Before I forget I have to tell you about Pulse 24. This was my first full Tinii pulse and what a shocker. By this means a total BREEZE!!! I felt like I was not even taking ABXi period! Seamed as if I just added another supp to my day. TWO YEARS with the dreaded “F” crap –I know you know what I’m talking about. The biggest breakthrough was absolutely NO bitching, complaining OR moodiness period! Eureka! If you are even thinking about the switch----JUST DO IT! I did feel like this was too good to be true but only time will tell. I’ve got the time as I have only one way to go and that’s up! Now the Vander-mall update: Start with my MRI. No new lesions and was totally unchanged. I felt good about it but was really looking for a high five, hugging … lesions shrinking kinda moment. But still it is an improvement over progression. My walks have been uneventful time wise, by this I mean I have gotten as fast as I can do my 25ft walk without jogging. Our boys even tried to do it and they are healthy teens and preteens. I won’t ruin the suspense on YouTube so you will have to follow my times to see where I bottom out. Dr. S agreed that’s probably the case. I wanted him to agree to give me a script for LDNi as I feel like I just have to pick up the pace a bit. Ken brought home the book “up a creek with a paddle” for me and a more analytical one “The Promise Of Low Dose Naltrexone Therapy: Potential Benefits in Cancer, Autoimmune, Neurological and Infectious Disorders” for himself. Both were informative for Ken and I. We talked about the caffeine. Okay, I do not want ANY arguing in my blog — got it?! 
Dr. S. wants me to ONLY use caffeine during my pulse and NOT any other time. His thinking is that this is the best time when the “bugs” are the most vulnerable. I can drink all the coffee I want that week ONLY. He also agreed to extend my pulses up to 10 days since I tolerate the Tini so nicely. I will probably only add a day each time as I still lose my libido that week and I really can’t go without. Ken just assures me that it’s all worth it; just don’t think about it. Another one of those concessions we all have to make 
Spring is just around the bend...think tulips and daffodils! Kim
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RRMSii since 3/84; SPMS since 2/05. Rifampin, Azithromycin, Tindamax Flagylii Copaxone, Avonex, Novantrone, Provigil, 5gm NACi, 5gm VitC, 5000IU VitD3 & more. EDSS 5.5 to 6.5. Can't wa
Kim, that's absolutely
Kim, that's absolutely wonderful! Keep going!
Nancy
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PPMSi-misdiagnosed 2001-diagnosed 2006. Also maybe Lyme. Minocycline 7 mos.- resulting bronchitis 5 months. Deserted by Hopkins neurology dept. and going to private m.d. out-of-plan. Wheldon CAPi 3/2/07 - Now (3/10) doing 100 doxyi; 125mg. azith; pulsing tin
Hi Kim, Thanks for your blog
Hi Kim, Thanks for your blog update on your switch to Tinidazole glad it is easier in the emotional improvments from bitchiness, less complaining and stable mood. I have been taking my tinidazole for longer periods as well I have taken it for as much as 21 days, often 14 days and sometimes 10 days with my intermittent CAPi and before I started this phase of treatment. Thanks for the description of how you have been instructed to take your coffee, as much as you want during our pulses only which is while on the tinidazole. I will give that some thought.
It sounds like you were able to get the rx for LDNi. I have been on it for almost a year now and have not reason to want to discontinue it. I'll be intrested in anything you may share about your use of it.
Your walks have been a good record of your improvments and yes I noticed that you had plateaued an did wonder if you had gotten them done to what most people can do time wise. Are you thinking of any other creative challenges? If you have every done any ballroom dancing as a couple, a regular practice session for the foxtrot and perhaps waltz could be interesting. The brain is an interesting organ and my hunch is that the control of it lies somewhere other than walking. Just a thought, as anyway I do love to dance and don't do enough these days.
Great report of no progress on you MRI, how often do they schedule those at Vandy?
Thanks again for sharing your news. And daffodils amazing. Currently we are having a mid-winter thaw and it is 45 degrees, much snow has melted and it wont last but from here on even the big storms melt off more quickly with the ever increasing daylight and radiant energy from it.
Louise
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6-07WheldonCAP CFS20+yr
(11-29-07 started Cholestyramine HS PRNi x 7d for porphyrin+endotoxinsi removal)
Check out Louise's Blog at; http://www.cpnhelp.org/blog/louise for the details of my treatment adventure!
Thanks Louise. I would love
Thanks Louise. I would love your update on LDN. have you improved since starting? Ken and I actually took dance lessons several years ago when we got married. We now do the wii fit at home in between my water aerobics classes (not the same day) its alot of laughs!
snow is heading our way now...okay, so we have a snowball fight intead of planting tulips
Kim
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RRMSi since 3/84; SPMS since 2/05. Rifampin, Azithromycin, Tindamax
FlagyliCopaxone,Avonex,Novantrone, Provigil, 5gm NACi, 5gm VitC, 5000IU VitD3 & more. EDSS 5.5 to 6.5. Can't waKim, I thought you were
Kim, I thought you were going to Vandermall next month! No new lesions is remarkable for someone with progressive MSi so that's cause for hugging in itself. Also no relapses since starting treatment and your undoubted improvements. I did have a few lesions disappear but they were very recent ones, right on the outside edge. No changes since then.
I think the ballroom dancing idea is a very good one, since it will retrain coordination and balance as well as the obvious. I think I ought to try it with David, one of the worst dancers ever. I think it might benefit us both!...............Sarah
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We really had a good and
We really had a good and positive trip. We had the best country cookin' ever at a place called Vittles.
I've typed up my notes at TIMS. The linked post covers:
1) Changes in ABXi on CAPi
2) Addition of LDNi
3) Caffeine use modified and explained
4) Bromelain
We have done a bit of reading about LDN and I just want to be clear that we see this as a way to protect many of the gains Kim has had. It's clear to us that ABXi is making a difference for Kim. We don't see any reason why therapies have to be mutually exclusive. Ken
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In pursuit of ABX
Don't Allow What You Know To Get In The Way Of What Might Be