I had a pretty good weekend going on a ride on Saturday. (310 miles!) 
I think I've had a little increase in secondary porphyriai again so I'm taking Emergen-C during the daytime and charcoal at night. It's quite mild and seems to come and go so nothing very noteworthy really.
I've decided to add one tab of Zithi today for the week and see how it goes so will do that later on with my evening dose of minoi.
I'm still waiting for my lab tests from the ID Dr and am having a little trouble with the tinii rx from my mail order pharmacy. It seems they only have "Tindamax" (name brand) and want to verify with the Dr before filling it! (I think it's a cost thing for them more than anything else)
It's good I'm asking for it now rather than waiting until I'll actually want to begin pulsing it!
3/08 NACi 2400 mg, 4/08 Iodoral 25 mg, 5/08 mino 100mg, 6/08 Zith 250 mg/1x week, myco+ CFIDSiii/FMSii, Hashimoto's, Psoriasis, PA, IBSii, Secondary Addison's
When I change what I believe I change what I do
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NACi 2.4g, Zithi 250mg/MWF, minoi 200mg, Tinii 1g/day pulses, Iodoral 25mg, Supps, CFIDSi/FMSi, Hashimoto's, Psoriasis, PA, IBSi, Secondary Addisons
Don't believe everything you think!
Good thinking. Michèle
Good thinking.
Michèle (UK) GFAi: Wheldon CAPi 1st May 2006. Daily Doxyi, Azi MWF, metroi pulse. Zoo keeper for Ella, RRMSi, At worse EDSSi 9, 3 months later 7 now 5.5 Wheldon CAP 16th March 2006
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Michèle (UK) GFAi: Wheldon CAPi 1st May 2006. Daily Doxyi, Azi MWF, metroi pulse. Zoo keeper for Ella, RRMSi, At worse EDSSi 9, 3 months later 7 now 5.5 Wheldon CAP 16th March 2006
Good luck. You've really
Good luck. You've really done a good prep for this, and I'm so glad to hear of your bike riding. Seems like life is emerging!
CAPi for Cpni 11/04. Dx: 25yrs CFSi & FMSi. Currently: 300mg BID Roxithromycin, Bactrim DS 2x/day, Tinii 1000mg/day pulses; Vit D2000 units, T4 & T3
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CAPi for Cpni 11/04. Dx: 25yrs CFSi & FMSi. Currently: 150mg BID Roxithromycin, Doxycycline 100mg BID, Tinii 1000mg/day pulses; Vit D2000 units, T4 & T3
Adding to my Z blog and some
Adding to my Z blog and some questions at the end...
So far, so good. I had a little bit of stomach grumbling with loose stool last night about an hr after dosing the abxi for about a minute, but nothing further.
I must say I was feeling quite anxious about taking a WHOLE tab of Zithi which I'd never done while on the MPi. When you use the dreaded Z on the MP you start off with 1/8 tab (some folks start w/ 1/16 even!) and work your way up to 1/2 tab every 10 days along with taking the other abxi every other day.
I still wonder why I and others had "reacted" to the MP abx combos at such low doses if it wasn't really herx or maybe some of it was? The theory is the low light and D levels along with high doses of Benicar somehow potentiate the effects of the abx to the point of working well at these extremely low doses but I can't find anyone or anything else other than the MP info that would back that up.
I do think part of the reaction may have been weakening the immunei system with D deprivation because I feel alot stronger now and more capable of herxing if that makes any sense.
Psoriasis has broken out quite intensely from my knees down to my ankles mainly, which is somewhat odd of a break out, and I still have much on my scalp. I have some on my elbows and forearms and a little on my trunk and bum, but much more on the lower extremities.
The break out got worse before starting the CAP when my Ds were so low and then increased in flare when I began raising D and taking iodine and started feeling sxs of die off.
So, the plan would be to take more Z next week if no other symptoms.
