Thanks to this web site, I was able to confirm my diagnosis of CPN
i and found a wonderful doctor who started me on the Weldon protocol. I started out using the suppliments and now I'm on doxy
i/100mgs per day. Thankks to this web site I was prepared for the symptoms to follow. OH BOY!! here I GO... just a couple of questions to help me along this journey. My eyes look like I've taken the red eye flight, they are dry,red, and painful. Is this normal?. Also, my toes are red and swollen. I just started taking charcoal today to possibly help with the build up of toxins. Any feed back would be a relief to the newbie.
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started Wheldon capii 4/21/08 for Cpni, CMV, EBVii, CFSii. Currently on: all supplementsii,Doxy200, added Azith.250mgs M/W/F on 6/30/08. Naci up to 1200mgs.as tol.Vit.B12 injections daily, cholest. prn. Start Tiniii. in Jan. if all goes well.
Oh yeah! The red eyes!
Oh yeah! The red eyes! Know them well. I've always taken it as an endotoxini reaction, but who knows. Now I seem to get it more from the NACi than the abxi. Try EmergenC also, helps if it's endotoxin, and charcoal too, just not together!
CAPi for Cpni 11/04. Dx: 25yrs CFSi & FMSi. Currently: 300mg BID Roxithromycin, Bactrim DS 2x/day, Tinii 1000mg/day pulses; Vit D2000 units, T4 & T3
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CAPi for Cpni 11/04. Dx: 25yrs CFSi & FMSi. Currently: 150mg BID Roxithromycin, Doxycycline 100mg BID, Tinii 1000mg/day pulses; Vit D2000 units, T4 & T3
A number of us have noticed
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Combined Antibiotic Protocol minocycline, azithromycin, metronidazolei for muscle pain, insomnia, interstitial cystitisi, sinus, disphonia, dry eyes, stiff neck, veins, thyroid, TMJ.
Jim - I thanks for the
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started Wheldon capi 4/21/08 for Cpni, CMV, EBVi, CFSi. Currently on: all supplementsi,Doxy200, added Azith.250mgs M/W/F on 6/30/08. Naci up to 1200mgs.as tol.Vit.B12 injections daily, cholest. prn. Start Tinii. in Jan. if all goes well.
I still get red eyes and
I still get red eyes and I've been on the protocol over a year! Not as severe as in the beginning, but still slightly red-rimmed! Yes... as Jim and the others say, it's part of the "fun". Keep taking that charcoal and lot's of vitamin C!
Welcome to our world!
Jeanneroz
Jeanneroz ~CPN diagnosed and started protocol 4/2007, also have HHV6, EBVi. CFIDSi/FM diagnosed: 6/07; Protocol: 200 mg/doxyi daily~ 250 mg AZITH M/W/F ~
1st Tinii pulse 4/17/08- 1 250 mg. tab for 2 days.2nd Tini pulse 5/24/08 1 250 mg. tab for 4 days.,supplementsi___________________________________________________________
JeanneRoz~CPNi diagnosed & started protocol 4/2007, also HHV6, EBVi. CFIDSi/FM diagnosed: 6/07; 100mg/doxyi/BID ~ 250 mg AZITH M/W/F ~
1st Tinii pulse 4/17/08- 1 250 mg. tab for 2 days. Pulse 5: 9/28/08, 250 mg TINI BID, 3 days. SupHi Horses12, EmergenC is
Hi Horses12, EmergenC is available at many local healthfood stores in the US and also at Walmart in the Pharmacy department for the best price that I can find locally!
Louise, CFSi. CPnPositive. BbPositive. WheldonCAP began6/24/07. NACi,Doxyi, Roxi,FullTiniPulses. Intermittent Cholestyramine,1-2packets, at bedtime,most often with pulses,and as needed, for Phorphoria & liposacaride Endotoxini Die-OffExperiences.
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Louise CFSi,CPNi+/Bb+(Lyme) Cholestyramine 1-2 pks @ HS for Porphyriai +fattyEndotoxins HS PRN, Wheldon CAPi 6/07,all supps, Doxyi 200QD, Roxi 300BID, Tinidazole 500 BIDx20day Pulses, VitD3-10,000IU,Iodoral25mg,SAM-e100mgQD+B-vits, Pyruvate3.75Gm at 1PM
Horses - I buy the
Horses - I buy the EmergenC at Walgreens or CVS near my house.
Daisy - Husband on CAPi 5/07. Roxyi, Diflucan, Rifampin, Bactrim DS, Mepron 4-6,
Prednisone,Novantrone, Doxyi, Azithromycin, Flagyli,Minoi___________________________________________________________
Daisy - Husband on CAPi 5/07. "When Going Thru Hell, Just Keep Going", Winston Churchill
Sounds normal to me. The
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zero negative sjogren's diagnosed 2/03, 200mg minocin daily, biaxin,plaquinel mwf, flagyli every 3 weeks.
Horses, It's so "normal,"
Horses, It's so "normal," I depend on it as the chief indicator of when my husband is experiencing bacterial die-off reactions. Show me a red, sandy-feeling eye, and I'll throw extra vitamin C and charcoal at it.
