RA: What kind of reactions to expect?

I've had RAi for 33 years. Able to keep relatively under control until recently. My disease has always been about inflamation. I don't test positive for the RA factor. Don't want to use Enbrel or those other drugs if can avoid. Tested positive for cpni via Quest labs. On CAPi for 2 weeks. Swelling of joints is worse. Some strange numbness in hand and as the day goes on can't move 1 arm. No flu like symptoms. Does this sound normal? What else can expect?
Welcome to our site! Read the Getting Started tab at the top and Michele will send you a messae if she hasn't already. If you have tested positive, your work is cut out and laid before you. We here are among the most and least fortunate people on earth and you are here, therefore you are fortunate, too! Have you begun NACi? A signature will help everyone to know about you. (My arthritis is ALL gone - I am 68 years old, I'm supposed to be arthritic!).

3/9 Symptoms returning. Began 5 abxi protocol 5/9 Rifampin 600, Amox 1000, Doxyi 200, MWF Azith 250, flagyli 1000 daily. Began Sept 04 PPMSi EDSSi 6.7 Now good days EDSS 1 Mind, like parachute, work only when open. Charlie Chan  In for the duration.&am

Yes, started NACi a week later than the antibioticsi. My Dr didn't advise me but reading through on the site, I knew it was vital. I tried to add a signature. Was having some problems with the site.
Beth -mom of 2 beautiful girls one who I suspect is positive CPNi;RAi 33 yrs tested positive for CPN; Supp for 12 mos; CAPi started 10/6/08 Doxyi 100mg,Azith 250mg MWF, NACi 1200mg 10/20/08 Doxy 200mg, 10/27/08 NAC 2400mg ; pulse #2 12/05/08

Hi Beth,

Welcome!   Glad to see you on the site (although sorry to hear about your illness).   Your new symptoms don't really sound out of the ordinary.   A list of many of the symptoms you may encounter can be found here:

http://www.cpnhelp.org/reactions_and_remedies<

Be sure to read up on secondary porphyriai and all the necessary counter measures.   A good start page for this can be found in the Handbook from the tab at the top.

Hang in there.   Hopefully you'll start noticing improvement in only a few short months!

Treatment for Rosaceai<

  • CAPi:  01/06-07/07
  • High-Dose Vit D3, NACi:  07/07-11/08
  • Intermtnt CAP, HDose Vit D3:  11/08-01/09
  • HDose Vit D3, Mg, Zn: 01/09-
Yes, you're 'normal'. When the meds start to do their job, inflammationi is the result of the combat between the bacteria and the antibioticsi. It subsides, but you WILL have reactions at the site of cpni infection. And that's exactly what you want. That means it's working.

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

Comment viewing options

Select your preferred way to display the comments and click "Save settings" to activate your changes.