1. Would it be wise to go to 2 tabs next week then 3 tabs on third week or just go to the full M,W,F dosing if nothing else surfaces from this dosing?
2. Then, my next question would be, when would I start taking the second dose of minoi a day? How long would one wait before increasing to the full CAP dose?
3. I've read here in several posts that Z is immunomodulatory? This is new to me. Is this info correct? With that in mind, taking the Z on a regular basis would help to keep the dose more level and would help with the modulation which would make it easier rather than harder to tolerate it so it might be better to take M,W, F rather than one or two a week.
TIA
3/08 NACi 2400 mg, 4/08 Iodoral 25 mg, 5/08 mino 100mg, 6/08 Zith 250mg 1/wk, myco+ CFIDSi/FMSi, Hashimoto's, Psoriasis, PA, IBSi, Secondary Addison's
When I change what I believe I change what I do___________________________________________________________
NACi 2.4g, Zithi 250mg/MWF, minoi 200mg, Tinii 1g/day pulses, Iodoral 25mg, Supps, CFIDSi/FMSi, Hashimoto's, Psoriasis, PA, IBSi, Secondary Addisons
Don't believe everything you think!Just my experience: Azith is
Just my experience: Azith is def.a strong immunomodulator. As far as i know, doxyi and minoi. as well, but i read many studies about this and if i am not mistaken macrolides are much stronger immunmodulators than tetracycl's such as Doxy and Mino...etc. For me it is a way much more easier to take Azith than Doxy. but again it is only my experience and impression. Not a doctor's....
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doxy200, azith250, NACi 2400, Metroi 1250(once a month), supplementsi, vitaminsi.
Reenie, I started zithi M,
The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi
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The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi
Reenie- wait a week until
Reenie- wait a week until you decide. Azith has a long half life and it may be a couple of days before you know what it's going to do. Azith does have immunomodulatory effects but: that seems true (anecdotally) only as long as it's in the blood stream. It's half life is based not on time in the blood stream, as it gets rapidly taken up by cells, but concentration in the cells/tissues. I've gotten more immunomodulatory effect on it by taking 250mg daily, and one or two others have done half a tab daily.
"Would it be wise to go to 2 tabs next week then 3 tabs on third week or just go to the full M,W,F dosing if nothing else surfaces from this dosing?"
Sounds like a good plan to me: the first option depending on how this goes, the second if it's piece of cake! You can even gear for the second option, then drop the third if it's too much. No worries mate!
CAPi for Cpni 11/04. Dx: 25yrs CFSi & FMSi. Currently: 300mg BID Roxithromycin, Bactrim DS 2x/day, Tinii 1000mg/day pulses; Vit D2000 units, T4 & T3
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CAPi for Cpni 11/04. Dx: 25yrs CFSi & FMSi. Currently: 150mg BID Roxithromycin, Doxycycline 100mg BID, Tinii 1000mg/day pulses; Vit D2000 units, T4 & T3
Thanks guys. You all (the
Thanks guys. You all (the people on this site) rock!
I was just thinking today before looking at the replies on this thread how nicely using the IR Sauna helped with porphyrian/endotoxini symptoms today and how as long as I continue to monitor what I'm doing I might just go add another dose of Z tomorrow. I'll wait and see how I feel in the morning and since I dose at night, I'll have all day to decide for sure.
Let me just say that although this isn't feeling like a total cake walk, I don't think it's going to be too difficult to handle the CAPi mostly, especially with all of the support and info here along with the supplementsi and strategies to use to make it all quite doable.
I really wish we could get that point across to some of the other newbies so they don't feel like giving up or offing themselves as a result of going too quickly.
PS I now have TWO scripts for Tindamax (the pharmacy wouldn't fill the one for tinidazole) and had to go TWO more times today to the lab to get redrawn (that makes three times total) for the labs I had asked to have ordered for the CFIDSi panel and CPn tests. So, "three's a charm"?
