Quick and Dirty MS survey

The same thing for MSi CAPi users. Please don't take the survey if you have not been diagnosed with MS, and only take once!

http://www.cpnhelp.org/UCCASSv1.8.1/index.php

It's #7 on the list.

Results are public, and can be filtered to see responses of subsets of users. No personal identifying info is taken or required.

Direct link to current results.

Jim, I had to answer 80%

Jim, I had to answer 80% improvement on CAPi because there was no option between 80% and 100%! If asked, I'd actually say 95%.

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems.  Mohandas Gandhi

 Oh well, it is a quick and

 Oh well, it is a quick and dirty one! I'll change it for future folks, but can't alter the one's already in.

CAPi for Cpni 11/04. Dx: 25yrs CFSi & FMSi. Protocol: 200mg Doxyi, 500mg MWF Azith, Tinii 1000mg/day pulses; Vit D1000 units, Cytotec 100mg, Plaquenil 100mg, Magnascent Iodine 12 drps/day, T4 & T3

Jim, I couldn't answer the

Jim, I couldn't answer the questions because 1) I might have had problems since birth -- do I just count it from when I started limping or 5 years before that when my stamina decreased. 2) I have no idea of the degree of my impairment. That's such a hazy question and who am I to compare myself to? Nor do I know how much I've improved since I'm in worse shape energy-wise than ever. Too quick and dirty for my clean incisive mind! But thanks for trying.

PPMS-misdiagnosed 5 years-diagnosed last spring. Minocycline 7 mos.- resulting bronchitis 5 months. Talked Hopkins neuroi. into: HRT (estriol and progesterone as neural protectant re Voskuhl,UCLA).Wheldon CAPi 3/2/07 - 200 doxyi; azith MWF. Rockville,Md.

As you say Jim, a quick and

As you say Jim, a quick and dirty poll, but it however imprecise it is it will give us an idea of the number of people seeing some improvement or not.  

Michele (UK) GFAi: Wheldon CAPi 1st May 2006. Daily Doxyi, Azi MWF, metroi pulse. Zoo keeper for Ella, RRMS, At worse EDSSi 9, 3 months later 7 now 5.5 Wheldon CAP 16th March 2006

 Exactly, Michele! I knew

 Exactly, Michele! I knew that lot's of folks hate the imprecision of these things. Artile, just answer "as best you can." As you are in the early phases of the CAPi, your responses are important, even if they say that you are worse than you began. Answer the "degree of functional impairment" question according to how much it affects your own functioning in day to day life on the average (not compared to someone else), ie, no affect, a slight affect, mild affect, moderate ( I usually see this as the point at which the affect is requiring some kind of compensation for me), high (I can function, but barely), severe (I'm incapacitated). 

CAP for Cpni 11/04. Dx: 25yrs CFSi & FMSi. Protocol: 200mg Doxyi, 500mg MWF Azith, Tinii 1000mg/day pulses; Vit D1000 units, Cytotec 100mg, Plaquenil 100mg, Magnascent Iodine 12 drps/day, T4 & T3

Quick & dirty is the way to

Quick & dirty is the way to go! Strangely I couldn't view the results of the MS survey but was allowed to view results of CFSi survey.  

CFS since 2001. Infected CPni Jan 2006. Started CAPi March 2007.
Currently: 500mg Azithro MWF, 200mg doxyi every day. 4 Pulses done.

Comment viewing options

Select your preferred way to display the comments and click "Save settings" to activate your changes.