Paula has given the Chole a go. As of Wednesday she was on about a quarter of a sachet. At 4pm she would have a slice of rice bread with olive oil spread on it just before the Chole, to help the bile production, but most importantly to alleviate any reaction from the sugar in the sachet.
We have temporarily halted the Chole for a few days, as Paula would get the following symptoms for an hour or two after taking it:-
Cold feeling in her stomach throat and tongue, as if she had an overdose of peppermint oil. She would get sore gums and teeth which was a bit like the sensation you get when eating an acidy sweet.
As she is so sensitive, the above symptoms are probably much more severe than what other people would get. We plan to try taking the Chole at the 6pm time with a full meal, to see if this can disguise some of the above symptoms. Don't worry, she won't be taking any supplementsi at that time - she will be taking the supplementsi at 4pm with the rice bread. We plan to start again this weekend if she is up to it.
After getting the Bb diagnosis we haven't changed anything on the protocol. She is still taking what is in my signature.
On Friday Paula had what she calls the biggest crash yet - I will update you soon about this, but if she doesn't improve as quickly as we would like, we may put a hold on further Chole until next weekend.
Mark.
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UK Carer of bedridden Severe CFS Feb06. Tick bites Summer04. CPNii dx.Apr07. Borrelia dx Sept08. Samento 15 drps daily July07. 200mg Doxyii Jan08. 300mg Roxy Apr08 Stopped abxii Nov/Dec08. Building up on Supps again.
Keep on trucking Mark, it
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Michèle (UK) GFAi: Wheldon CAPi 1st May 2006. Daily Doxyi, Azi MWF, metroi pulse. Zoo keeper for Ella, RRMSi, At worse EDSSi 9, 3 months later 7 now 6.5 Wheldon CAP 16th March 2006
Thanks Michelle. Paula
Thanks Michelle. Paula has started the Chole again. She took half a sachet today and will increase it every day until she is on the full sachet.
Is it true that in the days that Chole is taken, there is no need to take Charcoal that day? What does everyone else take - 1 sachets of Chole daily, or 2?
Thanks,
Mark
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UK Carer of bedridden Severe CFS Feb06. Tick bites Summer04. CPNi dx.Apr07. Borrelia dx Sept08.
Samento 15 drps daily July07. 200mg Doxyi Jan08. 300mg Roxy Apr08Stopped abxi Nov/Dec08. Building up on Supps again.Take the chol and skip the
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CAPi for Cpni 11/04. Dx: 25yrs CFSi & FMSi. Currently: 150mg BID Roxithromycin, Doxycycline 100mg BID, Tinii 1000mg/day pulses; Vit D2000 units, T4 & T3
Good Job Mark!big hugs for
Good Job Mark!
big hugs for you both. This is tough sledding, but the reward is worth it.
You all are in my prayers
peace
r
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CFIDSi/ME 32 yrs, FMSi,
IBSi, EBVi, CMV, Cpni, H1, chronic insomnia, Lymes, HME, Natural HRT peri-M, NAC 3 gm, Full CAP 6-2-08, all supplementsi +Sea Kelp, Chitosan Pulse 16 1-4-09 1gm Flagyli/day-3 daysHi Mark, I take one packet
Hi Mark,
I take one packet of cholestyramine at bedtime during and a few days after pulsing now. It seems to be all I need, basically, to manage the porphyrins.
I am now in day 3 of my 4th tinii pulse and the most I've noticed is a bit more fatigue than I had before I started, other than a few other symptoms I'm experiencing but it may be from the large project I've committed to doing before I began the pulse.
I haven't been around much because I'm doing quite well. I'm not great but much better than I was a couple of months ago. I've had some new symptoms which hopefully means I'm healing, but they are all tolerable, just a little disturbing at times. (visual, joints, aches)
It seemed that for me, the first couple of months were really great when I added the supplementsi, pulsing got difficult, then much better now which I attribute to the chol so at 5 months into full CAPi I feel like I can manage this now and maybe begin to get more up time again.
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NACi 2.4g, Zithi 250mg/MWF, minoi 200mg, Tinii 5day/1g/5 pulses, Valcyte
Don't believe everything you think!Iodoral 12.5mg, Supps, CFIDSi/FMSi, Hashimoto's, Psoriasis, PA, IBSi, Sec Addisons