3/08 NACi 2400 mg, 4/08 Iodoral 25 mg, 5/08 minoi 100mg, 6/08 Zithi 250mg 1/wk, myco+ CFIDSi/FMSi, Hashimoto's, Psoriasis, PA, IBSi, Secondary Addison's
When I change what I believe I change what I do___________________________________________________________
NACi 2.4g, Zithi 250mg/MWF, minoi 200mg, Tinii 1g/day pulses, Iodoral 25mg, Supps, CFIDSi/FMSi, Hashimoto's, Psoriasis, PA, IBSi, Secondary Addisons
Don't believe everything you think!I'm not sure why the
The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi
___________________________________________________________
The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi
Reenie did the pharmacy give
Reenie did the pharmacy give you a price on the Tindamax? Your insurance may not be willing to pay for it in full and the pharmacy may not be willing to eat the balance.
My first subscription was for 180 tablet, the parmacytech came out and said that the cost would be over $700 with the insurance coverage. The self pay cost would be $1500. I said thank you I will call my insurance company. They said they would reemburse at 80% of that. So I did fill it. So recently my provider wrote another script, and the mail away section of my insurance company send a mailer promo. I called and asked about the azythro, tinidiazole and the doxyi to get their pricing. When she put through the azytho the insurance denied to pay half of a months supply would pay only 6 pills/month. I had heard about that from other, I could get the second 6 pills but they would be self pay. And with the tinidazole the suggested the alternate metonidazole and refused to reemburse for the month of tinidazole I cannot quote the cost that they would give me as a self pay it was reduced some from the private pharmacy price but from my experience the other alternate source which I used prior to rx for this drug was much less money, I used the branded fasigyn.
So it may be a insurance company manipulation rather than the pharmacy. Ask them why and i you can get it self pay and what that price would be. They seem to know better than an MD these days.
Louise USA.CFSi.CPn Positive.BbPositive.WheldonCAP6/24/07.NACi,Doxy,Roxi, Tinidazole Pulses. VitD-3,4000IU. Intermittent Cholestyramine 1-2 packets atbedtimewithpulses&asneeded forporphoria&endotoxinsi.
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Louise CFSi, CPN+/Bb+,Wheldon CAPi 6/07, Cholestyramine 1-2 pks @ HS for Porphyriai & Endotoxinsi PRN, Doxyi 200daily, Roxi 300BID, Tini500BIDx14day pulses,VitD3-10,000IU, Iodoral 12.5mg, {S.O.D.3/QD[KAL Brand], Pyruvate 3.75G, SAM-e For Energy Support
Louise and Mac, It has to do
Louise and Mac,
It has to do with cost containment (a combined effort of the mail order pharmacy and my insurer) and the way the script was originally written for tinidazole, the generic name when Tindamax is still on patent.
Once I got the script written for Tindamax into the mail order, they have no choice but to process it now. Yes, it's expensive but I have a co-pay max and that's what I end up paying for most scripts which is much cheaper than most meds would be w/o coverage.
The follow up info I included here was for other folks mainly if they had a tini script kicked back.
Mac,
Be aware if you have rx insurance coverage, these pharmacies all "talk" to one another via their internal computer systems and the insurer claims. If you're self pay, then naturally your idea is a good one to eliminate a stressor of having a pharmacist balk at your multiple rxs.
Everyone seems to want to cover their butts these days of lawsuits and liabilities.
3/08 NACi 2400 mg, 4/08 Iodoral 25 mg, 5/08 minoi 100mg, 6/08 Zithi 250mg 1/wk, myco+ CFIDSi/FMSi, Hashimoto's, Psoriasis, PA, IBSi, Secondary Addison's
When I change what I believe I change what I do___________________________________________________________
NACi 2.4g, Zithi 250mg/MWF, minoi 200mg, Tinii 1g/day pulses, Iodoral 25mg, Supps, CFIDSi/FMSi, Hashimoto's, Psoriasis, PA, IBSi, Secondary Addisons
Don't believe everything you think!Although I felt fine enough
Although I felt fine enough to take another dose of Z tonight I decided to wait until Friday rather than rushing things. If I still feel the same by Friday, I may take my 2nd dose, then next week I would take the Z on M, W, F.
