Just a quick blog entry. For most of Paula's life, she hasn't produced very much sweat at all - virtually unnoticeable in fact. She always complains about mine though! :-)
Since starting on the Roxi, she is sweating again, much to her disgust, but to my delight, as I know that this means she is getting rid of more toxins in her body than she used to.
She calls it skin poo!
:-)
Mark
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UK Carer of bedridden Severe ME/CFS Feb06. CPNii dx. Apr07. Samento 15 drops per day July07. 2400mg NAC 200mg Doxyii Jan08. 300mg Roxyii Apr08.
:-) UK Carer of bedridden
:-)
UK Carer of bedridden Severe ME/CFS Feb06. CPNi dx. Apr07. Samento 15 drops per day July07. 2400mg NAC 200mg Doxyi Jan08. 300mg Roxi Apr08.
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UK Carer of bedridden Severe ME/CFS Feb06. CPNi dx. Apr07. Samento 15 drops per day July07. 2400mg NAC 200mg Doxyi Jan08. 300mg Roxyi Apr08.
Skin Poo! LOL. Berkshire,
Skin Poo! LOL.
Berkshire, UK. Diagnosed RRMSi Feb 4th 2008.
NACi 2400mg. All supplementsi. Doxyi 200mg.
No GP/Neuroi support. Self medicating with help from David Wheldoni.
Started CAPi 20th April 2008.
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Berkshire, UK. Diagnosed RRMSi Feb 4th 2008.
NACi 2400mg. All supps. Doxyi 200mg. Zithi 250mg. Metroi 400mg.
No GP/Neuroi support. Self medicating with help from David Wheldoni.
Started CAPi 20th April 2008. First pulse June 2008
Nor pleasantbut a good sign,
Nor pleasantbut a good sign, happened to me too. Now I'm waiting for the day when I can shave my legs again...
Michèle (UK) GFAi: Wheldon CAPi 1st May 2006. Daily Doxyi, Azi MWF, metroi pulse. Zoo keeper for Ella, RRMSi, At worse EDSSi 9, 3 months later 7 now 5.5 Wheldon CAP 16th March 2006
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Michèle (UK) GFAi: Wheldon CAPi 1st May 2006. Daily Doxyi, Azi MWF, metroi pulse. Zoo keeper for Ella, RRMSi, At worse EDSSi 9, 3 months later 7 now 5.5 Wheldon CAP 16th March 2006
Out, damn'd spot! out, I
Out, damn'd spot! out, I say!—
Daisy - Husband on CAPi 5/07. Roxyi, Diflucan round three 4-4, Rifampin, Bactrim DS, Mepron 4-6,
Prednisone,Novantrone, Doxyi, Azithromycin, Flagyli, Minoi___________________________________________________________
Daisy - Husband on CAPi 5/07. "When Going Thru Hell, Just Keep Going", Winston Churchill
Oh, you will be able to,
Oh, you will be able to, Michèle! I have now grown hairs on my legs for the first time ever..............Sarah
An Itinerary in Light and Shadow by a real "Painter of Light"...........Completed Stratton/Wheldon regime for aggressive secondary progressive MSi in June 2007, after four years, three of which intermittent. Still slowly improving and no exacerbation since starting. EDSSi was 7, now 2, less on a good day.
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Paula has also mentioned to
Paula has also mentioned to me today, that another symptom that she gets that is largely reduced this past month, is the lack of cold and painful feet and other extremeties. I would continually have to put her bed socks on, no matter what the temperature was in the bedroom. This rarely happens now.
UK Carer of bedridden Severe ME/CFS Feb06. CPNi dx. Apr07. Samento 15 drops per day July07. 2400mg NAC 200mg Doxyi Jan08. 300mg Roxi Apr08.
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UK Carer of bedridden Severe ME/CFS Feb06. CPNi dx. Apr07. Samento 15 drops per day July07. 2400mg NAC 200mg Doxyi Jan08. 300mg Roxyi Apr08.
Well that is real
Well that is real progress....
Michèle (UK) GFAi: Wheldon CAPi 1st May 2006. Daily Doxyi, Azi MWF, metroi pulse. Zoo keeper for Ella, RRMSi, At worse EDSSi 9, 3 months later 7 now 5.5 Wheldon CAP 16th March 2006
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Michèle (UK) GFAi: Wheldon CAPi 1st May 2006. Daily Doxyi, Azi MWF, metroi pulse. Zoo keeper for Ella, RRMSi, At worse EDSSi 9, 3 months later 7 now 5.5 Wheldon CAP 16th March 2006
Hi Sarah and all I too am
Hi Sarah and all I too am growing more leg hair again!
