QUESTION????

I am 25 years old and have an active lifestyle. I have been feeling sick and tired for a few years now. I have been to the dr. about it and eventually they act like I am a hypochondriac because all my blood tests always turn out fine and they tell me nothing is wrong with me. In May I got really dizzy, weak, tired, sick to my stomach, Short of breath, squeezing chest pain, arms and legs hurting...I ended up going to the emergency room, which I have never done in my life. There, they did heart tests and blood tests again and told me I was  fine I was just hyperventilating. I have been seeing an internal medicine specialist and right now I am taking Vitamin Di because I am low on it and Levothyroxin to see if it helps. I am sick all the time and constantly want to sleep.

My question is: Do these symptoms at all line up with CPNi. I've seen a few posts that sound similar. If yes, how do I present this to my dr?

Thanks

Yes, the symptoms sound appropriate. Problem is, they could be appropriate to a few other maladies, but if you've been tested for heart diseasei, lung disease, arterial disease, etc., then you should now ask for a CPni test. Make sure the lab test requested is for chlamydia PNEUMONIAE, not chlamydia trachomatis, the stdi.

 You can also get yourself some N Acetyl cysteine and test yourself with that. Start with 600-1200mg, and see if you have 'flu-like' symptoms. If your eyes water, or your temp fluctuates, or you feel like you're coming down with the flu or a cold, you can be fairly well assured you have a cpn infection.

By the way, formal testing is hit and miss. A positive says you have a cpn infection. A negative is not necessarily accurate, as this disease hides INSIDE the cells and isn't easily found by normal 'antibody' tests. The body doesn't generate much in the way of antibodies when a bacteria is hiding INSIDE the cells.

If you have a sympathetic dr (doesn't sound like it), you can print out a bit of info from the 'doctors pages' here and take that with you, for starters.

Otherwise, post here and ask if anyone can refer you to a nearby doctor. Then, watch your private messages for responses.

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

You are not a hypochondriac.... who knows your body better than you?  Yes, and as Mack mentioned  if you post (either in your profile or publicly) a general idea of where you may be searching for a doctor in the US, someone may send you a doctor's name privately.  As many of us here know, it can be very frustrating finding one. 

Definitely try the NACi test.  Also, you may try searching for a functional or holistically-oriented  doctor -- they look for the cause of problems not just a "disease" that fits their insurance codes.  Or, as some others have done here you could try a Fibro and Fatigue Center <-- they run extensive testing, which is initially out-of-pocket (your insurance may reimburse you for a percentage) and it is my understanding it can be quite expensive; but, at least they do the extensive viral and bacterial testing which other doctors may not.   

Hang in there....

 

 

JeanneRoz ~ DXi'd w/ CPNi 4/2007; 6/07 -"officially" dx'd w/CFIDSi/FM; also: HHV6, EBVi, IBSi-C, 100 Doxyi:BIDi<; 500 mg Biaxin BIDi; Tindamax Pulses, B12 shots, ERFA Dessicated Thyroid,Cortef, Iodoral 25 mg, Vit D-6,000 uni

Agordon18,  I was one of those diagnosed at one of these centers that Jeanneroz mentioned above;

http://www.fibroandfatigue.com/treatment-center-locations-and-contact-information.html< 

All of my extensive lab workup was covered by my insurance except for my copay.   When I tested positive for C.Pn. they started me on Doxyi,  I then decided to find a provider that was less of a drive for me.  And that took me several tries before I located one in my state that was willing to follow the Wheldon Protocol with me.     

I found my way to this website because I was trying to find out more about C.Pn. through a Google search.   I was most fortunate.    Many people drive hours for treatment or fly cross country to locate a provider.   Wishing you luck in your search for treatment.    Louise

  • CAPi(TiniOnly): 06/07-02/09 for CFSi<
  • MethylationProtocolSupplements: Started08/08
  • Intermtnt CAP: 02/09-02/10
  • Full MethylProtocol & LDNi 02/09
  • Off CAP: 02/10, cont LDN & MethlyProtocol support
  • <
Be sure to check the tick borne infectionsi. I have been treating for five years for Cpni and Mycoplasma Pneumoniae with the CAPi. Last December I had positive tests for Lyme and Bartonella. The antibioticsi I was taking for Cpn apparently did not get all of these infections. Some of your symptoms sound like Bartonella. The chest pressure and shortness of breath. Look at your history and see if you may have had any exposure to fleas or ticks. Tests are not always accurate. Igenex testing is supposed to be the gold standard. If you find a doctor who deals with Lyme and co-infections, they may be able to interpret your symptoms. Sometimes this is the only way to see what infection is active at the time. In my case, I was building up a nice load of Cpn and Mycoplasma and picked up Bartonella along the way. This weakened my immunei system. Then Lyme hit and I went over a cliff. Antibiotics used for Cpn really did help me but there is a small population of bugs that lingers. Taking another approach with a naturopath. She has me on Byron Whites A-Bart formula for the Bartonella. Only time will tell if all of this will be effective. You might also look at boosting your immune system. Olive leaf extract,Transfer Factor and Lauricidin may help. You are young so you have that in your favor. Raven