Joyce~caregiver-advocate in Dallas for Steve J (SPMSi). CAPi since August 06, Cpni, Mpn, B. burgdorferi, systemic candidiasis, EBVi, CMV & other herpes family viral infectionsi, elevated heavy metals, gluten+casein sensitivity.
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Joyce~caregiver-advocate in Dallas for Steve J (SPMSi). CAPi since August 06, Cpni, Mpn, B. burgdorferi, systemic candidiasis, EBVi, CMV & other herpes family viral infectionsi, elevated heavy metals, gluten+casein sensitivity.
Two years and 40 pulses on I
Two years and 40 pulses on I still get the itchy, stinggy, gummy eyes two days into the pulse. My feet are not as swollen now as they used to be but they still arn't right at times.
Michèle (UK) GFAi: Wheldon CAPi 1st May 2006. Daily Doxyi, Azi MWF, metroi pulse. Zoo keeper for Ella, RRMSi, At worse EDSSi 9, 3 months later 7 now 5.5 Wheldon CAP 16th March 2006
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Michèle (UK) GFAi: Wheldon CAPi 1st May 2006. Daily Doxyi, Azi MWF, metroi pulse. Zoo keeper for Ella, RRMSi, At worse EDSSi 9, 3 months later 7 now 6.5 Wheldon CAP 16th March 2006
well, this is quite
well, this is quite interesting.
I have been chalking up my gooey, bloodshot, itchy, swollen lids & hives to the allergies (which I have not been bothered much by for about 20 years. Last week I felt like I was getting a bad cold, my throat was sooooo itchy & into my ears. For the past 3 weeks I have been having a very difficult time getting any restorative sleep (with the sleeping pills) This kind of reminds me of my mono days in my 20's. I was dead dog tired & yet, could not sleep. the last 2 weeks I have been crashed about 5 days.
All this & coincidentally (or not) pulse timed!~
Horses, some of us use yaeyama chlorella sucessfully as well for toxin relief.
I like your name, back in the day, I was quite a successful horse woman. Lots of badges, trophys, & useful horse stuff won! A couple of my quarter horses were Champions! I jumped, did cross country, dressage, western etc. I had a good mare & she did 8 classes a day! Now that doesn't seem like much perhaps, but with warm ups, tack changes, more grooming & fussing; it was a big day for both of us!
get well soon, take your time.
CFIDSi/ME 26yrs, FMSi,
IBSi, EBVi, CMV, Cpni, chronic insomnia, Lymes, HME, Natural HRT peri-M, NACi 2.5 gm, 6-07 Doxy 200 mg day pm, Azith 375 mg M/W/Fday, Pulse#10 1000 mg 3 days & 750mg 2 days, 5-17-8___________________________________________________________
CFIDSi/ME 32 yrs, FMSi,
IBSi, EBVi, CMV, Cpni, H1, chronic insomnia, Lymes, HME, Natural HRT peri-M, NAC 3 gm, Full CAP 6-2-08, all supplementsi +Sea Kelp, Chitosan Pulse 16 1-4-09 1gm Flagyli/day-3 daysJoyce- your poor husband!
Joyce- your poor husband! Throwing charcoal and vitamin C at his already inflammed eyes? And that charcoal dust goes right under the eyelids and is so pesky to get out!
CAPi for Cpn 11/04. Dx: 25yrs CFSi & FMSi. Currently: 300mg BID Roxithromycin, Bactrim DS 2x/day, Tinii 1000mg/day pulses; Vit D2000 units, T4 & T3
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CAPi for Cpni 11/04. Dx: 25yrs CFSi & FMSi. Currently: 150mg BID Roxithromycin, Doxycycline 100mg BID, Tinii 1000mg/day pulses; Vit D2000 units, T4 & T3
Ahhh, Jim. That sounds
Ahhh, Jim. That sounds like you're speaking from real-life literal experience. Charcoal dust...in our carpet because Steve missed his mouth in the middle of the night and the dogs chewed on the capsules. Charcoal dust...coming out of my mouth like super smog. Charcoal dust...makes terrific black vomit in the midst of an early flagyli pulse. Lovely stuff.
Joyce~caregiver-advocate in Dallas for Steve J (SPMSi). CAP since August 06, Cpni, Mpn, B. burgdorferi, systemic candidiasis, EBVi, CMV & other herpes family viral infectionsi, elevated heavy metals, gluten+casein sensitivity.
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Joyce~caregiver-advocate in Dallas for Steve J (SPMSi). CAPi since August 06, Cpni, Mpn, B. burgdorferi, systemic candidiasis, EBVi, CMV & other herpes family viral infectionsi, elevated heavy metals, gluten+casein sensitivity.
What a an excuse for not
What a an excuse for not taking your charcoal, "The dog ate it!" Really, the same happened to my little white bichon-poo: black smudge all over his face! Doesn't wash out either. Like a baby chewing on an ink pen.
CAPi for Cpni 11/04. Dx: 25yrs CFSi & FMSi. Currently: 300mg BID Roxithromycin, Bactrim DS 2x/day, Tinii 1000mg/day pulses; Vit D2000 units, T4 & T3
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CAPi for Cpni 11/04. Dx: 25yrs CFSi & FMSi. Currently: 150mg BID Roxithromycin, Doxycycline 100mg BID, Tinii 1000mg/day pulses; Vit D2000 units, T4 & T3