Cpnhelp.org - Chlamydia Pneumoniae Treatment

My wife has Reynauld's disease (causes arteries to the hands to spasm and shuts down blood to the hands) which onset shortly after her initial bout with CF. A very good physician saved her hands with a nerve block and put her on L-arginine (along with norvasc) which he says causes the inner lining of the arteries to produce NO. This may be a good addition to the supplement protocol.  We're new here and will start the CAPi soon-after she completes a body cleansing protocol (to allow her to better deal with the porphoria) for the liver and gut. We've been dealing with this for 15 years and as a RN I see the clinical similarities. In the early days benadryl would relieve most of her pain( but it made her sleepy) this histamine release would explain its efficacy.

Hello and Welcome! A few thoughts on Raynaud's...

 

 

1.  I wasn't diagnosed with it until AFTER starting the CAPi.

 

 

 

2. I recently treated it with L-arginine/no flush niacini. It worked. But then, developed shingles, so had to stop! So far, it hasn't returned as severely as before. But my doctor warns me that the majority of his patients on L-arginine develop shingles, too.

 

 

I certainly wish your wife the best. And, it may be wise to consider that most people's symptoms increase, initially, when starting CAP.

 

 

--Minai

 

 

RRMS, diagnosed 2/04. NACi 4/06. Started Wheldon/Stratton regime 8/30/06. Doxycycline, 8/06, Azith, 10/06. Switched to Roxithromycin 11/06. Psuedo relapse/die-off with hospitalization 1/07. Gad-enhanced MRI of brain and spine shows NO NEW DISEASE ACTIVITY Restarted CAP with NAC and Doxy 2/07. LDN 4/07. Stopped NAC, started Roxi, again 5/07. Now on full doses of Doxy and Roxi. NAC, again, 7/07. 1st Tinidazole Pulse, 8/11/07. USA

Thanks for bumping this article up Jim K....

It reminds me that I guess I need to take more antioxidantsi even though I figured I had that part of the program all wrapped up.

I have been having temperature issues, super cold extremities, low body temps, very hard to warm up & even harder to keep warm.  This, of course, with the Troll Queen turettes episodes & malaise are pretty much "normal" as porphyria go.

I have found the glucose to be of more help for me.  I tried the charcoal & it didn't seem to work.  I have also done vitamin C flushes & they are not my favourite as I don't drink juice, just water.   Perhaps I need to try the charcoal again, Lord knows I bought enough of it on IHerb 3/1 deal.

Good luck for lwbell, so glad you are here with us as this site is critical for support & feedback.

Blessings

Ruth

CFIDSi/ME 25yrs, FMSi, IBSi, EBVi, Cpni, (insomnia - melatonini, GABA, tarazadone, temazepam, novocyclopine, allergy formula, 2 gm tryptophan), Natural HRT peri-M, NACi 2.5 gm, 6-07 Doxy 200 mg day pm, Azith 375 mg M/W/Fday, 8-21-07 1st pulse 1 X 250 mg Metroi

 I should mention that Trental, used for peripheral circulation problems, is also used by some of the doctors treating Cpni to counter endotoxini effects specifically.

For those who have little help from charcoal, it may be worth trying Questran (cholestyramine) which binds more specifically to fats and can be taken with meals unlike charcoal. It's a prescription. Like charcoal it can produce constipation. 

CAPi for Chlamydia pneumonia since 11/04. 25yrs CFSi & FMSi- Currently: 200 Doxycycline, 500mg MWF Azithromycin, Tinii pulses.

I am also going to look into glucose as charcoal is not working for me either and I am taking up juice as I have done c flush with water like Ruth and this was not my favorite either. That trental drug sounds like it may help me as I am again up with leg pain. On Wheldon protocol for MSi since April, 2006.  doxyi 200 mgs daily, zithromax 250 mgs 3x/ week , Flagyli Pulses start end Sept., LDN 2004

 I haven't even tried charcoal since I didn't fancy using stuff that I used for drawing in art classes or for keeping the water sweet in my water butt!

I use chlorella - the japanese kind - and find that it works very well for the purpose discussed here. I once used the Chinese kind and it didn't work as well as the Japanese one.

New Forest, UK. Progressive MSi dx 12/06 LDN 3/07 CAPi 6/07: Wheldon

Chlorella has the added advantage of not making you constipated. But for those who can take it in sufficient quantities activated charcoal which acts like a sponge has a proven track record. It is used in medical and veterinary circles to absorb toxic material that might have been ingested.

Michele (UK) GFAi: Wheldon CAPi 1st May 2006. Daily Doxyi, Azi MWF, metroi pulse. Zoo keeper for Ella, RRMS, At worse EDSS 9, 3 months later 7 now 5.5 Wheldon CAP 16th March 2006

 Can someone post the references for chlorella absorbing toxic's? I have taken it in varying quantities and can't say for sure whether it does anything for porphyrins, although others here swear by it. I'd like to see more about what it does and doesn't absorb.

CAPi for Chlamydia pneumonia since 11/04. 25yrs CFSi & FMSi- Currently: 200 Doxycycline, 500mg MWF Azithromycin, Tinii pulses.

^{Bump for all the new people reading here lately.} 

^{Daisy - Husband on CAPi 5/07.   Roxyi, Diflucan round three 4-4, Rifampin, Bactrim DS, Mepron 4-6, Prednisone, Novantrone, Doxyi, Azithromycin, Flagyli, Minoi}

Good Job,

well I have just finished up my 5.5 day pulse of 750 mg a day of Flagyl/metroi.  The "toxic talk" snuck up on me yesterday!  I was a little irritable when we went to Costco, my spouse loves to meander around & take forever, I turn around & he is gone, with the cart & I am standing with the grocerys in my arms!

Then, something happened with Doug's work & then, the Troll Queen reared her ugly head.  She decided to grace me with a little anger toxic talk!  Of course, my spouse was, ya honey, hmmm, ya, ah ha.  Then, the air came out of me, I walked to the kitchen & downed a glass of water with 2 envelopes of Emergen-C

Haaaaaaa, that's better!  For the most part, the Chitosan, C & all my supplementsi were handling things pretty good, just needed to throw in some more C's along with a little glucose.  Better!

 

CFIDSi/ME 25yrs, FMSi, IBSi, EBVi, Cpni, (insomnia - melatonini, GABA, tarazadone, triazolam, novocycloprine, allergy formula, 3 gm tryptophan), Natural HRT peri-M, NACi 2.5 gm, 6-07 Doxy 200 mg day pm, Azith 375 mg M/W/Fday, Pulse8 750mg 4day,375X1 3-24-8