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Taking a break from continuous

Submitted by Jim K on Tue, 2007-07-24 23:29.
I've upped my INHi to full dose now, which engendered more sacroilliac and lumbar back ache, but seemed otherwise manageable. But I've decided to take a break on the continuous tinii which I've been doing for a couple months. I'm on vacation and noticed with the increase in sunshine (Vit D?) and increase in INH that I have felt continually cruddy. Not smart on vacation! So I'm interested to see what the pattern is just on the regular antibioticsi. I'm particularly curious about post-pulse type symptoms (apoptosisi and cleanup) and cycling, which have been impossible to discern on a continous protocol. Always the fine balance between killing the buggers and having time to actually feel better!

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CAPii for Cpnii 11/04. Dx: 25yrs CFSii & FMSii. Currently: 150mg BID Roxithromycin, Doxycycline 100mg BID, Tinii 1000mg/day pulses; Vit D2000 units, T4 & T3

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Jim, The sunlight factor is

Submitted by kitkat2 on Wed, 2007-07-25 00:11.
Jim, The sunlight factor is a must-know. I had to stop the D for awhile myself. Sun exposure was enough. Finding that balance, and in particular finding time to feel better is key.

 

On Wheldon regime [Doxyi,Azith, and Flagyli]  for rrmsi since October '05.  EDSSi was 6.5, now 5.5.  United States.

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Began Wheldon Protocol for rrmsi October '05.  Currently OFF all abxi since June 26, '08 due to severe porphyriai. Added LDN 4.5mg qhs October '07.  All supplementsi.

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  Jim!  You weren't trying

Submitted by Sarah on Wed, 2007-07-25 06:49.
 
Jim!  You weren't trying to do continuous flagyli on vacation were you?  No wonder you have been around here so much that few people would really have noticed that you were actually in Mexico. 
  
Tell you what, if you want to feel really flagylated you should come to the glorious south of England instead, then you could enjoy continuous rain, no sun for days on end and floods.  At one point yesterday, DW had to wade up to his knees in river water from the Great Ouse........Sarah  
  
  
 
  
An Itinerary in Light and Shadow  
Stratton/Wheldon regime since August 2003, for aggressive secondary progressive MSi.  Intermittent therapy after one year. 2007 still take this two weeks every three months. Still slowly improving with no exacerbation since starting. EDSSi was 7, now 2

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Completed Stratton/Wheldon regime for aggressive secondary progressive MSi in June 2007, after nearly four years, three of which intermittent.   Still slowly improving and no exacerbation since starting. EDSSi was 7, now 2, less on a good day.

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Jim, good to know your

Submitted by mrhodes40 on Wed, 2007-07-25 10:03.
Jim, good to know your current situation and reactions. I am watching your posts and comparing my own experience too. I am so impressed that you are doing INHi now, is that in the form of a test to see how well you tolerate it now? DO I remember you tried it earlier and coupld not tolerate it, or was that rifampin? Sarah, Well I personally will take my UK vacation another year thank you very much. is that a rain check? marie On CAPi since Sept '05 for MSi, RA, Asthmai, sciatica. EDSSi at start 5.5. Currently on: Doxyi 200, Azith 3x week, Tinii cont. since April '07, all supplementsi. "Color out side the lines!"

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On CAPi since Sept '05 for MSi, RAi, Asthmai, sciatica. EDSSi at start 5.5.(early cane) Now 6 (cane full time) Currently on: Doxyi 200, Azith 3x week, Tinii cont. over summer '07, back to pulses of flagyli winter '08 all supplementsi. "Color out side the lines

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Marie I had been on 150mg of

Submitted by Jim K on Wed, 2007-07-25 21:36.

Marie

I had been on 150mg of INHi for over a year, and Dr. Powell said I could kick it up if I wanted to. I think it may be what is increasing my back pain. Interesting affect on the joints, so may be worth looking at for the RAi connection.   It was the rifampin which kicked my butt before, but I should hold off a bit before claiming how nicely I am tolerating something, those last two missing steps on the stairway can be a killer!

CAPi for Chlamydia pneumonia since 11/04. 25yrs CFSi & FMSi- Currently: 300mg INH, 200 Doxycycline, 500mg MWF Azithromycin, 1000mg Tinii daily (Taking a break from continuous protocol)

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CAPi for Cpni 11/04. Dx: 25yrs CFSi & FMSi. Currently: 150mg BID Roxithromycin, Doxycycline 100mg BID, Tinii 1000mg/day pulses; Vit D2000 units, T4 & T3

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Have a wonderful holiday

Submitted by ruthless1 on Wed, 2007-07-25 22:13.

Have a wonderful holiday Jim

I watch your progress for clues to what I will be doing in the future.  Am I correct in saying that the INHi is what you are doing on continuous instead of flagyli??

Happy summmer,

peace

Ruth

CFIDSi/ME, FMSi, IBSi, EBVi, Cpni, Babesia, insomnia (sleep- melatonini, GABA, tarazadone, temazepam, novocyclopine, allergy formula, 2 gm tryptophan), Natural HRT peri-M, NACi 2.5 gm, Doxyi 200 mg day pm, Azith 250 mg M/W/Fday

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CFIDSi/ME 32 yrs, FMSi, IBSi, EBVi, CMV, Cpni, chronic insomnia, Lymes, HME, Natural HRT peri-M, NACi 2.5 gm, 6-07 Doxy 200 mg day pm, Azith 375 mg M/W/Fday, Pulse#13 1240 mg X 3 days 8-7-08

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Ruth- Not quite. Dr. Powell

Submitted by Jim K on Thu, 2007-07-26 20:17.

Ruth- Not quite. Dr. Powell added a 150mg dose of INHi a year and a half ago (yikes) which really seemed to help improve my immunei system since it targets infected macrophages well. I just increased to the full 300mg dose. I was doing continuous Tinii for a number of months. That's what I'm taing the break from. Sorry for the confusion. INH and flagyli was found in the original VU studies to be the most effective combo for clearing macrophages and other immune cells of Cpni. It requires liver monitoring to use as it can be hepatotoxic.

CAPi for Chlamydia pneumonia since 11/04. 25yrs CFSi & FMSi- Currently: 300mg INH, 200 Doxycycline, 500mg MWF Azithromycin, 1000mg Tini daily (Taking a break from continuous protocol)

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CAPi for Cpni 11/04. Dx: 25yrs CFSi & FMSi. Currently: 150mg BID Roxithromycin, Doxycycline 100mg BID, Tinii 1000mg/day pulses; Vit D2000 units, T4 & T3

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