Here are some of my "cheats" that help a little.
- Mail order, of course
- Tablets are cheaper than capsules almost every time.
- Fewer pills of higher potency are usually cheaper, easier to count, and easier to swallow (literally.)
- Cod liver oil is cheap, cheap, cheap, and it's a good source of Vitamin Di and Omega-3 fatty acids. Not sure how to fit it into the regimen, what to replace with it, but it's a goodie. I'll try to see what we could replace with it.
- Glucose tabs are expensive, 'cause they're medicine. "Smarties" are 100% glucose, and they taste better, too. Corn syrup is also 100% glucose, unless you get the fancy kind that they put HFCS in, then it's no use to us.
Raisins also have lots of glucose.Turns out they have lots of fructose, too. Sorry. Dates are a little better.
That's all I have for now, anyone have a cheat they can share?
Ron
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Ron
On CAPi for CFSii starting 01/06 (NE Ohio, USA)
Began rifampin trial 1/14/09
Currently: on intermittent
Smarties are 100% Glucose?
Smarties are 100% Glucose? You've made my day. Wow, a justification for my addiction to them. I try not to keep bags in the house as I devour them and worry about feeding candida. But now they are "medicinal." Also, my daughter who has much the worse porphyriai likes them too.
One of my cheats is that CVS pharmacy has a high potency "B 150" which is a cheap source of the B complex vitamins, and two a day gives dosages in almost everything that Dr Powell wants. Often find 2 for price of 1 sales.
Cod liver oil? Ugg! Some internet vitamin stores have lower prices for automatic reordering (Vitamin Shoppe, Swansons, some others) so I have to take a look at this to compare.
I like the idea of compounding a flavorful liquid. There's a multi-vitamin powder I've used in the past which is relatively inexpensive, which one could use. I would be concerned about oxidation (antioxidantsi do this readily when in liquid form) and interactions while in liquid on the shelf.b Dr. Powell likes the "From Fatigued to Fantastic" powder mix for the general supplement coverage, but it's pricey. Maybe we could work a deal with the company for a cpnhelp discount if there's enough interest.
I've avoided having any commercial representation on this site, but if significant discount on supplementsi could be obtained, is there enough interest in having that kind of offer here, or does that distort our purpose?
On Wheldon/Stratton protocol for Cpn in CFSi/FMSi since December 2004.
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CAPi for Cpni 11/04. Dxi: 25yrs CFSi & FMSi. Currently: 250 aithromycin mwf, doxycycline 100mg BIDi, Tinii 1000mg/day pulses; Vit D2000 units, T4 & T3, 12mg Iodoral
We brought our glucose by
We brought our glucose by the kilo at the local home-brew shop.
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D W - [Myalgia and hypertensioni (typically 155/95.) Began (2003) taking doxycycline and macrolide and later adding metronidazolei. No medication now; just supplementsi and IR sauna. Morning BP typically 105/75]
Glucose powder! Add it to
I buy supplementsi in bulk for several other people from http://www.iherb.com/store.html because it is difficult to buy high potency stuff over here at all. If you can find it, it costs the earth. Because I'm supplying more people than just David and I won't photograph our dining table.
Hmm, I see our secret has been divulged by DW!....Sarah
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Ron you cad! I'll never
Ron you cad! I'll never trust you again. Smarties are made from dextrose not glucose! Oh the pain of it all. Disappointment. Betrayal. Smarty withdrawal!
On Wheldon/Stratton protocol for Cpni in CFSi/FMSi since December 2004.
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CAPi for Cpni 11/04. Dxi: 25yrs CFSi & FMSi. Currently: 250 aithromycin mwf, doxycycline 100mg BIDi, Tinii 1000mg/day pulses; Vit D2000 units, T4 & T3, 12mg Iodoral
Ron isn't a cad! Glucose
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Insult withdrawn! He's not
Insult withdrawn! He's not a cad (Synonyms: rogue, scoundrel, rake, rascal, scalawag, blackguard) he's a King! (Antonym: gentleman, nobleman).
On Wheldon/Stratton protocol for Cpni in CFSi/FMSi since December 2004.
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CAPi for Cpni 11/04. Dxi: 25yrs CFSi & FMSi. Currently: 250 aithromycin mwf, doxycycline 100mg BIDi, Tinii 1000mg/day pulses; Vit D2000 units, T4 & T3, 12mg Iodoral
Iherb usually sends emails
Iherb usually sends emails with discount codes every other month. You can stock up at 10% off, if that helps. Just yell if you aren't getting the emails with the codes and I'll post them when I receive them.
The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi
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The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi
I would be very pleased, if
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On Wheldon protocol since 02/2006, added rifa 10/09 for CFSi and many problems 30 years (cpni and mycoplasma)
The most recent 10%
The most recent 10% discount code at Iherb.com is > feb2006 <. I used it (feb2006) on an order in early March and it was still valid. If it works, it will show instantly in the total on the checkout page, so you don't need to wonder whether it worked or not. Jim, I'm not thrilled with the idea of any corporate sponsorship. Kind of like the grassroots approach.
