Cpnhelp.org

Thanks for sharing this, Daisy. Have wondered whether or not EMFs have contributed, too. Was having horrible attacks of trigeminal neuralgia, before I started CAPi. And, wondered why they were happening more when I was attempting to sleep in my bed but not on our sofa. The gaussmeter I purchased seemed to provide some answers. There was a stereo on a table at the head of the bed that gave very, VERY high readings. Call me a nut for believing that there is something to this, too, but am beyond caring

 

--Minai

 

 

 

RRMSi, diagnosed 2/04. NACi 4/06. Started Wheldon/Stratton regime 8/30/06. Doxycycline, 8/06, Azith, 10/06. Switched to Roxithromycin 11/06. Psuedo relapse/die-off with hospitalization 1/07. GAD-enhanced MRI of brain and spine shows NO NEW DISEASE ACTIVITY. LDNi 4/07. 1st Tinidazole Pulse, 8/11/07. Keflex 2/08. IV Rocephini 3/08. IV Clindamycin 5/08. USA

Minai - Interesting about the stereo.    By the way - which gaussmeter did you purchase?  I have looked at a few but haven't bought one yet.

How are you feeling these days?  Better I hope!

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Daisy - Husband on CAPi 5/07.  "When Going Thru Hell, Just Keep Going", Winston Churchill

Also found it interesting, at that time, that my first bout of optic neuritis began when we were watching our friend's older, big screen TV. Wish I'd had my gaussmeter, then. HERE is who I purchased the gaussmeter from. It's an older version of their TRIFIELD meter.

 

Thanks for asking, Daisy...I wish that I could say that I am better. But, just started receiving home Nursing and PT care, if that says anything.

 

--Minai

 

RRMSi, diagnosed 2/04. NACi 4/06. Started Wheldon/Stratton regime 8/30/06. Doxycycline, 8/06, Azith, 10/06. Switched to Roxithromycin 11/06. Psuedo relapse/die-off with hospitalization 1/07. GAD-enhanced MRI of brain and spine shows NO NEW DISEASE ACTIVITY. LDNi 4/07. 1st Tinidazole Pulse, 8/11/07. Keflex 2/08. IV Rocephini 3/08. IV Clindamycin 5/08. USA

Thanks Daisy and Minai for the topic and interesting Links.  I to  have a hard wired house and seldom use my cell phone, never giving out the number to anyone by family and they seldom use it ( since there are no longer pay phones seems you need to have something for emergencies these days!) 

I'm adding this topic to my list of need to follow.

Louise

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Louise  CFSi,CPNi+/Bb+(Lyme) Cholestyramine 1-2 pks @ HS for Porphyriai +fattyEndotoxins HS PRN, Wheldon CAPi 6/07,all supps, Doxyi 200QD, Roxi 300BID, Tinidazole 500 BIDx20day Pulses, VitD3-10,000IU,Iodoral25mg,SAM-e100mgQD+B-vits, Pyruvate3.75Gm at 1PM

Interestingly, my first bout of optic neuritis was when I was operating a one hour photo finishing lab. I spent a lot of time on machines and really relied on my eyes. It was the downfall of that career direction because after that illness I had residual color loss and professional photo finishing requires accurate color interpretation. Calibrating the machines requires precise tonal recognition. I wonder if the machines themselves had something to do with the illness.

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SPMSi< Supplementsi & NACi, Doxyi 200 mg, Azith 250 mg 3X/wk, most suppliments, currently Flagyli 1500 mg x 4 days once per month

TB, very interesting observations. In my case I've faced an imperceptible loss of colour in my eyesight. Imperceptible because the only time I notice it is when I take hydrocortisone and suddenly colours appear bright and vibrant (its not like they appear dull normally). 

In my case the only culprit is cpni. I wonder how many others have observed colour loss due to cpn.

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Hunter: Don't think - experiment

Ella has had several episodes of loss of colour perception in the past 30 months, often precursing other MSi symptoms.   It was a point of curiousity for her neurologist at the time of her devastating relapse of 2006.   He rushed off to find a colour blindness test and discovered a marked difference between her right and left eye.   Her left eye was practically colour blind.   She also sometimes suffer a greying effect in both eyes when experiencing other MS symptoms.  

These  symptoms are not as bad as they had been in the past.... So probably reducing the Cpni infection is responsible for this improvement. 

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Michèle (UK) GFAi: Wheldon CAPi 1st May 2006. Daily Doxyi, Azi MWF, metroi pulse. Zoo keeper for Ella, RRMSi, At worse EDSSi 9, 3 months later 7 now 6.5 Wheldon CAP 16th March 2006

Todybear,

While working at the one hour photo lab, might you have been unwittingly exposed to Toluene?

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Wheldon Protocol for rrmsi since Oct '05.  Added LDN 4.5mg qhs Oct '07.  All supp's.  Positive IGGi's for Lyme Disease,Babesia, & Erlichiosis Sept. 2008.  Currently:  Mepron 750mg bid and Azithromycin 250mg qd for Babesia.

Kitkat, it's highly unlikely about eh Toluene after reading about it and what it is. I would have been exposed to lots of chemicals over the three years though. The chemicals that are used in the developer bath tanks and the fixing chemicals. I don't know what was in them of course and we always tried to wear gloves but of course that is not fool proof.

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SPMSi< Supplementsi & NACi, Doxyi 200 mg, Azith 250 mg 3X/wk, most suppliments, currently Flagyli 1500 mg x 4 days once per month

For me, the loss of color perception episodes have been similar to Ella's. Coinciding, with MSi symptoms and pseudo-relapse.

 

Also, my last career was as an AutoCAD drafter/designer in the Civil Engineering field...talk about working in EMF city! My feet were constantly going numb, under my desk. And, I had thought the symptoms were only that of poor circulation. Little did I know...

 

--Minai

 

RRMSi, diagnosed 2/04. NACi 4/06. Started Wheldon/Stratton regime 8/30/06. Doxycycline, 8/06, Azith, 10/06. Switched to Roxithromycin 11/06. Psuedo relapse/die-off with hospitalization 1/07. GAD-enhanced MRI of brain and spine shows NO NEW DISEASE ACTIVITY. LDNi 4/07. 1st Tinidazole Pulse, 8/11/07. Keflex 2/08. IV Rocephini 3/08. IV Clindamycin 5/08. USA

I did a search on electromagnetic fields on CPNi/help, and the only thing that came up was this, or have I missed something?

If thiis topic hasn`t been acknowledged yet, I would urge you to do a search om "electromagnetic fields" where yoou will find lots and lots of, mostly scientifically verified, information. 

 

Also take a look att geopathic stress, not so scientific, but true never the less.It was harder to find an adress there, but this one might be useful:

www.healthyandwise.co.uk/geopathic.htm.

Electromagnetism is about  the electrosmog we are surrounded by, and what it does to us and our health. .  

The geopathic lines  can cause a variety of problem:s. From insomnia to cancer. You should especially look out for where Currylines cross , the same goes  for Hartman lines. You should not place your bed iin such a location. I have done it, and it took me twenty years of repair work, beforeI I got back to normal again.

Risking to be kicked out of the list, I just had to voice my opinion. I hope, that at least some of you will give it a try and keep an open mind about it.. 

I have worked with different kinds of  alternative medicine for 30 years, Acupuncture, Qigong,, Kinesiology and Healing among other things, and I have seen how negative energy affects the body.

Good luck to all of you. I admire your courage and your persistencei.

else- as this is the "off topic musings" forum no one gets "kicked out" for posting. I've been involved in alternative healing methods also for 25 years, including energetic healing techniques. All of these are helpful, but none of them really got at the Cpni despite all the theory. Still, without the energy work I would have had a much harder time, and this kind of work realy helped me to tolerate side effects of treatment, especially liver toxicity from porphyriai. Good stuff, but not sufficient.

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CAPi for Cpni 11/04. Dx: 25yrs CFSi & FMSi. Currently: 150mg BID Roxithromycin, Doxycycline 100mg BID, Tinii 1000mg/day pulses; Vit D2000 units, T4 & T3

Hi Daisy, I too continue with a home that we had hard wired by design in 2005.  It was and additional expense at the time of construction and I am glad that I insisted.  Last year I went out to find a new wired phone for yet another of the many outlets!  I realized that the options were becoming less and less!  Have thought of developing a hobby of collecting and reselling older phone.   Now with these reports making it higher on the "News" a few folks may begin to get it and start looking to convert to retrofit and the usage of older hardwired phones.

Once again I am in the minority!   Again thanks for the back porch post.

Louise

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Louise  CFSi,CPNi+/Bb+(Lyme) Cholestyramine 1-2 pks @ HS for Porphyriai +fattyEndotoxins HS PRN, Wheldon CAPi 6/07,all supps, Doxyi 200QD, Roxi 300BID, Tinidazole 500 BIDx20day Pulses, VitD3-10,000IU,Iodoral25mg,SAM-e100mgQD+B-vits, Pyruvate3.75Gm at 1PM