Cpnhelp.org

 My Doxyⁱ Diary: 1.17-2.20.09 (I had been on minocycline since Sept. It had caused extremely painful wrists, fingers, shoulders and knees. I needed to see if Doxy would be more tolerable. It appears so far that it is the case for me. I also take Azith M-W-F. Last entry at top going downward to first entry.)

2.7.09 - 3rd week on Doxy: This week was not as easy as the last one. I quit taking my 200 mg. tablet of ibuprofen at breakfast and dinner. My DH asked me to try it to see if my liver area soreness would go away. What followed was symptom increase. Ended up with increased fatigue, brain fog, sneezing, sinus pressure, eye pain, headache, numbish sensation in left side areas: including scalp & underlying tissues (scalp sore location), neck, shoulder, hand palm, and left foot continues to have a numb spot (ball of foot). Also experienced sudden jabs of nerve pain in left foot toes, left elbow and left scalp sore location. A hormonal inbalance also occurred as I had very tender engorged breasts at the beginning of the week for a few days followed by at the end of the week two small episodes of mild spotting which is curious as I am in menopause. Interesting to also note is that my skin has been continuosly itchy since I began Doxy. The various itchy areas I previously scratched responded with little bumps surfacing, & which then scabbed but have now healed. Now some of the old skin growths on my trunk are itching & coming off when I scratch creating more scabs. The odd scale like growth (looks like a burn) on my right ring finger has tranformed from a small shiny slight concave shape to a dark tan larger area. Hoping it is a sign it is healing so it will go away as it looks unattractive to me. At dinner last night I resumed taking Ibuprofen and by the later evening hours I was feeling much better. As I said, my liver area has been sore but when I woke up this morning it feels fine for the first time in months. Hope it stays that way. Daily I fight a queasy tummy and sick feeling before emptying bowels but today is notably different. But I realize this may be temporary as things continually change. Also have had increased bladder irritationⁱ with urgency and incontinence. Don't think I have another bladder infection though. Isn't life interesting? I ordered chlorestryamine. Will see how it goes for me and decide whether to try a pulse when it gets here.

1.31.09 - 2nd week on Doxy: Although my symptoms are the same as last week they have been at a much more tolerable level. The itchy skin areas and sore liver are more frequent. It was wonderful that I actually slept really good two nights this week with only two wake ups each night instead of the usual several times that break up my sleep. I seldom go into the deeper REM type sleep but I actually recall I had some dreams those two nights. The next day my symptoms were at a lull and my energy was much better. The last couple days & nights have not been quite as good but nevertheless they are better than my average days had been. I actually had so much energy yesterday that after vacuuming the carpet I put the dusting attachment on my vacuum cleaner and tackled some long awaited cleaning jobs. It required a lot of upper body exertion which normally I can't tolerate without becoming very fatigued quickly. Not to say that afterward I wasn't spent but the joy of being able to actually do this cleaning was well worth it. Now the upholstery, drapes and tapestry give me pleasure when looking upon them instead of guilt. I cleaned out the greenhouse today but after an hour fatigue set in. Probably a direct result of yesterday. Plus I think the dust & mold I cleaned up today got to me cause now my lips and brain feel a tiny bit puffy. Anyway, I believe I can seriously consider trying a pulse of Tiniⁱ in the near future. I think I will order my chlorestyramine now in preparation for it.

1.24.09 -1st week on Doxy: I am happy to report that Doxy is much easier on me than Mino was overall so far. Pain levels have decreased by 80-90%. The very difficult mornings with stiff and very painful hands, wrists & knees, etc. are gone. Woo Hoo! A real cause for celebration. Oh, and my scalp sores and hair loss has also improved very noticeably.  Itchy rashes, skin welts, liver area soreness, & heart area pressure have been the trade off so far. Plus I think I am getting a yeast infection. The ball of my left foot is still numb but is about half as bad now. But more prone to sudden short lived painful flare ups. Also I am having increased left leg pain in vessels above knee on the inside of my leg which has been a chronic problem for me the last few years when some varicose veins developed there over night during a bad flare up from Cpnⁱ induced inflammationⁱ. My D-dimer was positive and high at the time so I must have had a lot of blood clot action going on. This is true once again so I am on Bolouke 3 times a day to try to keep this under control hopefully. An ongoing problem for me due to my disease state causing hypercoagulation. I probably should keep track of my blood pressure. It flexed between 150/90 to more normal 130/75 in the past. I have better energy now it seems. Maybe I can start getting things done around here again. At any rate I am glad now I switched to Doxy.

1.17.09 - Switched from Mino to Doxy: Gave me a niggling of a headache for a time as well as a bit of a burning tummy. But happy headache is not manifesting so far. Scalp also affected at sites of sores with increased pressure sensation. I drank some coffee and the burning tummy alleviated. I had a lot of chest pressure for the first several hours which was beginning to concern me. But has tapered off somewhat now 3 ½ hours later. Later that evening my numbish left ball of my foot began to have some tingling sensations for the first time then the next day (1.18.09) had some itching sensations. I claim it is from the Doxy and hope it is causing some healing there. During the night I woke up multiple times and thought how odd I feel. Were the pains I had on the Mino only mental pains for when I move the troubled area the pain is not manifested like before. I am wondering if my brain/nervous system is at the foundation of my pain rather than actual inflamed tissues around these areas. That would make more sense to me. Still am having cramps in the back of my left hand though. This morning I had a rough patch with nausea after my AM dose of Doxy. I think because my bowels were sluggish I was reabsorbing some toxins. That has happened to me numerous times with the same result however the Doxy in my stomach only made me feel worse in that regard. It was very pleasant the rest of the day not having so much pain, lung congestion or ill feelings like I did from the Minocycline. Overall I think I am enjoying Doxy much more so far! Hope it is just as effective without so many symptoms bothering me. Very interesting to me this change.

___________________________________________________________

2002:CFSⁱⁱ. 2008:CPNⁱ - CAPⁱⁱ/5 pulses. 2010: BB - Restart CAP: 3 pulse. 400Doxy/250Zith-MWF. Lauricidin/Yaeyama/supplementsⁱⁱ recommended/firⁱ sauna/2,000 IU vit D. Stop charcoal/allergy. 2010: HighBP/Benicar, IBSⁱⁱ.