Louise
CFSi/ME.CPnPositive.BbPositive.WheldonCAPbegan6/24/07. NowNAC,Doxyi, Roxi, Full tinii 5 day, Pulse #5 day 8 in process now. Cholestyramine at BedtimeforPhorphoria&liposacarideEndotoxinDie-OffExperiences.
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Louise-CFSi, CPN+/Bb+ Wheldon CAPi 6/07, Cholestyramine1-2pksHSforPorphoria& Endotoxinsi, Doxy100daily,Roxi300BID,Tini500mgBIDpulses,VitD3-4000IU,MagnascentIodine,{S.O.D.3/QD[KAL Brand],+Pyruvate3.75G+SAM-eForEnergy}
I'm getting confused about
I'm getting confused about all this leg hair growth talk
Does CPni cause leg hair growth to stop?
UK Carer of bedridden Severe ME/CFS Feb06. CPN dx. Apr07. Samento 15 drops per day July07. 2400mg NAC 200mg Doxyi Jan08. 300mg Roxi Apr08.
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UK Carer of bedridden Severe ME/CFS Feb06. CPNi dx. Apr07. Samento 15 drops per day July07. 2400mg NAC 200mg Doxyi Jan08. 300mg Roxyi Apr08.
Well, hmmmm skin poo! I have
Well, hmmmm skin poo!
I have been having alot of skin poo, resulting from?? it could be a number of things, abxi, hormones. I think it is the latter, I wish I wasn't shaving my legs, I am dying my eyebrows & bleaching my mustache!
Good news for Paula! the improvements come little by little.
CFIDSi/ME 25yrs, FMSi, IBSi, EBVi, Cpni, (insomnia - melatonini, GABA, tarazadone, triazolam, novocycloprine, allergy formula, 3 gm tryptophan), Natural HRT peri-M, NACi 2.5 gm, 6-07 Doxy 200 mg day pm, Azith 375 mg M/W/Fday, Pulse8 750mg 4day,375X1 3-24-8
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CFIDSi/ME 32 yrs, FMSi,
IBSi, EBVi, CMV, Cpni, chronic insomnia, Lymes, HME, Natural HRT peri-M, NACi 2.5 gm, 6-07 Doxy 200 mg day pm, Azith 375 mg M/W/Fday, Pulse#13 1240 mg X 3 days 8-7-08In a number of people whose
In a number of people whose skin is affected by Cpni, hair growth stops, or is greatly reduced. Not only does the hair on my head come and go (more coming than going now) but I have very little hair on my body, including my legs. Now I know that for most women shaving our legs is a bit of a chore, but for me it would be a sign that I am really on the mend and nearing the end of my treatment.
Michèle (UK) GFAi: Wheldon CAPi 1st May 2006. Daily Doxyi, Azi MWF, metroi pulse. Zoo keeper for Ella, RRMSi, At worse EDSSi 9, 3 months later 7 now 5.5 Wheldon CAP 16th March 2006
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Michèle (UK) GFAi: Wheldon CAPi 1st May 2006. Daily Doxyi, Azi MWF, metroi pulse. Zoo keeper for Ella, RRMSi, At worse EDSSi 9, 3 months later 7 now 5.5 Wheldon CAP 16th March 2006
Thanks everyone. I'll tell
Thanks everyone. I'll tell Paula about the leg hair. I understand now.
UK Carer of bedridden Severe ME/CFS Feb06. CPNi dx. Apr07. Samento 15 drops per day July07. 2400mg NAC 200mg Doxyi Jan08. 300mg Roxi Apr08.
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UK Carer of bedridden Severe ME/CFS Feb06. CPNi dx. Apr07. Samento 15 drops per day July07. 2400mg NAC 200mg Doxyi Jan08. 300mg Roxyi Apr08.
Paula said to me that this
Paula said to me that this is interesting cos she has never had to shave her legs in her life. She is 42 now. But she put it down to being blonde and with very fine hair. She says she would hate to have to shave her legs.
But she did always wonder why the the hair on her head took so long to grow. She would only need a trim once per year! Recently she has noticed her head hair has grown much quicker after having it hacked off by not even an amateaur hairdresser last July - me! It must have grown 3 inches in the last 10 months which for Paula is a hell of a lot.
UK Carer of bedridden Severe ME/CFS Feb06. CPNi dx. Apr07. Samento 15 drops per day July07. 2400mg NAC 200mg Doxyi Jan08. 300mg Roxyi Apr08.
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UK Carer of bedridden Severe ME/CFS Feb06. CPNi dx. Apr07. Samento 15 drops per day July07. 2400mg NAC 200mg Doxyi Jan08. 300mg Roxyi Apr08.
