Sinusitus

warning: Creating default object from empty value in /home/cpnhelp/www/www/modules/taxonomy/taxonomy.pages.inc on line 33.
Chronic sinus problems

Searching for years, not giving up !

Hello all! Im Wanda and Im an advocate for my hubby, who went from perfect health to progressive decline starting 2003, we have been married 27 years and still adding on. 3 kids (2 grown) 1 dog, 2 cats.

Im learning how to navigate this site and post, so please forgive me as I learn. Im not sure if I will find hope here, any input is appreciated!

2003 he started with flu like illness extreme fatigue few small bite? on chest, fever, which developed in to what appeared to be hives? Doctor said hive, stress...xanax!, prednisone does pack...Prednisone did nothing, Next doc drew blood for lymes etc. put hubby on Doxyi for 10 days...

Hen or egg?

Most of the Doctors just look at a symptom and treat it the way they think;  - they know it all.  Then, the diagnose comes, like an etiquette of a product. Does someone looks what is behind the symptom?  Which is the cause, and the cause of this cause?

One Doctor -cardiologist-  saw me and when he found out I was multisymtomatic gave me some pills for the anxiety, nothing else. 

5th month on CAP - long overdue update.

I was going to post updates with my progress monthly but having being overwhelmed with trying to keep up with life and treatment, I am way  behind.

Anyway, here I go. I started back in Jan'08 with big doses of CAPi (3 abxi) and after extremely severe die-off reactions and stopping a couple of times, I re-started nice and slow in Feb'08, adding 1 abxi at the time, making small changes and ramping up.  

Finally on full doses of current protocol - Rifampin 600 mg/day and Doxyi 100 mg x 2/day - since mid-March. 

Case of Chlamydia Inhalation (Source Cattle)

History :

Following inhalation of particles in a tunnel in 2003-july (transport of several trucks of cattle preceded my car) I had a feverish state (starting same day) which lasted 4 days (no temperature, just important cold sweat) + drip syndrome (started not more than 1hour after exposure).

introduction and inquiry about topicals

Hello, and thank you for taking the time to read this post.

I was not able to locate information referencing contraindications to my Rx topicals.

Please pardon me if this is covered elsewhere.

I'll start with a bit about where I'm at and have been.

Mental

I'm a graphic designer who works from home. I have a happy homelife and a positive worklife. I believe that i am a healthy person, I just do not physically feel like one. I have long suspected that everything I experience is tied together, so am really happy to see this Web site. I want to live my life again: I want to go outside into the sunshine; ride a bike; shop in a store!



Physical

Concerned with the future fate of my CAP

I went to see my Lyme dr for a monthly appt. and came back home all disturbed and worried. This was my 4th appt with this dr and I am still in the beginning phase of the CAPi tx. By this time my dr and I should be developing a working relationship but it's not happening. During appt he asked - Remind me, how long have you been sick? So I told him my story again very briefly. As I mentioned that I saw rheum dr before finding him, he asked - And Rheum didn't find anyhting? That surprised me completely b/c on my 1st appt with this dr I brought to him consult notes from the rheum dr stating the dxi and plan of tx (not CAP, of course but prednisolone & Sulfasalazine). I felt he didn't remember my case at all.

Positive for BB?

When I saw my dr a few days ago we went over my labs results that had come back. The Western Blot for Lyme disease. IgGi was negative. Good news, right? But strangely enough, IgM was positive by both standards - unconventional Igenex (where the labs were actually done) and CDC.

I was floored, I really didn't believe that I may have Lyme.  The dr told there may be a false positive and we ordered a confirmation test with Igenex.

The reason I think it is strange to have IgM (+) b/c my sxi started so long ago and logically it's IgG that should be (+) if I have Lyme.

Not sure where to start looking...

I don't think this is the right area for my question but I'm not sure where else to post....

I'm looking for physicians in northeast Florida who are knowledgeable about Chlamydia Pneumoniae.  I'd even settle for "open to a discussion about cp" vice limiting my search to the truly knowledgeable ones.  :-)

I'd also be willing to travel to ANYWHERE in Florida or along the southeast corridor states of Georgia, South Carolina, North Carolina, Virginia, DC, Maryland.  Even a hop over to Tennessee would be okay.  Ideally, however, a doc in Jacksonville FL would be great (but way too much to hope for??).

What to take for depression associated with CFS?

I need any information anybody can give me on overcoming depression associated with CFSi. I am currently taking 40 mg/ day Nortriptyline, 300 mg/day Wellbutrin, 75 mg/day DHEAi. I'm on a lot of anti-oxidants too.

Still experiencing moderate to severe depression. Most days, severe depression. What will help? Anything? Does Vitmain D help? I have to hold down my full time job and the depression (along with the fatigue) is REALLY taxing me and my motivation and could cost me my job if I can't find something to help.

Any thoughts or suggestions would be greatly appreciated.

Thanks, Lynn

 Cpni, Mpn, CFS, CAPi - Doxy, Erythromycin, NACi<

Most mild CAP protocol in terms of side effects & die-off?

I started CAPi with Minocycline 100mg x 3 + Rifampin 300/day only to stop it due to huge reaction. My dr was thinking in the lines that's one of the abxi causing side effects, perhaps the Mino. Soon I re-started only with Doxycycline 100 mg x 2/day. At first it was OK but I had abdominal pain, aggravated hypertension">i, hypoglycemia and porphyriasi again and by 10th day it was too severe for me to continue. I mean, I felt like it was life-threatening at the time.

I stopped Doxy a week ago yet still haven't recovered completely. Today I feel that like I was hit very hard on a head but a bit better in general.

Hypoglycemia and how do you manage?

I am on Doxycycline 100 mg x2/day since 01/14/08. Before Doxy I started with Minocycline/Rifampin CAPi but had to stop in a few days due to severe reactions and overwhelming hypoglycemia as well. Now, on Doxy, hypoglycemia continues. I was feeling good for a couple of days earlier this week but on Wed evening relapsed with weakness, tiredness, shaking/shivering due to feeling cold, tachycardia, BP's up, nausea, hunger and so on. Most of the Thu I felt waves of the same effects and had to leave work. Today, Fri, I am feeling much better but I have to eat something every 2 hrs to keep re-occurrence of hypoglycemia away.

Michele 'Fighting' Findlay reaches another milestone...

Another milestone has been reached, I've just finsihed my 30th pulse, and I have a few observations which I think are worth recording and communicating.

From the beginning I have been taking 200mg Doxycycline daily and 250mg Azithromycin MWF continuously and done a 5 day flagyli pulse every three weeks, so I would take 1200mg flagyl on MTWTF of one week and take the following week-end and the next two complete weeks off.

In that time the alopecia recovered to so such an extent that I need to go to the hairdresser once more. The hair still goes through phases of falling out, but the balance is on regrowth.

Embarking on CAP - what do you think of this protocol?

Last Fri I saw my new dr who is an integrative MD specializing in Lyme. Very nice, compassionate and down to earth person. The appt was early morning when I am not yet in my best shape. I was so exhausted and brained fogged, my BP was soaring 170/110 so that my hubby had to drive me over and was a big support at the dr's office as well. 

Syndicate content