 years.

I was reading recently that INHi is a compound of Niacini.  If that is the case, might that explain the reason why INH is useful in that it may have the same sort of activity against CPni as Niacin?  Further, I'm wondering whether Niacin has the same sort of affect as INH.  I know many take mega doeses of Niacin and get a reaction out of it.  I have before, though I didn't keep it up. 

I guess I wonder if I should think about Niacin in the same way I think about NACi.  NAC is a substitute for amoxicillini/penicillin basically, could not Niacin substitute for INH in the same manner?  It certainly would be safer from a liver standpoint...

 

       

June 18, 2007              -           started taking azith 150 MWF & doxyi 200

 

Vitaminsi are ramping up, Niacini 375 mg, NACi for 3 wks now 2gms, D 1600U, along with all the rest of the Wheldon recommended supplementsi & what I normally take.

Well, finally today my additional supplementsi recommended for the protocol have arrived!

I just had a snack, took the NAC & a few others, sorted & wrote on all the bottles & now I am tired & I need a nap!  Oregano Oil makes your lips feel funny!  I will have 3 weeks of NAC under my belt when I see my MD next on June 22.  Then I will have my prescriptions for the switch to the Wheldon Protocol.

Ella has been suffering the after effects of her latest pulse for a couple of weeks now with no sign of her worsening symptoms abaiting. That is not to say that it is all bad news, her hand which had been going down hill is making a slow recovery which is encouraging, but since the last pulse which immediately upon taking her first tinidazole (within a couple of hours) resulted in a loss of strength in her legs, these latest symptoms have continued to deteriorate slowly. Another symptom that happened overnight was the 'flu' which I know is the immunei systems reaction to the cytokinei call, so not a virus, which has left her with a persistent cough, associated mostly with her bronchi.

Hi CPNers -- It’s been 29 days since I began treatment for CPN – Biaxin 500 mg every other day.   6 days ago I began Doxycycline 100 mg every day and I continue to take Biaxin.  I’ve been treated for fibromyalgiai with injections of Gamma Globulin – nothing much else but a heating pad and lots of Flexall – I felt like fumes were arising from me…I could almost see them.  At this point I’m really feeling pretty good.  I don’t have that sick feeling with CPN and fibro that I had for weeks, not as much brain fog, not nearly as much exhaustion – that only happens when I get up at 4 a.m. and work on the computer all day without a break, and of course then I’m asleep by 8 p.m.  The fibro has pretty well let up, especially my painful mid back which was killing me.  It’s my lucky day that I don’t smell of Flexall anymore.  I still have pain in my left upper arm, but that’s not much, comparatively.  I’ve been drinking lots of liquids – zero calorie artificially sweetened clear soda.  I guess if I don’t drink water, it’s better than nothing.  I’ve been taking prescribed supplementsi.  Been a good girl.  So, things are looking up. Do you think I’m being too hopeful?