Cpnhelp.org

Thank you ,Red,

for this interesting study.

sphinx

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sphinx / On Wheldon CAPⁱ ,14 th May 2008, currently/ Doxy  200 ,ACC 2400  plus supplementsⁱ ,RRMSⁱ since 92, SPMSⁱ 06,  EDSS 7  ,Azi 3 times a week, 21 Tiniⁱ pulses

 Good links and studies, but one can not go from these to thinking that taking D3 or D2 will work in increasing 1,25-D, the most active metabolite that has the highest affinity for the receptor. 1,25-D activates the VDR, however at normal physiologic levels 25-D does not do so or only very weakly. Taking high doses of D3 or D2 can actually lower levels of the more effective 1,25-D and act as an immuno-suppressant in my clinical experience. I have frequently seen people's 1,25-D levels drop when they take D3, especailly at higher doses. The logic of taking vitamin D3 to try and increase VDR activation is mistaken in most people, and in fact in chronic intracellularⁱ infectionsⁱ 25-D is often downregulated becasue of an excess in levels of 1,25-D caused by the disease process. We feel that activation of the VDR is essential of recovery of innate immuneⁱ system response, and that taking D3 or D2 is apt to be immuno-suppressive in chronic chlamydial inflections.

Randal

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6-07WheldonCAP CFS20+yr

(11-29-07 started Cholestyramine HS PRNⁱ x 7d for porphyrin+endotoxinsⁱ removal)

Check out Louise's Blog at; http://www.cpnhelp.org/blog/louise for the details of my treatment adventure!

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6-07WheldonCAP CFS20+yr

(11-29-07 started Cholestyramine HS PRNⁱ x 7d for porphyrin+endotoxinsⁱ removal)

Check out Louise's Blog at; http://www.cpnhelp.org/blog/louise for the details of my treatment adventure!

LOL, "we" is so innocuously inclusive... Unlike the far more sinister "they" that are always out to get us ;)

- Paul

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Treatment for Rosaceaⁱ

• CAPⁱ:  01/06-07/07
• High-Dose Vit D3, NACⁱ:  07/07-11/08
• Intermtnt CAP, HDose Vit D3:  11/08-01/09
• HDose Vit D3, Mg, Zn: 01/09-

According to Dr. Yasko, rosemary helps increase vitamin Dⁱ receptors (coumaric acid). Good to take a few caps along with your D each day---especially those of us who have a genetic defect in a VDR.

I am happy to report my last D3 test was at 88 ng/ml. My doctor was pleased and my Cpnⁱ test levels have dropped significantly along with HHV6.

Thanks for posting this, Red.

Raven

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Feeling 95% well-going for 100. Still testing + for Cpnⁱ. CAPⁱ since 8-05 for Cpn/Mycoplasma P.for MSⁱ and/or CFSⁱ. Also EBVⁱ and HHV6. Amoxy,Doxyⁱ, Azith, Tiniⁱ pulses. NACⁱ, Iodoral, T3, BHRT, MethyB12 injections, Nitro patch,

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On Wheldon protocol since 02/2006, added rifa 10/09 for CFSⁱ and many problems 30 years (cpnⁱ and mycoplasma)

Great feedback Lala that high dose Vitamin Dⁱ is augmenting your progress with CAPⁱ.  Louise

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6-07WheldonCAP CFS20+yr

(11-29-07 started Cholestyramine HS PRNⁱ x 7d for porphyrin+endotoxinsⁱ removal)

Check out Louise's Blog at; http://www.cpnhelp.org/blog/louise for the details of my treatment adventure!

Thanks red for this research. I have in the last 4 weeks significantly titrated up my doses of vit D under my neuroⁱ's supervisioon and instruction- now on 7,000iu a day. I go for my next blood test this week. I have to say that I have felt not yet felt the benefits of vit d being intoroduced ( in fact in the early weeks it was quite the opposite- perhaps the antibicrobial actions at work) but I look forward to the longer term benefits- having been a fall out from the member of the other unmentionable protocol that after 3 years, no longer worked for me! ( couldn't resist puting that in as 3 years was a long time to follow a protocol that eventualy did not deliver and may even have done damage?, who knows. But my neurologist is no longer prepared to see me with my type of symptoms- if I do not get my vitamin Dⁱ levels up.)

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FMSⁱ/ME dxⁱ 2001. Started Wheldon Protocol 16 Jan. '10. Mino 100mg q 24 h. Roxyⁱ 150mg q 12h. Cholestyramine, LDNⁱ 0.75mg q 24 h. prophylactic migraine-topamax 75mg q 24h. migraines, headache, fatigue, sleep problems, body aches

   Red, thank you for this good job.

   Randal, ıf we assume that what you say is true, we should expect immuneⁱ suppressed people with lots of infectionsⁱ on their body in equatorial places or sunny places and we should expect also a flare up of infections in summers, do you have any data indicating this?

 yılmaz

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KEREM'S TAKECARER;

Suspıcıon of MSⁱ (transient nystagmus during conjugated gaze on february 2008, blepharospazms and some optic complaints on february 2009-no plaque on MRI), Vit D3 started 400 IU and elevated to 2000 ıu ın 40 days.

  My levels have changed as follows and I live in the U.S. sunbelt with high UV rates which I get at least 30 minutes per day.

  Starting with CAPⁱ and a D3 supplement one year ago the levels were 20 ng/mL of D3 and my NK percent was at 4%.

  At the one year mark my vitamin D3 level is at 56 ng/mL and my NK percent is at 13%, about midrange according to Quest Lab for the NK cells percent.

  I started with 6000 IU/day of D3 and increased at every three month blood test interval.  I am now at 12,000 IU/day and will try to maintain the D3 level in the 70-80 ng/mL range.

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Cpnⁱ, Mycoplasma, Chronic EBVⁱ, M.S.(MRI, Spinal Tap-greater than 5 oligoclonal bands and VEP), PANDAS(OCD). Wheldon CAPⁱ (started 12/08), Azithromycin/Clarithromycin(12/09), Lithium, Lamictal, NACⁱ(2.4g/day), D3(12,000IU/day)