Congratulations! There may
Rica PPMSi EDSSi 6.7 at beginning - now 2. Began CAPi Sept, 2004 with Rifampin 150 mg 2xd, Doxyi 100 mg 2xd, added regular pulses Jan 2005. Jan 2006 switched to Doxy, Azith, cont. flagyli total 50 pulses NC USA
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Rica PPMSi EDSSi 6.7 at beginning - now 2. Began CAPi Sept, 2004 with Rifampin 150 mg 2xd, Doxyi 100 mg 2xd, added regular pulses Jan 2005. Jan 2006 switched to Doxy, Azith, cont. flagyli total 52 pulses LDNi Rifampin 8/08 again NC USA
Leg hair -- wait a minute!
Leg hair -- wait a minute! I've been told by many people older than myself that as you get older you stop growing hair on your arms and legs. I assumed that was one of the rare bonuses of aging.
PPMSi-misdiagnosed 2001-diagnosed 2006. Minocycline 7 mos.- resulting bronchitis 5 months. Talked Hopkins neuroi. into: HRT (estriol and progesterone as neural protectant re Voskuhl,UCLA).Wheldon CAPi 3/2/07 - 200 doxyi; azith MWF. 4 pulses. Rockville,Md. Loo
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PPMSi-misdiagnosed 2001-diagnosed 2006. Also maybe csf and Lyme -- who knows?! Minocycline 7 mos.- resulting bronchitis 5 months. Deserted by Hopkins neurology dept. and going to private md. out-of-plan. Wheldon CAPi 3/2/07 - 200 doxyi; azith MWF. 5 pulses.
I heard that too Nancy. I
I heard that too Nancy. I have never had much hair on my legs, not much on my brows & quite blonde (I dye it to match my hair) & very little blonde hair on my arms. My scalp hair is fine & not that much of it too! But, God has a sense of humour, he has given me some new hair growth on my upper lip & hair where women don't really want it!!! LOL
This is probably more information than you all needed to know.
CFIDSi/ME 26yrs, FMSi,
IBSi, EBVi, CMV, Cpni, chronic insomnia, Lymes, HME, Natural HRT peri-M, NACi 2.5 gm, 6-07 Doxy 200 mg day pm, Azith 375 mg M/W/Fday, Pulse#9 750mg 5.5 day, 4-25-8___________________________________________________________
CFIDSi/ME 32 yrs, FMSi,
IBSi, EBVi, CMV, Cpni, chronic insomnia, Lymes, HME, Natural HRT peri-M, NACi 2.5 gm, 6-07 Doxy 200 mg day pm, Azith 375 mg M/W/Fday, Pulse#13 1240 mg X 3 days 8-7-08This is good news Paula.
This is good news Paula. Perhaps the beasts are leaving the skin. Is Paula taking biotin as this is supposed to help the hair!
I have been sweating like crazy, lots of skin poo - 2 shower days! Good thing husband is 8 days on sun up to sun down right now as it gets a little gamey around here! So, I am dry brushing & just started the Lymph cleanse.
I am so glad we had this little talk, lol
CFIDSi/ME 26yrs, FMSi,
IBSi, EBVi, CMV, Cpni, chronic insomnia, Lymes, HME, Natural HRT peri-M, NACi 2.5 gm, 6-07 Doxy 200 mg day pm, Azith 375 mg M/W/Fday, Pulse#9 750mg 5.5 day, 4-25-8___________________________________________________________
CFIDSi/ME 32 yrs, FMSi,
IBSi, EBVi, CMV, Cpni, chronic insomnia, Lymes, HME, Natural HRT peri-M, NACi 2.5 gm, 6-07 Doxy 200 mg day pm, Azith 375 mg M/W/Fday, Pulse#13 1240 mg X 3 days 8-7-08I don't sweat. In my 20s I
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Corinna | GFAi. Wheldon Protocol: 4 – 8/08. Stepping back to recoup. Prednisone, Tramadol, Probiotics.
Great news Paula, It is
Great news Paula, It is encouraging to see something happening. I always look upon the condition of my hair as a mirror of what is going on inside.
Michèle (UK) GFAi: Wheldon CAPi 1st May 2006. Daily Doxyi, Azi MWF, metroi pulse. Zoo keeper for Ella, RRMSi, At worse EDSSi 9, 3 months later 7 now 5.5 Wheldon CAP 16th March 2006
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Michèle (UK) GFAi: Wheldon CAPi 1st May 2006. Daily Doxyi, Azi MWF, metroi pulse. Zoo keeper for Ella, RRMSi, At worse EDSSi 9, 3 months later 7 now 5.5 Wheldon CAP 16th March 2006