I must say it still feels weird to be able to take a full tab of Z.
3/08 NACi 2400 mg, 4/08 Iodoral 25 mg, 5/08 minoi 100mg, 6/08 Zithi 250mg 1/wk, myco+ CFIDSi/FMSi, Hashimoto's, Psoriasis, PA, IBSi, Secondary Addison's
When I change what I believe I change what I do___________________________________________________________
NACi 2.4g, Zithi 250mg/MWF, minoi 200mg, Tinii 1g/day pulses, Iodoral 25mg, Supps, CFIDSi/FMSi, Hashimoto's, Psoriasis, PA, IBSi, Secondary Addisons
Don't believe everything you think!It sounds weird to me too!
It sounds weird to me too! Still remembering the MPi days of pill cutting and 1/16th of a Z tablet knocking me on my bum.
I say you are smart to wait a bit. Takes at least two weeks until the tissues are saturated I do recall. Take care.
Fibromyalgiai - dx 2002. Treatments: Mega supplementsi 2002-04. MP 2004-08. 4/19/08 - started NACi - immediate response. 1x600 mg. q24h. + 1x600 mg. q48h. No abxi yet. Heparin sodium BID 0.5cc x1. Supplementsi on start list.
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FM dx 2002 (sinusitis-rhinitis, dry eyes, bronchitis, cardiac, shoulder, liver, gallbladder issues) Started NACi: 4/19 (2400 mg daily 7/21) Start list supplementsi + Iodoral 12.5 mg. daily: 6/19 FIRi sauna, 100 mg Minoi 9/4.
Hi Reenie, Glad to hear how
Hi Reenie,
Glad to hear how well you are doing. 310 miles? Wow!
"I was just thinking today before looking at the replies on this thread how nicely using the IR Sauna helped with porphyrian/endotoxinii symptoms today"
FIRi Sauna is amazing, isn't it?! We all have Dr P and Raven, our FIR Sauna trailblazer, to thank for this!
On Combined Antibiotic Protocol for Cpn in Rosaceai 01/06 - 07/07, On Vit D3 + NACi since 07/07 and daily FIR Sauna since 08/07
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Treatment for Rosaceai
I would love to say I'm
I would love to say I'm feeling GREAT but I can only say I'm tolerating everything at the moment without any (or very little) porphyriai. Red, thanks for reminding me. I think I'll see if using the IR Sauna treatment helps me with energy levels. I can't sit outside with the temps around 105 right now but I think the IR Sauna might work. It's effects are different than the sun.
This week is my first week of taking the full dose Z (M,W,F)
It still seems odd to take full tabs compared to what we took on the MP. I wonder what was so different that made us so extremely sensitive to those tiny doses of abxi now. Does Benicar really potentiate the abxi or was something else happening like due to D depletion? It seems that those folks having the most difficulty ramping the tiny doses were also those with the lowest D levels. I had an easier time than alot of folks until my D got down so low and then I got so sick, again. It seems more like a "D issue" and porphyria than herx now, looking back.
I've had a chance to read and discuss this with so many others that think it may have been the tiny doses of abx themselves that can make one feel sicker without really doing much of anything in forms of herxing.
OTOH, I feel like I'm able to tolerate this early part of the CAPi quite easily (knock on wood) so maybe the MP did something? I can only speculate.
I feel that the biggest turnaround I got was from increasing D levels and taking Iodoral. These helped improve my lab tests. I'm lowering thyroid dosing now under Dr's care. At some point I'll titrate Iodoral up but for now I'm keeping that dose at 25 mg.
