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oneof the  B vitamin goup.

13th pulse--suspect my error

I'm on my 5th day of 13th pulse.  As I've said in the past, I've not had any improvement and have declined in abilities.  For example, it has become very difficult to get my rollator out of my van to the point of going weeks without getting out of the house.   When I started CAPi last year I had a VERY scary reaction to Niacin.  I read that I should use a non-flushing form of niacin, but I never did -- I just eliminated taking niacin completley.  In reading recent posts yesterday regarding the importance of niacin, I'm wondering if this could be why I've had no positive reactions.  If this is the case, I'm so MAD at ME!!!  Did I goof??  PLEASE REPLY.  

the here &, what it is


It has been some time since I have updated my blog so here goes.  What to say???, breath, wind me up &&& …. I have been disengaged on the site as I just haven’t had the mindset to handle the stress.  I apologize for this as I know that my support has made a difference to some.  I found myself reading the posts and was getting stressed out & frustrated with it all.

Antibiotics to be available without prescription

This is the news:  In England, possible antibioticsi to be sold over the counter, to treat CHLAMYDIA!

This is the story form<

Oral antibiotics are to be made available for the first time without doctor's prescription under guidelines approved yesterday by the medicines regulator.

A pill to treat chlamydia, the most commonly diagnosed sexually transmitted infection, will become available for purchase in pharmacies across England later this year.

Chronicles of a Rifampinaut: Pulse 24

Day 2 of pulse 24.  Nothing remarkable to report, the pulse is going much the same as most of  my prior pulses have gone.  I have a bit of heaviness and burning in my legs but otherwise feel about the same as I did before the pulse.  This being the second day, that could easily change come Monday when the work week begins again, as does my work schedule.

I stopped INHi about three weeks ago and have been having less inflammationi.  What I had before made it really difficult to function on some days, I just wasn't able to get around the way I was before INH and since getting off of it.  I think the combination of abxi was just too much.  I even did two pulses while on continuous INH.  Better to scale back a bit.

when does CAP treatment end?

  my questions to all you Cpni veterans.  is it safe to say that if you were to test your Cpn antibiodies they'd be below reference, thus, negative, right? 

assumming the patient is feeling good (after 2 years on CAPi) and with no improvement seen over the last 6 months (hit roadblock).  their improvments are noted as >75% improvments.  ok, i guess my question is when does one stop taking CAP?  i could be wrong, but the marker doesnt seem to be blood test driven, so i am assumming it subjectively up to who he/she is feeling.  are there any or a lot of >2 years CAP'ers that will be ceasing soon?

Chronicles of a Rifampinianaut vol. 5: So Begins the Age of INH

WinkYes, I broke into my stash of INHi from last fall and took my very first dose of INH tonight with my second dose of Rifampin for the day, hence the Rifampinianaut. Isoniazid is the full name of INH and I just couldn't bring myself to label myself the Rifampiniazid. Of course, if one want's to be completely accurate, I would have to also work in Doxycycline, Azithromyocin, N-Acetyl Cysteine, and Metronidazolei. Hmmm....the Metroxyzithricetylfampiniazid, lol!!! O-kee, D'O-kee, I think not, lol

My Dr. Powell Experience...

First off, I want to thank Jim, Raven, Prescansario and anyone else that encouraged me by their kind words for Dr. Powell.  They were all nothing short of true!  The fact that I drove 3 hours each way and got a flat tire I still feel like my consult went exceptionally well.  His office is very modest and is FAR from the ambience of the ‘cash cow’ corporation I was used to (Holtorf Medical Group).   I am in NO way knocking a physician for having a 52 inch plasma on their wall for patients to view, but just stating Dr.

Who the heck is Pandora?

look inside the box and see what's in there .........


All sorts of pills in different shapes and sizes, and BRANDS.  So here's the question - Does anyone detect differences between one or the other?  Does it matter where we buy them? Is NACi the same regardless of where it's bought?

And just when I thought I was cruising through...

Went to my Dr on Monday after six weeks of Doxyi 200mg/MWF of Azith 250..time to add the  bad boy.  Flaygl.  He voted for 250 1x day for 5 days since I had only minor reactions to the other meds.

 Went straight to CVS and took my first dose Monday night.   Tues, Wed, Thursday came and went, I have been working about 50 to 58 hours the past couple of weeks and still doing reasonably well.   Sat in the infrared sauna for 30 mins on Tues evening and got shaky so no more for the week.  

Betwixt 19 and what??

I have been counting the days since pulse 19 and waiting for some sign of improvement to indicate when pulse 20 should commence,but no such luck. The myalgia/inflammationi set in within 3 days of starting #19 and has remained firmly entrenched. Advil round the clock helps a bit. Pain has cropped up in surprising places: neck, shoulders, tight, ropy spinus erectus muscles have been the name of the game making ambulation so trying that I have found myself in tears just attempting the simplest things. I think I feel worse than I did two weeks post pulse. I admit some of it must be posture-related as I have been too tired to do much. I can be tough about this, but I fear another pulse may just worsen things further?? Am I wrong? -kk2

Getting started

Wow-- the brain fog, been meaning to begin documentaton so I can track progress and it seems I remember at all the wrong times and can't get to it or don't have the stamina at the time I remember either.  

 Really can't remember when "true" symptoms appeared but have always been super busy with career, kids, outside activities and many many stressors.  The stressors increased in 2003 when I lost my job, began work for a bi-polar verbally abusive physcian and put myself in a spiral of deprecating "prove myself" work behavior.  Then add a 13 week horrilbe ICU stay for my mother to finally lose her, other major family issues and 3 miscarriages in 2 years.

Niacin vs. INH

I was reading recently that INHi is a compound of Niacin.  If that is the case, might that explain the reason why INH is useful in that it may have the same sort of activity against CPni as Niacin?  Further, I'm wondering whether Niacin has the same sort of affect as INH.  I know many take mega doeses of Niacin and get a reaction out of it.  I have before, though I didn't keep it up. 

I guess I wonder if I should think about Niacin in the same way I think about NACi.  NAC is a substitute for amoxicillini/penicillin basically, could not Niacin substitute for INH in the same manner?  It certainly would be safer from a liver standpoint...

update time



June 18, 2007              -           started taking azith 150 MWF & doxyi 200

It is official.....update


Vitaminsi are ramping up, Niacin">i 375 mg, NACi for 3 wks now 2gms, D 1600U, along with all the rest of the Wheldon recommended supplementsi & what I normally take.

They're in the starting gate...&...they're offff....

Well, finally today my additional supplementsi recommended for the protocol have arrived!

I just had a snack, took the NAC & a few others, sorted & wrote on all the bottles & now I am tired & I need a nap!  Oregano Oil makes your lips feel funny!  I will have 3 weeks of NAC under my belt when I see my MD next on June 22.  Then I will have my prescriptions for the switch to the Wheldon Protocol.

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