Symptoms - respitory, alopecia, rocesea, joint pain, other

I have been struggling for 3 years to figure out what is going on in my body. I've seen Dr, after Dr. including Chinese herbal doctors with no improvement.  I've always known how fortunate I've been to be healthy, but now I've been sick for 3 years.

 It began with a bad respitory infection that has never gone away. I attributed it to the air in Los Angeles but then, I've always lived in Los Angeles. Then I developed Alopecia">i Areata. It slowed for about a year but now it's progessing, freaking me out. I have joint pain, rosaceai anda general feeling of being unwell. I'm worried that the disease will progress. I am already having difficulty performing anywhere near where I once did at work. I was once an athelete, now I have trouble breathing all the time.

 I ran across this forum today and I'm wondering if all these mysterious symtoms might be tied to Cpni, which of course I've never heard of before. Every treatment has failed.

 Has anyone else had a similar progression of symptoms? Are chronic respitory, or asthmai-like symptoms common?

 Just in the last hour that I have read this forum I have learned so much and started to cry thinking that maybe there is a way out. I have been left in tears by some doctors, they can be so dismissive when they don't know what to do. Why is it that so many doctors won't take the time to journey on a path of wellness with you that might take them into unknown territories, it would seem that this is an important part of being a doctor, continuing to learn. The patient being an ally in a Dr's pursuit of excellence in medicine. I guess there are things I don't understand, maybe challenges I don't get.

I have looked at the information on Dr. Powell offered here and will call for a consultation. If anyone knows of someone willing to test and treat Cpn with these protocolsi in the Southern California area I would appreciate the heads up.

 Thank you, this site has been the most encouraging read I have had in over a year. I don't want to just give up!

 Kate

 

Hi A13199, & welcome.

As well as Cpni it would also be worth testing for Cryptostrongilus Pulmoni, a microfilarial worm. My UK private specialist GP often finds it present in his patients. I don't know how prevalent it is in Ca.

There are some wonderful, knowledgable people here. 

I wish you the best in finding a specialist. Most of us if not all have gone through the frustrating trail of ignorance, denial, &/or dismissive attitude of most medics & health practitioners. 

For what it's worth, I was in Reno for the day on 2 separate occasions. [On holiday, not getting married.] It was mid-Winter, clear sky, bright sun, clean air & I felt absolutely fantastic while I was there. The best I've felt anywhere since I became ill Dec.1995, after acute bronchitis. 

As you've found this site reasonably early in your illness you stand a good chance of recovery.

We're really glad to have you join us. Dr Powell is wonderful, and after your first consultation, you can have phone appointments. A good local doctor would be more than useful, too.

Your experiences are common to this group. Most doctors I have dealt with don't know and don't want to know. I have found some doctors that are splendid.

I had continuous respiratory infectionsi as a child. I think it was Cpni, and caused many of my problems.

I lost my eyelashes a decade ago. I recently learned microscopic mites can cause Alopecia">i and rosaceai, and these mites depend on bacteria. I started borax treatment for this, and my eyelashes have grown back to a normal length in three months. Coinfections are common with Cpn.

Dr P found out I had lead poisoning, and this is common.

minocycline, azithromycine, metronidazolei 2007-2009, chelation for lead poisoning, muscle pain, insomnia, interstitial cystitisi (almost well), sinus, dry eyes, stiff neck, veins, hypothyroid, TMJ, hip joints (no longer hurt)

AI3199, Welcome,  I too, started out with a very bad respiratory infection and then it became a a chronic cough the doctors diagnosed as asthmai. It is amazing how different infectionsi are the true root cause of so many illnesses.

Most of us have a similar stories and we are very fortunate to have this site to guide us in treatment. I would start by taking the suppliments listed along with vitamin D3. This is a good place to start and helps your  body with nutritional support.

Dr. Powell is a knowledgable physican on treating and testing for different pathogens. His office is very helpful and can help you with any questions you may have. 

 I wish you the best.

started Wheldon capi 4/21/08 for Cpni, CMV, EBVi, CFSi. Cap hold 4/09vascultis. Restart 9/09 with Dr.Powell, restore gut, 4000 D3, supplementsi,  Pos. Bartonella and Babesia, Rifampin 600 mgs and Biaxon 1 gram. 