I'm feeling more fatigued/lethargic these past few days but it's tolerable, unlike the first time I tried taking Zithi while on the MP. I'm forcing myself to get dressed and out to get things done that are necessary at the moment but I'm able to do that unlike days of feeling too weak or brain fogged to push a little. I'm also waking up early and requiring less than 8 hrs sleep again which is indicative that I'm doing fine. I still require a few naps a week. (not everyday)
I believe the big difference is the ability to treat the toxins and the awareness that eating complex carbs and some glucose is a good thing for my liver and energy level. All good.
I'm still waiting for my labs after all of the mixups and 3 blood draws. Some of the tests done (I won't be sure which) in the Chronic Fatigue panel will show results after starting the CAP because of the redraws. Oh well; it is what it is.
3/08 NACi 2400 mg, 4/08 Iodoral 25 mg, 5/08 minoi 100mg, 6/08 Zith 250mg MWF, myco+ CFIDSi/FMSi, Hashimoto's, Psoriasis, PA, IBSi, Secondary Addison's
When I change what I believe I change what I do___________________________________________________________
NACi 2.4g, Zithi 250mg/MWF, minoi 200mg, Tinii 1g/day pulses, Iodoral 25mg, Supps, CFIDSi/FMSi, Hashimoto's, Psoriasis, PA, IBSi, Secondary Addisons
Don't believe everything you think!I am watching you ... am
I am watching you ... am amazed the full dose Z has not landed you in bed. Cool that you can still function. <shaking my head in disbelief> Maybe this won't be so bad after all? OR NOT. LOL WE shall see ...
I guess with all that D in you ... You must be immuno suppressed, eh? <wink>
Who said that? LOL MM
Fibromyalgiai - dx 2002. Treatments: Mega supplementsi 2002-04. MPi 2004-08. 4/19/08 - started NACi - immediate response. 1x600 mg. q24h. + 1x600 mg. q48h. No abxi yet. Heparin sodium BID 0.5cc x1. Supplementsi on start list.
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FM dx 2002 (sinusitis-rhinitis, dry eyes, bronchitis, cardiac, shoulder, liver, gallbladder issues) Started NACi: 4/19 (2400 mg daily 7/21) Start list supplementsi + Iodoral 12.5 mg. daily: 6/19 FIRi sauna, 100 mg Minoi 9/4.
Reenie- Somewhere in the
Reenie- Somewhere in the Research section are some abstracts on D as anti-inflammatory. So it could be (who knows really, just putting this out as a thought-stimulator) that D depletion increased the inflammatory reactions to bacterial kill by leaving little immunomodulation available to your system. In other words, it wasn't the tiny dosing, it was the tiny amount of D to deal with what would otherwise be minimal reactions.
A few links:
http://www.nutraingredients-usa.com/news/ng.asp?n=66953-vitamin-d-inflam...
http://www.medicalnewstoday.com/articles/88298.php
http://www.proactivehealthnet.com/healthBB/showthread.php?t=652
CAPi for Cpni 11/04. Dx: 25yrs CFSi & FMSi. Currently: 300mg BID Roxithromycin, Bactrim DS 2x/day, Tinii 1000mg/day pulses; Vit D2000 units, T4 & T3
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CAPi for Cpni 11/04. Dx: 25yrs CFSi & FMSi. Currently: 150mg BID Roxithromycin, Doxycycline 100mg BID, Tinii 1000mg/day pulses; Vit D2000 units, T4 & T3
Jim, I definitely noticed a
Jim,
I definitely noticed a huge difference in how I feel now that I got my D levels back up. I think it's a crime that folks like MM and myself and countless others still suffering from D depletion are thinking they're healing when they're just in all likelihood feeling so poorly over at "that other site."
MM,
I'm glad to see the foot inserted in your mouth >>
since it's not true that I'm "immuno-suppressed" from D. That was what we were led to believe and I now believe we were misled. 
