I have a primary diagnosis of Sarcoidosis. In addition to mediatsinal lymphadenopathy, it caused severe inflammationi on the retina of my right eye. I have lost about a third of the vision in that eye due to occluded veins in what can only be described as a retinal infarction. I attempted the Marshall Protocol, but have recently come off of it after a flare which did more damage to the eye. That said, I still hold to the bacterial cause for sarcoid and am willing to give this protocol a shot. My concern is protecting my eye from additional inflammation. The CAPi in question here will no doubt cause a rise in systemic inflammation due to the die off. How do I protect my eye while still killing the bacteria?
Will this protocol work in the presence of low dose prednisone? Or should this combo be avoided?
Thanks.
Joe
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Thanks much
JGK
Joe- there is some evidence
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CAPi for Cpni 11/04. Dx: 25yrs CFSi & FMSi. Currently: 150mg BID Roxithromycin, Doxycycline 100mg BID, Tinii 1000mg/day pulses; Vit D2000 units, T4 & T3
Joe, I lost 70% of the
Joe, I lost 70% of the vision in my left eye three years ago, when I went through optic neuritis. Intravenous steroids probably saved my vision. (It's at 100% now, with a bit of damage to depth perception.) I agree with Jim. While not a big fan of steroids, you do what you need to do to get through things.
After lowering your cpni load, chances are you won't need to worry about inflammationi/steroids and can wean off the steroids as you decrease and kill off the bug that's causing the inflammation.
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The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi
I am not medically trained
I am not medically trained but if I were you I should start this protocol cautiously, one antibiotic at a time and gauge what your reaction is. The danger point will be when you start the flagyli and so that too should be phased in cautiously. Once you start taking Flagyl which is the most likely to cause you to have a pseudo flare up due to inflammationi, then in addition to your predisnolone you might consider taking ibuprofen which is said to combat inflammation too.
Ella takes small doses of predisnolone on a daily basis to help with inflammation and it does not seem to interfere with the treatment and as Jim says research suggests it might even be helpful. If it is any encouragement to you several people, including my daughter have noticed that sight problems are one of the first symptoms to show improvement although I'm not sure whether any of these improvements actually happen to the retina. Some noted improvements have to do with nerve conduction and muscle.
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Michèle (UK) GFAi: Wheldon CAPi 1st May 2006. Daily Doxyi, Azi MWF, metroi pulse. Zoo keeper for Ella, RRMSi, At worse EDSSi 9, 3 months later 7 now 6.5 Wheldon CAP 16th March 2006