The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi
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The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi
[quote=paron] WARNING - Cod
WARNING - Cod liver oil has lots of Vit A and it is possible to overdose on Vit A.
Fish Oils (fish body oils) are also cheap and a great source of Omega-3 fatty acids
without any Vit A problems.
Mark (Pharmacist)
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Mark Walker - Oxford, England.
RRMSi Nov 91, Dxi 97. CFSi Jan03. Copaxone + continuous CAPi (NACi, Dox, Rox) Feb06 to May 07. Met pulses from Jun06. Intermittent Abxi from June 07 onwards.
Oh, thanks Mark! Good
Oh, thanks Mark! Good catch! I don't think any Vit. A supplementation is part of the protocol at this point -- don't know if it would be good, bad, or indifferent.
RonOn Stratton protocol for CFSi starting 01/06 (NE Ohio, USA).
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Ron
On CAPi for CFSi starting 01/06 (NE Ohio, USA)
Began rifampin trial 1/14/09
Currently: on intermittent
 As far as offers here: I
As far as offers here: I think we can link to them, but they shouldn't actually be made on this site.
Right now, part of the site's credibility stems from the fact that absolutely no one has anything to gain by anything they say here. I wouldn't want to lose that.
I used to be a Product Developer. When I went on customer calls, I absolutely would not talk about the costs, delivery, etc. of the product. As soon as I talked in those terms, I went from "technical advisor" to "peddler" and I couldn't go back! If I ever crossed that line, anything I said was evaluated as though I was financially interested in the view I expressed.
Let's say I were a Compounding Pharmacist, and I wanted to offer a liquid form of the protocol supplementsi. I would at most simply mention it here, with contact info, and let it go at that. Even better would be to contact anyone that had expressed an interest here privately, and let them decide whether to post to the site or not.
Ron
On Stratton protocol for CFSi starting 01/06 (NE Ohio, USA).___________________________________________________________
Ron
On CAPi for CFSi starting 01/06 (NE Ohio, USA)
Began rifampin trial 1/14/09
Currently: on intermittent
Ron- I think you are right.
Ron- I think you are right. Anything commercial, even a discount from a site to our members, raises the question of taint, and the trust level slides. We don't need any income beyond donations to run the site, and it's cheap. It was only around supplementsi, but we are an ingenious crowd and will find discounts as we need. My pledge: no commercial arrangements.
On Wheldon/Stratton protocol for Cpni in CFSi/FMSi since December 2004.
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CAPi for Cpni 11/04. Dxi: 25yrs CFSi & FMSi. Currently: 250 aithromycin mwf, doxycycline 100mg BIDi, Tinii 1000mg/day pulses; Vit D2000 units, T4 & T3, 12mg Iodoral
Oh -- Pixie stix (maybe
Oh -- Pixie stix (maybe only U.S., maybe only N.E. Ohio, don't know) are also nearly pure glucose ("Dextrose" in the foods industry for reasons not adequately explored, but suspected to have something to do with Marketing's opinion on the similarity of "Glucose" and "Glue".)
Ron
On Stratton protocol for CFSi starting 01/06 (NE Ohio, USA).
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Ron
On CAPi for CFSi starting 01/06 (NE Ohio, USA)
Began rifampin trial 1/14/09
Currently: on intermittent
Pixie Stix? What about
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Pixie stix! The best!Â
Pixie stix! The best! Now I have an excuse to seek them out again!
The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi
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The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi
What are Pixie
What are Pixie Stix?
Ignorance is voluntary bad luck. Lauritz S. A true Viking
If you come to a fork in the road, take it. Yogi Berra
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3/9 Symptoms returning. Began 5 abxi protocol 5/9 Rifampin 600, Amoxicillini 1000, Doxyi 200, MWF Azith 250, flagyli 1000. Caffeine pills with AM abxi Began Sept 04 PPMSi EDSSi 6.7 Now good days EDSS 1
Rica--pixie sticks are a
Rica--pixie sticks are a nostalgic candy--a tangy but sugary powder encased in a straw. I recall biting off one end and pouring the stuff directly on my tongue-a taste explosion for sure. I always preferred purple sweettarts though--wish they would've made single packs of just the purple ones.
Ahhh, his reminds me of playing pickup kick ball at the vacant lot down the street--that's back when I could run like the wind--
Here's to running like the wind once again! And if pixie sticks might help toward that end, then I'll try 'em.
KK2 ;)
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Wheldon Protocol for rrmsi since Oct '05. Added LDN 4.5mg qhs Oct '07. All supp's. Positive IGGi's for Lyme Disease,Babesia, & Erlichiosis Sept. 2008. Currently: Mepron 750mg bid and Azithromycin 250mg qdi for Babesia.