BTW, it was 108 here today and I was working on my rental w/o any air conditioning since there's no electric on right now. I was also in the garage working and built up quite a sweat. I feel that was good for me to do. Now off to the shower.
It's great to be able to be on a protocol that actually makes one feel healthier rather than puny much of the time.
3/08 NACi 2400 mg, 4/08 Iodoral 25 mg, 5/08 minoi 100mg, 6/08 Zithi 250mg MWF, myco+ CFIDSi/FMSi, Hashimoto's, Psoriasis, PA, IBSi, Secondary Addison's
When I change what I believe I change what I do___________________________________________________________
NACi 2.4g, Zithi 250mg/MWF, minoi 200mg, Tinii 1g/day pulses, Iodoral 25mg, Supps, CFIDSi/FMSi, Hashimoto's, Psoriasis, PA, IBSi, Secondary Addisons
Don't believe everything you think!Yep Reenie ... I was
Yep Reenie ... I was counting on you to get my wicked sense of humor. My bad.
I want to share something with you. It has been interesting for me trying to take a small dose D3 supplement. 400 IU. The first day I took it the burning began just a little bit but impressively the shoulders became almost pain free for the first time in a couple years to the extent that suddenly occurred. Amazing. Anyway ... so was thinking ... the D3 was going to be ok for me.
Wrong! Last night before bed got slammed with return of shoulder pain. Then I woke up burning from head to toes like sunburn deep under my skin instead of top layer of skin. Doing moppers frequently keeping the headache and nausea down. But I would say the newly added of 400 IU D3 is the prime suspect involved in this reaction. Thinking without the NACi on board it would not have been as dramatic though.
Said all that to say .... does not that show rather than immuno suppressive as we were led to believe ....rather doesn't it show the opposite. Seemed like my immunei system fried me from head to toe. OW! Whatcha think?
OMG .. sounds like "hell" on earth to me at 108. How could you even move let alone work? You truly are a desert girl... Geez. That shower must have been so welcome afterward. Think of all the toxins you must have emitted though sweating. Cool!
So glad you are feeling healthier. I have my moments too. Wish they were longer though. Gimme gimme. LOL I'm working on it.
You too! MM
Fibromyalgiai - dx 2002. Treatments: Mega supplementsi 2002-04. MP 2004-08. 4/19/08 - started NAC - immediate response. 1x600 mg. q24h. + 1x600 mg. q48h. No abxi yet. Heparin sodium BID 0.5cc x1. Supplementsi on start list.
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FM dx 2002 (sinusitis-rhinitis, dry eyes, bronchitis, cardiac, shoulder, liver, gallbladder issues) Started NACi: 4/19 (2400 mg daily 7/21) Start list supplementsi + Iodoral 12.5 mg. daily: 6/19 FIRi sauna, 100 mg Minoi 9/4.
does not that show rather
does not that show rather than immuno suppressive as we were led to believe ....rather doesn't it show the opposite.
Exactly! It seems all of the evidence and links say the opposite of what we were led to believe about Vit D being a villain... NOT!
Well, it was cooler today, only like 103 I think but I worked up a sweat again working on my vacant rental. It's supposed to be 111 this weekend so that'll be the hottest day of the year so far.
It feels good not to get so sick from the heat anymore like I did while I was avoiding D. I'm not saying I'm completely tolerant of the heat and sun but much better and I think as I improve in time on the CAPi I'll enjoy the desert even more.
And to think I had considered moving to a rainy, cold climate because I thought the sun was the devil!

