This site and the science behind it is my lifeline

There is a specific section if one clicks "Forum topic" under the heading "Suggestions for website improvements".  If someone has a constructive suggestion, then surely that's the place to put it.

This site is what we members make it.  I once commented on the (British) MSi Society's wesite chat forum and how negative and depressive it was:

http://www.cpnhelp.org/why_ms_society_and_its_me<

That website is a reflection of those members and of the organisation to which they subscribe to.

To keep our site vibrant and upbeat requires effort and good will on the part of everyone.  It would be so easy for this valuable resource to degenerate into a silly and irrelevant chat room for terminal depressives (like the one featured above).  Let's cherrish this resource; bringing a smile or even a laugh along this rocky road to wellness.  Let humour, humility and the desire to help others through this quagmire be thee order of the day ... every day.

If there is a suggestion, then use the suggestions section.  If someone needs help, then just ask.  Remember, this site is a reflection of us, its members.  I is rarely anything but good natured.  Perhaps, sometimes, when people are quite unwell, they find it a little more difficult to show their best side.  For me, this site and the science behind is is my lifeline.  For me, there is nhothing else on offer.  If I choose, I can go and see the human tragedies unfold before my very eyes.  I choose not to be one of those tragedies: hence my presence here.

If this site were perfect, there'd be no ned for a section on site improvements.  No, neither this site nor its software is perfect ... but, for me, this is all there is, that's why I treasure it.

Smile

G.

This site IS what its members make it and one of the things I like is the fact that everyone is welcome, whether they have chronic fatigue, fibromyalgiai, asthmai, multiple sclerosis or even lyme disease (or a whole host of other things.)  You can learn a lot just by spending an hour or so on the site, realising that all these people can have quite a lot of similar symptoms but what joins them all together is the desire to get better.........................Sarah

Completed Stratton/Wheldon regime for aggressive secondary progressive MSi in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

I completly agree with you. I posted my concerns about walking and balance. It was nice to hear peoples thoughts and ideas, but I have to trust the process of the Capi. This site is my lifeline. I take my meds, eat, and sleep, and thats all my body allows. Everything passes, and one day this experience will be a memory. Smile

 

And a dim and distant memory at that!...........................Sarah xx

Completed Stratton/Wheldon regime for aggressive secondary progressive MSi in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Yes, I would be lost without the info here. My doctor just gave me the site is all.

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