Is it essential to tackle the EBi form of the bacteria?
I ask because I've seen both opinions expressed on this site.
My problem is that I'm mercury poisoned and can't tolerate NACi. Mercury poisoned people tend to have high cysteine and so NAC is contra-indicated. I react badly to NAC and sulfur foods (I get headaches and my mind goes blank). I've had this since before I got CPni and its unlike any of the reactions I get from antibioticsi. So I'm almost certain its not CPn die-off.
Also I have really bad gut dysbiosis, so I'm loathe to take amoxicillini long term as it gives me candida.
So the question is: can I ignore the EB form or should I be desperately looking for an EB-busting alternative which I can tolerate? Any suggestions for alternatives to try?
Many thanks,
garcia.
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Pathogens worthy of attack prove their worth by fighting back

Hi Garcia,I am new here &
Hi Garcia,
I am new here & preparing to start (I already take a boat load of capsule form supplementsi but need to take the others recommended) on the Wheldon protocol. Before I found this site I had already done some internal cleansing including heavy metals, candida and liver. I hope this helps me cope on this journey as in the past I too have had reactions to sulfa. Maybe you should cleanse if you haven't done it already?
My best wishes to everyone going through this tiny bit of hell.
With Christ in Faith
Ruth
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CFIDSi/ME 32 yrs, FMSi,
IBSi, EBVi, CMV, Cpni, chronic insomnia, Lymes, HME, Natural HRT peri-M, NACi 2.5 gm, 6-07 Doxy 200 mg day pm, Azith 375 mg M/W/Fday, Pulse#12 2 gm oops then 1250 mg 4 days 6-14-08Eventually you'll have to
Eventually you'll have to deal with the EBi's, probably with amoxi, but by that time your dysbiosis may clear from getting rid of the gut Cpni and porphyrins. Don't let it stop you from starting the CAPi using doxyi/azith and eventually flagyli.
As far as we can tell, no one with sulfa or sulphur sensitivities has had any reaction to NACi, other than the reaction from killing EB's.
CAP for Chlamydia pneumonia since 11/04. 25yrs CFSi & FMSi- Currently: 150mg INHi, 200 Doxycycline, 500mg MWF Azithromycin, 1000mg Flagyl daily (Continuous protocol)
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CAPi for Cpni 11/04. Dx: 25yrs CFSi & FMSi. Currently: 150mg BID Roxithromycin, Doxycycline 100mg BID, Tinii 1000mg/day pulses; Vit D2000 units, T4 & T3
Thanks very much for the
Thanks very much for the reply Jim.
Unfortunately I don't hold-out much hope of CAPi helping my dysbiosis - I've had that years before I got CPni. I believe the mercury is underlying cause of that.
I haven't let my concerns stop me from starting the CAP. I'm currently on doxyi/azith, although I only take doxy every other day (not daily).
The problem is my reactions to NACi entirely match my reactions to sulphur foods in general, and both precede my CPn infection. Both are entirely in line with mercury chemistry (e.g. see Cutler), and the experience of mercury toxic people (many/most are sulphur sensitive).
Also I wonder what reaction CPn people get to NAC. My reaction to amoxy was that initially it really seemed to help my infection, but after a while it stopped doing anything noticable. Amoxy doesn't give me any side effects (other than yeast), where as NAC gives me very strong headaches.
From what you are saying it seems like I should look for an alternative.
thanks,
garcia.
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CFSi since 2001. Infected CPn Jan 2006. Dx'd March 2007. Started CAP March 2007. Currently taking: Azith 250mg MWF, 100mg doxy every other day.
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Pathogens worthy of attack prove their worth by fighting back
No, actually I'm saying
No, actually I'm saying that amoxi is the alternative to using NACi, in terms of it's effect on destroying EBi's. It will not effect the other stages of Cpni, but will effect EB's. If you can't tolerate the NAC for reasons you mentioned, then amoxi is it.
I too had dysbiosis I attributed to other causes, candida especially, for many years. As it turned out, I had no idea of how long I'd had Cpn, and the extent to which Cpn had infected intestinal epithelium. I also have candida as well, just as you may have mercury problems along with Cpn, but was surprised at how much of my dysbiosis cleared (while still watching out for candida) from the CAPi. Who knows, you might surprise yourself.
CAP for Chlamydia pneumonia since 11/04. 25yrs CFSi & FMSi- Currently: 150mg INHi, 200 Doxycycline, 500mg MWF Azithromycin, 1000mg Flagyli daily (Continuous protocol)
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CAPi for Cpni 11/04. Dx: 25yrs CFSi & FMSi. Currently: 150mg BID Roxithromycin, Doxycycline 100mg BID, Tinii 1000mg/day pulses; Vit D2000 units, T4 & T3
Thanks Jim.It sounds very
Thanks Jim.
It sounds very plausible that CPni could cause candida in some people given its immunei-disrupting role and heavy gut involvement. Unfortunately in my case chronology prevents it from being the original cause. Having said that I wouldn't be surprised if I got some improvement in gut function eventually, purely from tackling the CPn.
I think amoxi is certainly more tolerable than NACi in my case. But I don't think I could take either long term.
BTW, to those who mentioned sulfa allergies - Sulfa allergies and sensitivity to too much dietary sulphur (e.g. due to mercury toxicity) are two completely different things -e.g. see here:
http://en.wikipedia.org/wiki/Sulfa_drug
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CFSi since 2001. Infected CPn Jan 2006. Dx'd March 2007. Started CAPi March 2007. Currently taking: Azith 250mg MWF, 100mg doxyi every other day.
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Pathogens worthy of attack prove their worth by fighting back
Garcia, I managed to get
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Thanks Sarah,thats really
Thanks Sarah,
thats really great news. Its a relief to know that amoxi/naci isn't essential in all circumstances. I was reading David's schedule and noticed that he didn't take amoxicillini - I had written a note to myself to investigate further, but you've kindly saved me the effort.
CAPi seems to work spectacularly well for MS. Its pretty amazing.
many thanks,
garcia
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CFSi since 2001. Infected CPni Jan 2006. Dx'd March 2007. Started CAP March 2007. Currently taking: Azith 250mg MWF, 100mg doxyi every other day.
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Pathogens worthy of attack prove their worth by fighting back
Hi, Garcia None of us
Rica PPMS EDSSi 6.7 at beginning - now 2. Began CAPi Sept, 2004 with Rifampin 150 mg 2xd, Doxyi 100 mg 2xd, added regular pulses Jan 2005. Jan 2006 switched to Doxy, Azith, cont. flagyli total 42 pulses NC USA
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Rica PPMS EDSSi 6.7 at beginning - now 2. Began CAPi Sept, 2004 with Rifampin 150 mg 2xd, Doxyi 100 mg 2xd, added regular pulses Jan 2005. Jan 2006 switched to Doxy, Azith, cont. flagyli total 51 pulses NC USA