I stopped flagyli and am switching to tinii because of severe tooth staining (my neuroi confirmed that staining is a known side effect of flagyl); I will start 1st tini pulse today. I am about 2 weeks late with this pulse because of the change over. When I saw my neuro to get the tini perscription, he was concerned about my increasing spacifity and gave me a package on the baclofen pump to consider. This pump is a serious consideration; it requires a test and then, if the results are positive, the operation for implantation. Yesterday afternoon my spacifity got so much worse. It was scarry -- just getting into bed, getting my legs on the bed, getting up to pee at 1 , 3, & 5 AM. I have never experienced such spacifity. My condition has worsened this last year, but yesterday was over the top.
There's a lot in this post, and I'm not sure what my question is; but would appreciate input. My main concern is my really bad spacifity -- and why it happened. Could it be because I'm late in this pulse?
I have made the appointment for the baclofen pump. ??
Thanks
___________________________________________________________
Mary Ann
SPMSii. Dxii 1991. EDSSii 6.0, 6.5, 6.9; Weldon CAPii. started 3/08. All supps, NACi, Doxyii, Azrith, 13 flagy pulses, 5th tini pulse 11/13/09, 19 total pulses, no improvements, worsening condition
Mary Ann Do you take
Mary Ann
Do you take magnesium and has your Vit D level been checked? My spasms are gone and my D level is now in the 80s. Do you take NACi?
Yes, my spasms ALWAYS got worse - that is how I learned that it was time to do a pulse ealy sometimes. If your teeth are not too bad, a few more flagyli may be worth the staining - which can probably be fixed these days.
Rica
___________________________________________________________
3/9 Symptoms returning. Began 5 abxi protocol 5/9 Rifampin 600, Amoxicillini 1000, Doxyi 200, MWF Azith 250, flagyli 1000. Caffeine pills with AM abxi Began Sept 04 PPMSi EDSSi 6.7 Now good days EDSS 1
Also consider using
Also consider using Listerene Pre-Brush Whitening rinse. It works wonders for my teeth while on doxyi (which caused brown stains for me). I just use it once or twice a week and I have sparkling white teeth.
Best, Timaca
___________________________________________________________
Dx lyme disease 3/05. Dx HHV-6, EBVi, VZV, and HSV1 6/07. Dx with CPni 5/08 and enterovirus 2/09. On antibioticsi for 2+ years, Valcyte (antiviral drug) for 9 months. On 100 mg doxyi bidi for Cpn, acyclovir for viruses, oxymatrine for enterovirus
I'm taking 500mg mag at
___________________________________________________________
Mary Ann
SPMSi. Dxi 1991. EDSSi
6.0, 6.5,6.9; Weldon CAPi. started 3/08. All supps, NACi, Doxyi, Azrith, 13 flagy pulses, 5th tini pulse 11/13/09, 19 total pulses, no improvements, worsening conditionYes, I use it. My dental
___________________________________________________________
Mary Ann
SPMSi. Dxi 1991. EDSSi
6.0, 6.5,6.9; Weldon CAPi. started 3/08. All supps, NACi, Doxyi, Azrith, 13 flagy pulses, 5th tini pulse 11/13/09, 19 total pulses, no improvements, worsening condition