Bless your heart, Kate. You have landed in a good place. I also live around here (South Orange County) and 5 yrs ago I made the trip up to Sacramento to see Dr. Powell. My luck was on a roll. He saved me from ending up in a care home. You can read my story under Patient Stories at the top of the page. After you see him he does tests and phone consults. My sister is going to see him for CFSi and I took my mom to see him too. I wish we could clone him.

So if you can afford a ticket on Southwest, his office is a short drive into the city and easy to find even with brain fog. (I did get lost on the freeway a few times) He takes most insurance but not MediCal.

Welcome,

Raven

Feeling 98% well-going for 100. Very low test for Cpni. CAPi since 8-05 for Cpn/Mycoplasma P.,Lyme, Bartonella, Mold exposure,NACi,BHRT, MethyB12 FIRi Sauna. 1-18-11 begin new treatment plan with naturopath

Welcome Kate,

i think many here had similar stories. Mine started also with something flu like that never went away and progressed into many things, such as joint pains, cardiac problems, neurological issues and a light rosaceai. I went to several doctors, and non of them were offering help. Then i' ve decided to start with self medication and a have choosen the capi(CPNi-Protocol) because the antibioticsi are also usefull for other bugs. No i have a doctor who helps me. Since it is often not possible to proof intracellulari infectionsi( even a pharmacist told me so, but doctors seem not to now) i thought there is not much choice aside from giving it a try. No after a year into the treatment have a lot of advancements. Rosacea">i is gone, joint pains are only very light and i can open jaws again. I can work and don`t have to sleep all the time. I still don`t know if it`s caused by CPN, Strep,Mycoplasma or by borreliosis but i know for sure it is a infection.The progress of the therapy is slow and set backs will happen suddenly after several months. I still have some way to go but without the therapy i think i now would have been more or less disabled and probably in a weelchair.  

Good luck with everything i`am sure you are on the right track.

(sorry for poor english) 

Minoi 200 mg  / Azithro 250mg M W F / Amoxi 2000 mg / Metroi 5 days pulse   CFSi/ME Fibromyalgiai or whatever you like to call it.

Yes Kate,  Many of us early on, can recall persistent respiratory infectionsi or contact with multiple people with chronic respiratory infections and breathing difficulties, sometimes this has been in our more distant past, past but once the C.Pneumoniae bacteria (and yes others that are sensitive to the same CAPi combination of antibioticsi) are established within our bodies they cycle and recyle and gain more and more of a hold over our cellular energy.  It can progress over decades without much compromise of our energy or faculties then there is a critical point where the mass of them in our bodies outweighs our functional cells and the decline in functioning begins to skyrocket or plunge from wither the bacteria's or our persective.

Your are fortunate to be close enough and in good enough shape to consider getting to Dr P.   And for those that are not this can be done by sticking closely to the Wheldon Protocol, which combined with the Yasko Protocol began to add after my first year as a co-treatment and since applying it specifically to my testing done in Feb 2010 I am recovered.   You might like to take a look at my blogs, see the link in my signature below at the bottom of this post.

Above all yes, there is hope, I too, was very inspired by this website and the application of the Wheldon CAP has been 50% of the answer to my situation this website is a wealth of information on the combined antibiotic protocolsi.  The Wheldon CAP I consider the safest I followed it closely.  

I was going down fast when I started CAP. Today I have a life which is so much more than when I started CAP. 

I am in the process of fine tuning my Yasko supplementsi and do keep notice of my progress so that should there be any setbacks I can address them with the intermittent phase of the Wheldon CAP however for myself the set backs have not occured at this point in time.     

I understand that Dr P eases folks into CAP, but either way, easing in or jumping into Wheldon CAP, there is certainly hope with a bit of endurance and determination required on the individuals part, as the body begins to heal.

Please keep us informed and posted by starting your blog space to record your journey so that it may be helpful to those that come after us.

All my best regards to you  and hope for your progress.

Louise

  • CAPi(TiniOnly): 06/07-02/09 for CFSi<
  • MethylationProtocolSupplements: Started08/08
  • Intermtnt CAP: 02/09-02/10
  • Full MethylProtocol & LDNi 02/09
  • Off CAP: 02/10, cont LDN & MethlyProtocol support
  • <

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