Started pulsing

I'm new to this site. I've been sick for 13 years. Was told I had RAi. I never accepted that diagnoses. I recently was diagnosed with cpni. Two years ago I asked for minicycline and used it for a year and had to go off because of a bad yeast infection. when I went off I was 85% better. I tried to go back on after two weeks off, but I had such a bad reaction that I just couldn't take it. I had a year off of most of the pain!! This Oct it all returned :( Now I'm taking Doxyclcline 100 mg 2x a day, Azithromycin 250mg MWF and just started Metronidazolei 500mg 3x a day for 5 days. I thought that when I started the Metronidazole that I would experience a lot of pain. The opposite has happened. I'm in less pain. I'm concerned that I should be on minicycline instead. The minoi caused a terrible herx reaction. Before I started this protocol I tried to go back on Mino and I wan't prepared for the pain. I woke in the night with terrible flu like pain all over my body. I thought I was going to die, really. I had never experienced that before. I got a rash on both cheeks and a wierd fever blister on my bottom. Is anybody using mino for cpn?

Hey Dracut, I think I know where your town is. Used to live in one of those big mill cities over 35 years ago.   You say "I got a rash on both cheeks", I think you mean from the minocycline?      A few years ago I had a pmessage here from the husband of a woman who had had success with minocycline but had had to stop because she developed a Lupus like reaction to it.    Take a google and look at the Lupus facial rashes and see if there is a similarity.

Well I would be OK with having less pain, it sure sounds like you are one of the effective CAP combinations.  The combination works over time and minocycline is reputed to be stronger than doxyi mg per mg but slow and steady is what brings the success without overload on this plan from my perspective.

Perhaps someone will respond with a more detailed explaination for you.    Does sound like things are OK so far.     

  • CAPi(TiniOnly): 06/07-02/09 for CFSi<
  • MethylationProtocolSupplements: Started08/08
  • Intermtnt CAP: 02/09-02/10
  • Full MethylProtocol & LDNi 02/09
  • Off CAP: 02/10, cont LDN & MethlyProtocol support
  • <

I guess that I'm so used to having pain, that if I not feeling any, I think things aren't working. Maz in the roadback.org thought it was a Lupus reaction also. I guess I will stay with this protocol and just be happy that I'm not suffering! I just want to get going with this treatment!! Spring is here and I want to get out with my dogs and ride my bike!!

The mills you were in, were proably in Lowell or Lawrence!

Finally diagnosed with chlamydia pneumoniae, but have been sick for 14years! I was told that I have RAi.

Azithromycin 250mg MWF, Doxyi 100mg 2xMWF, Metronidazolei 3x for 5 days pulse, Naltrexone 3mgs 1X, Ibuprofen 1200mg,6 mg prednison, B-12 shots a

Wow Flagyli 500 mg three times a day to start and you felt better

I am profoundly and deeply impressed by the constitution of your body 

Seriously   I did not feel good when I used that much 

Thanks for the post

DAILY:  NACi 2400MG , DHEAi sublingual , vit D3 , multi vits,./ Three times  a week: B12 injections (Hydroxycobalamin). Deer antler./  Once every few months methyl B12 Methyl injections

Well Homina, that was why I was posting. I was expecting some die-off. One thing I can say is that this ill-ness is very unperdictable! I never know what I can do and what I can't. I'm not working and am not sure what I can do for work. I can't just go and get a job and have a major flare! That's why I was hoping that I could get going on this! I think my stomach is uneasy because of all the supplementsi that I just started taking. I've never taken so many pills in all my life.

Finally diagnosed with chlamydia pneumoniae, but have been sick for 14years! I was told that I have RAi.

Azithromycin 250mg MWF, Doxyi 100mg 2xMWF, Metronidazolei 3x for 5 days pulse, Naltrexone 3mgs 1X, Ibuprofen 1200mg,6 mg prednison, B-12 shots a

Lots of water with the supps helps muich.  And food with the Doxyi, for many of us.

Rica 

3/9 Symptoms returning. Began 5 abxi protocol 5/9 Rifampin 600, Amox 1000, Doxyi 200, MWF Azith 250, flagyli 1000 daily. Began Sept 04 PPMSi EDSSi 6.7 Now good days EDSS 1 Mind, like parachute, work only when open. Charlie Chan  In for the duration.&am

Its sounds like Minoi cause more of a herx than Flagyli

Yes I agree that it is unpredictable 

Sometimes I feel tired but can't sleep sometimes  I can and it's the same level of tired 

Sometimes I feel good and think I'm getting better then I end up feeling bad for the next few days like I made no progress at all 

Sometimes I get weird cravings which nothing else can satisfy 

 

DAILY:  NACi 2400MG , DHEAi sublingual , vit D3 , multi vits,./ Three times  a week: B12 injections (Hydroxycobalamin). Deer antler./  Once every few months methyl B12 Methyl injections

Comment viewing options

Select your preferred way to display the comments and click "Save settings" to activate your changes.