And if pixie sticks might
And if pixie sticks might help toward that end, then I'll try 'em.
KK2,
Wow. Now that shows a level of commitment that should inspire all of us ;)
- Paul
Sorry, Sarah, Candyfloss is
Sorry, Sarah, Candyfloss is vile sucrose, friend of porphyriai -- http://www.popcornandcandyfloss.com/floss-demo.htm
Ron
On Stratton protocol for CFSi starting 01/06 (NE Ohio, USA).
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Ron
On CAPi for CFSi starting 01/06 (NE Ohio, USA)
Began rifampin trial 1/14/09
Currently: on intermittent
Of course it is! I was
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Glucosamine is available
Glucosamine is available much more cheaply as a powder than as a capi or tab. 1/2 tsp is around 2.5 grams, or about what we're supposed to take morning and evening. According to the reviews (bodybuilders down the stuff in doses 3x what we need) it's a "colorless, tasteless powder -- mix with water and drink."
Don't know if I have the same taster as a bodybuilder, but for the price difference, I'm game. Besides, once you've tasted Flagyli, how bad could the stuff possibly be?
Ron
On Stratton protocol for CFSi starting 01/06 (NE Ohio, USA).
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Ron
On CAPi for CFSi starting 01/06 (NE Ohio, USA)
Began rifampin trial 1/14/09
Currently: on intermittent
'I would be concerned about
'I would be concerned about oxidation (antioxidantsi do this readily when in liquid form)
Oh dear, I didn't know that, I've been taking a liquid vitamin and antioxidant mixture called Zell Oxygen and I can't find any info about your statement on liquid antioxidants Jim, would you elaborate or tell me where I can find out more about this please?
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Elinor ..... from England on CAPi, doxyi/roxi/tini for ME/CFSi/lyme borreliosis, positive Cpni and borrelia. Started Aug05, stopped Jan06, started again Sept 06.
In the US, glucose is often
In the US, glucose is often called "corn syrup" on product labels. This is justified by the facts that (a) it comes as a syrup, and (b) it's made from corn -- in particular, from corn starch. But of course the real reason is that "corn syrup" sounds better than "glucose" (or at least so the marketroids thought).
A similar product is "maltodextrin", which is basically the same stuff, except that the breaking down of the starch hasn't progressed so far, so it still consists mostly of polysaccharides. But your gut very quickly completes the task, so nutritionally it's equivalent to glucose.
Ooooo, thanks Norman, that
Ooooo, thanks Norman, that expands the range of "legal goodies excusable as cost-saving medicine" even more.
Ron
On Stratton protocol for CFSi starting 01/06 (NE Ohio, USA).
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Ron
On CAPi for CFSi starting 01/06 (NE Ohio, USA)
Began rifampin trial 1/14/09
Currently: on intermittent
Swiped this from Marie's
Swiped this from Marie's post and put it over here, too. Activated charcoal for cheap.
[quote]I've been using capsules, but in light of these volumes went looking for a larger amount and found this reasonable resource http://healingherbs.biz/products/charcoal.html. It appears that a person can buy 12 bags of 113 grams each for 49. Even at Jim's huge dose this would be about 6+ doses a bag....thus about 80 doses for $49.[/quote]
Ron
On Stratton protocol for CFSi starting 01/06 (NE Ohio, USA).
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Ron
On CAPi for CFSi starting 01/06 (NE Ohio, USA)
Began rifampin trial 1/14/09
Currently: on intermittent
Thanks ROn! marie
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On CAPi since Sept '05 for MSi, RAi, Asthmai, sciatica. EDSSi at start 5.5.(early cane) Now 6 (cane full time) Originally on: Doxyi 200, Azith 3x week, Tinii cont. over summer '07, Revamp of protocol in Summer '08 by Stratton due to functional loss; clarithromy
I just did a bunch of
Glucosamine has very little
Glucosamine has very little taste at all. I don't think most people will notice it's there in a small glass of water, and the powder is cheaper than pills by quite a bit.
It doesn't dissolve very quickly, though -- more of a suspension; stir and drink immediately, or you'll leave part of the dose in the glass.
Ron
On Stratton protocol for CFSi starting 01/06 (NE Ohio, USA).
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Ron
On CAPi for CFSi starting 01/06 (NE Ohio, USA)
Began rifampin trial 1/14/09
Currently: on intermittent
 Turns out that Brown Rice
Turns out that Brown Rice Syrup is pretty good -- very little fructose, lots of maltose without the malty flavor that I love but not everone does.
Ron
On Stratton protocol for CFSi starting 01/06 (NE Ohio, USA).
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Ron
On CAPi for CFSi starting 01/06 (NE Ohio, USA)
Began rifampin trial 1/14/09
Currently: on intermittent