A Swede on Cpnhelp.org

<p>Diagnosed CPNi 27 april 2010. January 2009 pneumonia, after two weeks pain in breast somewhere, placed in hospital for eventually heart failure showing nothing. I knew pain had something to do with the pneumoniea. Tried to find information on the web. First time I looked into your page. From that time and reading documents from one of the best doctors in Europe diagnosing and treating Clamydophila pneumoniea when it still "young" but anyway allready making problem in the lunges. All family managed to be examined in his fantastic diagnostic with at least 20 different controls with just examin our bodies. Getter better with Klacid 7 weeks, Acetylcystein, Trombyl and Spiriva, thoose for four months. He said that maybe we have it back in the future and that was what was happening. In January 2011 we treated us the same way. In autumn 2011 I had some milder cold from those awful bacteries. I directly put in Acetylcystein, Axcithromax and Doxyferm for two weeks. I am not feeling best and know I really want to get totally ride of CPN so getting medicine from Ukraine (have friends there) I from 9 January 2012 started Wheldons protocol. 1200mg acylcystein, 200mg Doxyferm, 250mg Axcithromax and 1500mg Metronidazolei in pulses. Have been using Trace Elements Inc hairmineralanalysis adding suggested supplement for not all the time but for three years. 2000 I had bite from this little creapture that you can get Borrelia from. No sign but for first time for weaks after I had inflamtion and pain in my neck. ut running a company and aranging our wedding and so on it maybe had to do with stress. After that I been having problem with pain in head back, shoulders going around, sometimes noll pain and sometimes in the morning pain so you have to through up. It has been better but it suddenly shows up a couple of times in a month then I takin tabletts Naproxen to don not fell the pain. More and more it seems like it can be connected with Borrelia and Lyme. My plan is to treat for that to now. It seems that treatment had alot of common but not all. I am getting 48 in end of April and feel myself except this normal healthy. Notice that I minimize karbohydrates and eating more fat. Have lost around 30 kg last three years by eating tasty and healthy food without E-numbers. Lot of people in Sweden are doing like me and get our health back and geting better from type 2-diabetes. I can speak about LCHF for ours but I am not! I only want to et read of the bad bacteries. There are no help in Sweden to get in this case then they are becoming peristent!!!&nbsp;</p><p>The question&nbsp;is:&nbsp;How should I get rid of the two in the same time Lyme and CPN? Which protocol adjustment should I make?&nbsp;&nbsp;</p>

Welcome Anders

As always, I am amazed at the English of non-natives!

You are fortunate to be catching this early, thereby probably averting the hell that you may have had to go through if you had not.  How is your Vit D level?  Many of us take 5000 to 10000 iu a day of D3.  I take 9000.  That in itself is a great part of the battle, as are NACi, magnesium, selenium, and so many of the others on the supplement list.  It is helpful if you "do a signature" at the bottom of your blog.  We have some medical people here who know what they are doing and some very knowledgeable patients who have been far down the road that you will avoid.

Rica

3/9 Symptoms returning. Began 5 abxi protocol 5/9 Rifampin 600, Amox 1000, Doxyi 200, MWF Azith 250, flagyli 1000 daily. Began Sept 04 PPMSi EDSSi 6.7 Now good days EDSS 1 Mind, like parachute, work only when open. Charlie Chan  In for the duration.&am

I sent you a PM, Maria

Cpni since sep 2006. Autoimmune thyroid,hypofunction.levaxin,b12+folic acid">i.All classic cpn,porphyriai and toxinsymtoms.Not able to work.Selftreating cpninfection with AllicinMax(garlic), NACi, high vitamin D3. CAPi for over 3 years. Back to work and life

Thank you Rica! Very kind of you to answer so quickley!

I prefeer speaking English with Swedish accent but I will do my best now practicing writing in English!   I hope it will better when time passing. Shall I always write  "my medication" in the buttom or can I have it placed some where else when writing in the forum?

I understand focus on this homepage is on treating bad health depending on cpni and it should be! Anyway my interest in this very respectful combatant I hope can give me more knowledge about it here and of course kill them in best way. I also hope that some of my thinkings and knowledge about the situation up in the Nordic be interesting for you.

I do not like medicine, so I go my own way, but in this case I need to "eat" it! I also take every day one tablet Lactobacillus plantarum 299v including 10 miljard bakteeries and six tablets koncentrated omega 3 and vitamine D, which totally will included 3300 mg fishoil (triglycerids) and totally 15 microgram vitamine D3 kolekalciferol. Shall I add more D3?

I will add more nutrients by the time!

I nearly do not use salt but the level of Na, Ca and K are nearly ok the last hair mineral analysis showed. I have little, little pressure over the breast/throught since a weak. Can it be a good idea to take some suppliment of Ion, I, 53 helping the tyhroid?

Anders Skogberg

Starting Wheldon protocol 2012-01-09. Acetylcystein 1200mg, Doxyferm 200 mg, Azithromax 250 mg (every second day), Metrodinazole 1500 mg (pulsing) and Acetylsalicylsyra 75 mg and one tablet Spiriva inhalator.

Anders

If you look on the left, you will find your "user name", and a column of items that apply to you.  One of these is "my account".  At the bottom of that you will find "signature", and you can post something similar to what you posted today, and that will appear at the bottom of your replies.

You will also find that those of us who are not competent, don't give medical advice, but instead only convey our own experiences.  Keep reading - the Getting Started and the Patient Stories and some blogs are very useful: it goes without saying that the comments always give a good feel about the then-current topics.. 

Having said that, our Vit D is listed in units, I believe, not mcg.  My level has been checked by blood several times, and stays in the high 80s.

Rica

3/9 Symptoms returning. Began 5 abxi protocol 5/9 Rifampin 600, Amox 1000, Doxyi 200, MWF Azith 250, flagyli 1000 daily. Began Sept 04 PPMSi EDSSi 6.7 Now good days EDSS 1 Mind, like parachute, work only when open. Charlie Chan  In for the duration.&am

Anders, Read the 'Getting Started' section (see buttons at the top of the page).  It will give you a basic outline of the protocolsi

You can look up the generic/brand names of the medicines on a search engine.  Most of the medicine we take is generic now, so it is inexpensive.

Basically, the protocol is 200mg of doxycycline daily, 250mg of azithromycin each Monday, Wednesday and Friday, both taken continuously.  These will keep the bug from growing.

Then, five days out of every month, you add in metronidazolei or tinidazole, which kill off the bug.

The best - and easiest -  thing you can do for yourself, though, is getting your Vitamin Di level up.

 

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

Hi Rica / Mac and welcome Anders...

Anders, 1mcg vit d3  = 40IU so I believe you are getting 600IU in your supplement.   This is a pretty low level amount...

 

http://wiki.answers.com/Q/How_do_you_convert_vitamin_d_iu_to_mg<

Treatment for Rosaceai<

  • CAPi:  01/06-07/07
  • High-Dose Vit D3, NACi:  07/07-11/08
  • Intermtnt CAP, HDose Vit D3:  11/08-01/09
  • HDose Vit D3, Mg, Zn: 01/09-

Comment viewing options

Select your preferred way to display the comments and click "Save settings" to activate your changes.