Red Blood Cell Count

User login

Navigation

Support Cpnhelp!

Donations allow us to avoid advertising to keep the site clearly member and mission focused. and are used to pay for site maintenance. Any additional balance is held in trust for future needs or will be donated for research. We are not non-profit so it's not tax deductible. Donations and expenditures overseen by a committee of members.
Write your own amount to give

Syndicate

Submitted by Sunnivara on Mon, 2008-06-16 13:43.

So, I'm 5 months into abxi treatment with azi and one thing my doc and I have noticed is that my RBC keeps dropping each time we get blood work done. I am now officially below normal. The doc doesn't seem terribly concerned. She says it's not unusual for this to happen because of the system being so heavily taxed by infection and abxi treatment. But I haven't heard anyone else here mention that problem. I've been taking "blood builder" supplementsi but it doesn't seem to be keeping up. For the most part I've been holding up but sometimes I can really feel it (lactic acid burn and shortness of breath just walking up 1 flight of stairs) and it's starting to worry me. Anyone else had this problem?

___________________________________________________________
GFAi - asthmai, sinusitis/rhinitis, tendonitis, low back pain, hypothyroid. Started azi 1000mg/week Jan 9, '08. Increased azi to 250mg/day, added 20mg Benicar daily Mar 13, '08. First Flagyli i pulse started June 30, '08. Added Doxyi i 200mg/day Aug 16.

Asthmai, chronic

Submitted by Sunnivara on Mon, 2008-06-16 13:43.

Asthmai, chronic sinusitis/rhinitis, chronic tendonitis, hypothyroid. Jan 9, '08 - started azithromycin 1000mg/week. Mar 13, '08 - increased azi to 250mg/day, added 20mg Benicar daily.

___________________________________________________________
GFAi - asthmai, sinusitis/rhinitis, tendonitis, low back pain, hypothyroid. Started azi 1000mg/week Jan 9, '08. Increased azi to 250mg/day, added 20mg Benicar daily Mar 13, '08. First Flagyli pulse started June 30, '08. Added Doxyi 200mg/day Aug 16.

Login or register to post comments
Email this page

Sunni - My husband had

Submitted by Daisy on Mon, 2008-06-16 17:35.

Sunni - My husband had consistently low RBC's before he started CAPi. Now they are routinely in the normal range.

^{Daisy - Husband on CAP 5/07. Roxithromycin, Minocycline, Rifampin, Bactrim DS, Mepron, Prednisone, Novantrone, Doxyi, Azithromycin, Flagyli, Diflucan}

___________________________________________________________

Daisy - Husband on CAPi 5/07. "When Going Thru Hell, Just Keep Going", Winston Churchill

Login or register to post comments
Email this page

My RBCs were normal before I

Submitted by Sunnivara on Mon, 2008-06-16 18:32.

My RBCs were normal before I started abxi, although I'm not on CAPi. They've been going down steadily since starting azi. I'm supposed to start a pulse of flagyli next week. Maybe that will help ... or do me in. :O

Asthmai, chronic sinusitis/rhinitis, chronic tendonitis, hypothyroid. Jan 9, '08 - started azithromycin 1000mg/week. Mar 13, '08 - increased azi to 250mg/day, added 20mg Benicar daily.

___________________________________________________________
GFAi - asthmai, sinusitis/rhinitis, tendonitis, low back pain, hypothyroid. Started azi 1000mg/week Jan 9, '08. Increased azi to 250mg/day, added 20mg Benicar daily Mar 13, '08. First Flagyli pulse started June 30, '08. Added Doxyi 200mg/day Aug 16.

Login or register to post comments
Email this page

Sunni I

Submitted by farandwide on Tue, 2008-06-17 12:51.

Sunni

I haven't been keeping track of red blood cell count but my doc regularly reports on something that sounds related - iron levels. Mine are lower then normal but he shrugs each time he reports it as they were lower when we first begin monitoring things and it hasn't changed.

all my best

John

RRMSi/EDSSi was 4.5, was 4.???, now 5 on Wheldon Protocol (naci, doxycycline, azithromycin, metronidazolei) since 04/12/2006. Added Rifampin 2x150mg/daily on 08/19/2007. ~~Added INHi 300mg/daily on 03/17/2008~~ Stop

___________________________________________________________

all my best

John

RRMSi/EDSSi was 4.5, 5, now 6 on Wheldon Protocol (naci, doxycycline, azithromycin, metronidazolei) since 04/12/2006. Added Rifampin 2x150mg/daily 08/19/2007. ~~Added INHi 300mg/daily 03/17/2008~~ stopped 05/08

Login or register to post comments
Email this page

Sunnivara, I have had low

Submitted by nino pranzo on Wed, 2008-06-18 15:05.

Sunnivara, I have had low red blood cells count for a couple of years before I got acute Cpni infection. My idea is that I had a chronic Cpn infection that did not bother me too much but had gone down to the bone marrow, where the red cells are produced. After 3 years of abxi the count is improving. I take the occasion to ask if anybody can suggest for how long to take rifampin (I am now in the 10th day with not strong reactions). Should I have take doxyi instead as to give my liver a break? (though it seems in good condition). Nino: French Riviera, Cpn pneumonia june05 (misdiagnosed). Self diagnosed-treated. Now on Roxi 150mg bid,NACi, vitaminsi. Rifampin 300mg and Calc.Pyruvate.

___________________________________________________________
Nino: French Riviera, Cpni pneumonia june05 (misdiagnosed). Self diagnosed-treated. Now on Roxi 150mg bid, NACi 1200 to 2400, vitaminsi. Rifampin 300mg, calcium pyruvate 3 g.

Login or register to post comments
Email this page

Nino, Rifampin should be

Submitted by katman on Wed, 2008-06-18 16:44.

Nino, Rifampin should be taken without a break for months. I did 16 months at the beginning, taking it twice a day. It should be taken seriously because of the possibility of resistance whivh can happen pretty quickly with this amazing drug. Be sure to keep taking your NACi. Now that I am so much better, my plan is to take it again starting this fall when things are less busy.

Rica PPMSi EDSSi 6.7 at beginning - now 2. Began CAPi Sept, 2004 with Rifampin 150 mg 2xd, Doxyi 100 mg 2xd, added regular pulses Jan 2005. Jan 2006 switched to Doxy, Azith, cont. flagyli total 51 pulses NC USA

___________________________________________________________

Login or register to post comments
Email this page

RBC is going back up as of

Submitted by Sunnivara on Fri, 2008-08-01 17:18.

RBC is going back up as of the most recent labs. It's still only barely within normal range but at least it's heading in the right direction. Yay!

___________________________________________________________
GFAi - asthmai, sinusitis/rhinitis, tendonitis, low back pain, hypothyroid. Started azi 1000mg/week Jan 9, '08. Increased azi to 250mg/day, added 20mg Benicar daily Mar 13, '08. First Flagyli pulse started June 30, '08. Added Doxyi 200mg/day Aug 16.

Login or register to post comments
Email this page

YAY! A good sign!

Submitted by Daisy on Fri, 2008-08-01 18:33.

YAY! A good sign!

___________________________________________________________

Daisy - Husband on CAPi 5/07. "When Going Thru Hell, Just Keep Going", Winston Churchill

Login or register to post comments
Email this page

Red Blood Cell Count

Comment viewing options