sound familiar?

hi, I have had chronic overwhelming weakness and fatigue for years and was given antibioticsi for an unrelated condition and on the second day felt a major improvement that continued for the next four days till th ab's ran out.

anyone with a cpni or similar infection eg.(mycoplasma, lyme) had a similar response?

would the antibiotics work on such infectionsi that quickly?

I am trying to work out if its likely I could have one of these infections.

thanks.

Yes, many of us noticed feeling EXTREMELY good when given abxi for other maladies (before treating for cpni). And many of us noticed our 'good' feeling declined pretty rapidly once we were done with that course of antibiotics. That's actually why abxi seemed to be a logical cure when I discovered this protocol.

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

I had only taken abxi twice before, once for scarlet fever at six years old and once for an infected mosquito bite in my twenties, about two years after first developing MSi, but when I started on this regime I felt something happening within a few hours.  I didn't believe this would work: after all, I had MS; but after the first day I took the medicine willingly.................Sarah     
    
A Journey through Light and Shadow
Completed Stratton/Wheldon regime for aggressive secondary progressive MSi in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

knackers, that is a very familiar story.  You should consider the NAC test.

You and MacKintosh bring up a question that I have been wondering lately and and I haven't seen asked or answered on this forum.

Why can't those of us who have had that experience go back on a higher dosage of abxi than the current CAPi calls for?

I feel like I felt better after a few days of Levaquin than I have felt on the levels called for in the Wheldon protocol.  When I had a bad reaction to the Levaquin and the doctor put me on doxyi at at least twice the dosage of my current treatment I felt better than I have during the CAP.

Started CAPi for Cpni on 11/14/10 - Per my doctor, paused Abxi 5/18/13 - NACi, T3, St Johns Wort, B-complex, Vit C, Vit D3 (8,000/day), Vit E, Astragalus, Chlorella, Chelation with Alpha Lipoic Acid">i. Started Buhner protocal (2nd edition) on 8/30/16.

thanks for the reply guys. wha is the naci test?

can anyone tell me if there is a general concensus on how to go about treating these things? I am reading all different protocolsi and want to get it right. can someone please tell me how to go about this or where I can get the info. Also I cannot find a doc in australia to help me with this is anyone doing it by themself? each time I have taken the antibiotic klacid I got the same effect but to a lesser degree, so I dont want to make the infection immunei to the drugs. Thanks again for the help.

The reason we use the prescribed dosages is to be kind to ourselves while still killing the CPni. Kill too much, too fast, and you may kill or severely debilitate, the host. In other words, yourself.

If you find, in time, that you can tolerate higher dosages, then the experimentation begins.  And THAT is why Knackers is seeing 'so many protocolsi' practiced here.

The basic protocol is listed under 'Getting Started'.  I would put it simply as 200mg doxycycline daily, 250mg azithromycin on Monday, Wednesday and Friday,   and for five days out of the month, a 'pulse' of 1200 - 1500mg metronidazolei (or 1200mg tinidazole) per day.

Leave off the caffeine and other stuff until you first see how you tolerate this basic protocol.  You should also be taking 2400mg N Acetyl cysteine a day and a good dose of Vitamin D3, at the very minimum. 

(The NAC test is just taking 600-1200mg of N Acetyl cysteine a day and noting whether you have flu-like symptoms afterward.  It's the cheap and easy way to determine if you have a CPn infection.  Cold or flu symptoms are a dead giveaway that you have it.)

 

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

hello macintosh, thankyou.

is this treatment also good for similar infectionsi such as mycoplasma? this is the only one I have been tested for using pcri- which I understand is what is needed. the tests for the other are not available in australia as far as I have looked.

also is NACi effective against similar infectionsi like mycoplasma? thanks
Gee, I wish I could say I felt better when taking antibioticsi. Well, some people get hammered I guess. Have you had any testing done for Lyme and it's co infectionsi? There is an Aussie posting on this site. Can't recall her name right now-maybe someone will help me out. You could contact her as her doctor is savvy about the antibiotic protocol. Hang in there, Raven

Feeling 98% well-going for 100. Very low test for Cpni. CAPi since 8-05 for Cpn/Mycoplasma P.,Lyme, Bartonella, Mold exposure,NACi,BHRT, MethyB12 FIRi Sauna. 1-18-11 begin new treatment plan with naturopath

only test in aus i can find by way of pcri is mycoplasma and I was possitive but all docs have told me it is a common infection that most people get and it will resolve itself.
that would be great if i could find the member that has found a doc from aust.

Knacker323, Welcome.  It would be great if you could start your blogspace as when you ask personal questions you have a location to refer back to in the future.   Also it is a great place to share your story.  Folks can give you better feedback if you share your background a bit more specifically.   It does take a bit of investment and time to start and maintain a blog but you keep a record for yourself and may in the future help someone else who might find your blog and your illness and treatment helpful.  

I tested negative for Mycoplasma and for most of the viruses that are commonly associated with chronic fatigue.   I tested postitive for C.Pn. and Bb. back in early 2007.  

The tabs at the top of these pages hold the best information.  Comments to questions are limited by the amount of time that the responder is willing to sit and type a reply.  Also with the amount of information and lack of signature that you have shared good feedback is less that likely on a regular basis.

Most folks here have been to a number of doctors and had a number of tests and have not found an answer or treatment plan let alone a doctor who is familiar with stealth pathogens, the kind that evade medical testing, it is a huge problem.  

Some folks follow this protocol on their own, hard to believe but true.   A good number of folks here with fatiguing conditions have had a number of of ruled out diagnosis already and they likely have spent much on trying to uncover the source of their illness.

CAPi may or maynot be for you but it is worth sticking around and learning what you might need to guide your provider thorugh the CAP, if you choose to take an emperical course  of several years of CAP, as that is what it will take for it to truely work for you if it is appropriate for you.  Doing it halfway with only one antibiotic will only hold it in suspended animation until you stop and then it starts up again as it lives with the cell.

Best of luck in your search.    Louise

  • CAPi(TiniOnly): 06/07-02/09 for CFSi<
  • MethylationProtocolSupplements: Started08/08
  • Intermtnt CAP: 02/09-02/10
  • Full MethylProtocol & LDNi 02/09
  • Off CAP: 02/10, cont LDN & MethlyProtocol support
  • <

Hi Knackers,

I just got tested in Sydney last month for chlamydia dna by pcri testing. The lab is called Australian biologics in Pitt street. Just google them.

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