Last time I wrote about my skin problems was in August. Since then, I have the same itchy bumps that appeared on the back of my head and now include the upper back. I keep thinking they are hives but there are in addition to raised lumpy areas some small round raised areas like pimples. No blistering (I was thinking it might be shingles but no pain--just itching) Gets worse when I wake up in the morning or later in the afternoon.
I have tried Benedryl, topical cortisone, tea tree oil, red thyme oil, peroxide, baking soda and sauna (ah, not all at the same time). Nothing seems to help.Washed all the bedding and pillows in super hot water just in case it was some kind of mite.
I showed it the the dermatologist in August before it spread. She's the one who gave me the cortisone. I worry about going back to see her as she has no idea what is involved in the treatment I'm on.
I have been off the Iodoral for two days now as it may be some kind of detox from the iodine (this is a known effect)
I keep thinking it is some kind of hives as the bumps seem to get worse and then fade a bit.
Stress? Yes, going back to my job is a real gauntlet. Just today I was wondering how I did it when I was soooo sick. I must be one tough cookie.
So I am going to try and work on the stress issue. Also read that Nettle tea is good and will give another antihistamine like Claritin a try. If I'm still itching by next week, I'll give my CAPi doc a call. I just think the dermo will throw some stronger cortisteriods at me and I don't want that affecting my recovering immunei system.
If anyone has some suggestions, throw em my way. Other than this skin thing, I appear to be sailing through another Flagyli pulse and feel quite normal.
Raven
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Feeling 98% well and going for 100! Still testing + for Cpnii since June '08.CAPi since 8-05 for Cpn and Mycoplasma P. for MSi and/or CFSii. Also EBVii and HHV6
NACi, Iodoral, T3, BHRT, Methylcobalamin injections, Nitro patch, LDNii and Methylation supplementsii
Hi Raven, Try and get
Hi Raven,
Try and get tested for chronic lyme disease. The rashes that you're describing seem too familiar to me and my experience. Igenex labs in Palo Alto seems the only reliable lab for this scourge.
With all the antis. you've been taking probably some other allergic reaction is at play.
Keep us posted and good luck.
Loulou
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diagnosed MSi Jan.2000 , chronic neurological lyme disease Nov.2002.
doxyi 100 mg. 1BID. roxyi.150 mg.? BID,adding rifampin soon, pulsed tinii. every 3 weeks, as of oct.17/08, no rifampin as yet, just doxy and 1 gram daily of IV ceftriaxone, soon to
Yes, you are tough and I
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Rica PPMSi EDSSi 6.7 at beginning - now 2. Began CAPi Sept, 2004 with Rifampin 150 mg 2xd, Doxyi 100 mg 2xd, added regular pulses Jan 2005. Jan 2006 switched to Doxy, Azith, cont. flagyli total 55 pulses LDNi Rifampin 8/08 again NC USA
I was thinking about
I was thinking about getting a Lyme test as the one I had years ago was done by who-know-where? It was negative then. Before I became ill I had done lots of hiking in a nearby wilderness park with lots of deer. I had found ticks on me but never noticed a bite. But I have heard you can be bit and not feel it. And yes, there is Lyme in Southern Ca, as I had a friend who was bitten up in the local mountains and it took many months for his puzzled docs to figure out why he was so sick---poor guy.
Could be that moving my Flagyli pulses to 8-9 days apart stirred things up. Or it could be an iodine reaction. I read it takes 1-3 weeks to clear a reaction and the sea salt helps.
Thanks for the suggestion. And Rica, you are made of pretty tough stuff too!!!!
Raven
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Feeling 98% well and going for 100! Still testing + for Cpni since June '08.CAPi since 8-05 for Cpn and Mycoplasma P. for MSi and/or CFSi. Also EBVi and HHV6 NACi, Iodoral, T3, BHRT, Methylcobalamin injections, Nitro patch, LDNi and Methylation supplementsi
I've got some skin issues
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Michèle (UK) GFAi: Wheldon CAPi 1st May 2006. Daily Doxyi, Azi MWF, metroi pulse. Zoo keeper for Ella, RRMSi, At worse EDSSi 9, 3 months later 7 now 6.5 Wheldon CAP 16th March 2006
Michele, this almost sounds
Michele, this almost sounds like hormone issues. Do you take any HRT?
I also went though times of thick secretions in the eyes that caused a temporary film to appear. Haven't had it in a long while. After 3 years on the CAPi, my dry mouth is history, I sweat buckets and eyes have lots of tears.
One of the problems I remember when I first became ill was the terrible thirst and dry eyes and mouth. I couldn't drink enough water.
Hope this clears for you soon,
Raven
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Feeling 98% well and going for 100! Still testing + for Cpni since June '08.CAPi since 8-05 for Cpn and Mycoplasma P. for MSi and/or CFSi. Also EBVi and HHV6 NACi, Iodoral, T3, BHRT, Methylcobalamin injections, Nitro patch, LDNi and Methylation supplementsi
Raven, no HRT for me, not
Raven, no HRT for me, not for about 5 years now so this is a strange new thing brought on by the CAPi. Metronidazolei seems to improve the situation and if I could stay on it long enough I expect it would disappear. I will just have to be patient...
But this is minor inconvenience and in other respects I am feeling that I have made real progress in the last few weeks. Less IBSi pain and some feeling returning to my feet, and for the first time in about 5 years I have an appointment at the hairdressers. I am also feeling as though I have more energy and am better motivated to get things done....
The skin being the largest organ in our body is probably going to be the last one to recover fully.
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Michèle (UK) GFAi: Wheldon CAPi 1st May 2006. Daily Doxyi, Azi MWF, metroi pulse. Zoo keeper for Ella, RRMSi, At worse EDSSi 9, 3 months later 7 now 6.5 Wheldon CAP 16th March 2006
Michele, The hairdresser!?!
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The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi
Wow, Michele, I think that
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Rica PPMSi EDSSi 6.7 at beginning - now 2. Began CAPi Sept, 2004 with Rifampin 150 mg 2xd, Doxyi 100 mg 2xd, added regular pulses Jan 2005. Jan 2006 switched to Doxy, Azith, cont. flagyli total 55 pulses LDNi Rifampin 8/08 again NC USA
Raven thanks for continuing
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Louise CFSi,CPNi+/Bb+(Lyme) Cholestyramine 1-2 pks @ HS for Porphyriai +fattyEndotoxins HS PRN, Wheldon CAPi 6/07,all supps, Doxyi 200QD, Roxi 300BID, Tinidazole 500 BIDx20day Pulses, VitD3-10,000IU,Iodoral25mg,SAM-e100mgQD+B-vits, Pyruvate3.75Gm at 1PM