3/08 NACi 2400 mg, 4/08 Iodoral 25 mg, 5/08 minoi 100mg, 6/08 Zithi 250mg MWF, myco+ CFIDSi/FMSi, Hashimoto's, Psoriasis, PA, IBSi, Secondary Addison's
When I change what I believe I change what I do___________________________________________________________
NACi 2.4g, Zithi 250mg/MWF, minoi 200mg, Tinii 1g/day pulses, Iodoral 25mg, Supps, CFIDSi/FMSi, Hashimoto's, Psoriasis, PA, IBSi, Secondary Addisons
Don't believe everything you think!If I read the Wheldon CAPi
If I read the Wheldon CAPi chart correctly, HERE, I would begin the second daily dose of minoi (using in place of doxyi) when I can "well tolerate" the Zithi and first dose of mino which seems FINE so far.
I think I may wait another week as I know these abxi are bateriostatic and so I may still experience some die off reactions which I haven't had yet over time. Also, no point in going any faster than turtle pace.
So let me see if I have this straight...
According to several others posting I recall folks saying they've waited 3 months being on full doses of the first two abxi before pulsing Flagyli or Tindamax. Is there any reason why I would want or need to wait that long?
It seems to me if nothing changes, maybe I could tolerate the tinii pulse sooner? (It does say on the Wheldon chart to start the pulse when first 2 abx are well tolerated)
Any thoughts on this please? TIA
Ok, signing off from hell, er, I mean Phoenix. It's only going to be 112 tomorrow and Monday. Thank God for pools and air conditioning.
PS I finally got a call this past week from the ID Drs office and my lab work (which I had redrawn 3x) is still out. Some of the tests are only preliminary and so they're waiting for the rest to come in before releasing them to me as the Dr needs to review first even though he's not wanting to see me again.
The nurse said that so far everything is within "normal" ranges so as not to worry but what is "normal" may not be really, when you're reading these tests of antibody titers.
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NACi 2.4g, Zithi 250mg/MWF, minoi 200mg, Tinii 1g/day pulses, Iodoral 25mg, Supps, CFIDSi/FMSi, Hashimoto's, Psoriasis, PA, IBSi, Secondary Addisons
Don't believe everything you think!Hiya, Here's the lowdown
Hiya,
Here's the lowdown straight from the horse's mouth as it were.
I took snail approach. I've been on the Doxyi 200 and Azith 250 for 2 months and was expecting to stay like that for another month. My initial prescription is about to run out so I contacted David for a new one.
Given that I'm getting on pretty well with everything so far, no major setbacks, he's told me I can start the pulses "cautiously".
So as soon as the new abxi are in, I'll start with one Metroi (Flagyl) for one day and see how that goes before increasing it to two the following month. Unfortunately I have some urgent work on for a large client at the moment so I daren't start pulsing until I've finished that.
Berkshire, UK. Diagnosed RRMSi Feb 4th 2008.
NACi 2400mg. All supplementsi. Doxy 200mg. Zith 250mg M/W/F.
No GP/Neuroi support. Self medicating with help from David Wheldoni.
Started CAPi 20th April 2008.
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Berkshire, UK. Diagnosed RRMSi Feb 4th 2008.
NACi 2400mg. All supps. Doxyi 200mg. Zithi 250mg. Metroi 400mg.
No GP/Neuroi support. Self medicating with help from David Wheldoni.
Started CAPi 20th April 2008. First pulse June 2008
Reenie- no need to wait
Reenie- no need to wait that long if you appear to have predictable reactions. I'd personally want to be on the combo abxi for at least a month before doing a pulse, because the combination is synergistic and will have an initial bacteriocidal impact. As Andesine noted, time it so you aren't doing major work or family events as well.
CAPi for Cpni 11/04. Dx: 25yrs CFSi & FMSi. Currently: 300mg BID Roxithromycin, Bactrim DS 2x/day, Tinii 1000mg/day pulses; Vit D2000 units, T4 & T3
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CAPi for Cpni 11/04. Dx: 25yrs CFSi & FMSi. Currently: 150mg BID Roxithromycin, Doxycycline 100mg BID, Tinii 1000mg/day pulses; Vit D2000 units, T4 & T3
And I started doxyi/azith
The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi
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The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi