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RA: What kind of reactions to expect?

Submitted by blankena on Tue, 2008-10-21 14:46.
I've had RAi for 33 years. Able to keep relatively under control until recently. My disease has always been about inflamation. I don't test positive for the RA factor. Don't want to use Enbrel or those other drugs if can avoid. Tested positive for cpni via Quest labs. On CAPi for 2 weeks. Swelling of joints is worse. Some strange numbness in hand and as the day goes on can't move 1 arm. No flu like symptoms. Does this sound normal? What else can expect?

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Beth -mom of 2 beautiful girls one who I suspect is positive CPNi;RAi 33 yrs tested positive for CPN; Supp for 12 mos; CAPi started 10/6/08 Doxyii 100mg,Azith 250mg MWF, NACi 1200mg 10/20/08 Doxy 200mg, 10/27/08 NAC 2400mg ; pulse #2 12/05/08

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Welcome to our site! Read

Submitted by katman on Tue, 2008-10-21 14:54.
Welcome to our site! Read the Getting Started tab at the top and Michele will send you a messae if she hasn't already. If you have tested positive, your work is cut out and laid before you. We here are among the most and least fortunate people on earth and you are here, therefore you are fortunate, too! Have you begun NACi? A signature will help everyone to know about you. (My arthritis is ALL gone - I am 68 years old, I'm supposed to be arthritic!).

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Rica PPMSi EDSSi 6.7 at beginning - now 2. Began CAPi Sept, 2004 with Rifampin 150 mg 2xd, Doxyi 100 mg 2xd, added regular pulses Jan 2005. Jan 2006 switched to Doxy, Azith, cont. flagyli total 55 pulses LDNi Rifampin 8/08 again NC USA

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Yes, started NACi a week

Submitted by blankena on Tue, 2008-10-21 15:35.
Yes, started NACi a week later than the antibioticsi. My Dr didn't advise me but reading through on the site, I knew it was vital. I tried to add a signature. Was having some problems with the site.

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Beth -mom of 2 beautiful girls one who I suspect is positive CPNi;RAi 33 yrs tested positive for CPN; Supp for 12 mos; CAPi started 10/6/08 Doxyi 100mg,Azith 250mg MWF, NACi 1200mg 10/20/08 Doxy 200mg, 10/27/08 NAC 2400mg ; pulse #2 12/05/08

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Hi Beth,Welcome!   Glad to

Submitted by Red on Tue, 2008-10-21 22:02.

Hi Beth,

Welcome!   Glad to see you on the site (although sorry to hear about your illness).   Your new symptoms don't really sound out of the ordinary.   A list of many of the symptoms you may encounter can be found here:

http://www.cpnhelp.org/reactions_and_remedies

Be sure to read up on secondary porphyriai and all the necessary counter measures.   A good start page for this can be found in the Handbook from the tab at the top.

Hang in there.   Hopefully you'll start noticing improvement in only a few short months!

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Treatment for Rosaceai

  • CAPi:  01/06 - 07/07
  • High-Dose Vit D3, NACi & FIRi Sauna Only:  07/07 - 11/08
  • Intermittent CAP, High-Dose Vit D3:  11/08 - Present

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Yes, you're 'normal'. When

Submitted by MacKintosh on Wed, 2008-10-22 19:01.
Yes, you're 'normal'. When the meds start to do their job, inflammationi is the result of the combat between the bacteria and the antibioticsi. It subsides, but you WILL have reactions at the site of cpni infection. And that's exactly what you want. That means it's working.

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The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

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