Feeling 98% well-going for 100. Very low test for Cpni. CAPi since 8-05 for Cpn/Mycoplasma P.,Lyme, Bartonella, Mold exposure,NACi,BHRT, MethyB12 FIRi Sauna. 1-18-11 begin new treatment plan with naturopath

Your symptoms would fit a Cpni diagnosis, for sure.  But take the NACi test that the others suggested above.

It's interesting that you are on Levothyroxin.  Did you get a thyroid test that showed something?  More importantly, is it helping? 

Started CAPi for Cpni on 11/14/10 - Per my doctor, paused Abxi 5/18/13 - NACi, T3, St Johns Wort, B-complex, Vit C, Vit D3 (8,000/day), Vit E, Astragalus, Chlorella, Chelation with Alpha Lipoic Acid">i. Started Buhner protocal (2nd edition) on 8/30/16.

Here's a website that might help you figure out what is causing your health issues:  http://chronicfatigue.stanford.edu/<

Best, Timaca

on valtrex 500 mg tid

http://whispersfromthefather.me/<

 

 

 

Or perhaps, 

Chronic Fatigue Sydrome Article ;  Chlamydia Pneumoniae in Chronic Fatigue Syndromei<i< and Fibromyalgiai<i<

http://www.prohealth.com/library/showarticle.cfm?libid=12763<

Oh yes, thanks LLeach for providing us the link that I just copied that you left in the comment on that previous link above, the stanford one with the token mention of CPNi as a causative infective bacteria in chronic fatigue situations.    A penny for each time the poster and creator of the link it will us it this way.   Againg LLeach thanks for the link that can be added frequently as needed to provide another perspective quickly and just as easily.   

  • CAPi(TiniOnly): 06/07-02/09 for CFSi<
  • MethylationProtocolSupplements: Started08/08
  • Intermtnt CAP: 02/09-02/10
  • Full MethylProtocol & LDNi 02/09
  • Off CAP: 02/10, cont LDN & MethlyProtocol support
  • <

Thank you all for your suggestions. I'm on the Levothyroxin because my symptoms match up extremely with hypothyroidism, but the blood tests show nothing. We are trying it to see if it helps. I just started a couple weeks ago and go back. I'm just trying to find some reason for the way I feel. :(

Where can I get teh NACi? I live out in the middle of nowhere. :) I drive two hours to go to the dr. right now. 

You can use IHerb.com, but I found my local Walgreens had it on the shelf last time I shopped there.

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

Levothyroxine: If part of your problems are to do with hypothyroidism, it might be useful to know that some people take up to 3 years to adjust to thyroid medication. That's how long it took for me. It takes up to 2 weeks for the full effects from Levothyroxine [T4]. If you don't process it well Liothyronine[T3] can be prescribed. It only takes 2 hours to feel it's effects. If 10mcg makes you hyperactive or shakey or you have a racing pulse you can be fairly sure that's not the problem.

I'd had a sluggish thyroid for decades, initiated by taking birth control pill in the 1960s [very heavy doses back then] before I developed Lyme Disease  along with very obvious hypothyroid symptoms. Until Lyme started I had plenty of energy but could only eat half as much as a normal person, otherwise I gained weight.

Just a few clues that might help....

Clare

Like MacKintosh said, your symptoms can indicate a number of things, not just Cpni

You can start by eliminating the easy stuff.  For example, Have you gained weight? Do you drink more than you used to? Do you eat a balanced diet? Do you get enough sleep?

Eat right, exercise and get enough sleep.  It may clear up your problem,  (Those changes along with a daily vitamin "cured" my son's benign essential tremor).  If not, then you can point to these things as evidence you're serious about your health, so your doctor needs to be serious about it, too.

 

CAPi for M.S. 8/2007 - 3/2009.  Twentieth pulse metronidazolei + INHi completed 3/12/2009.  Intermittent treatment thereafter until 11/20/2009.  

A number of us here are on liothyronine (T3) as Hopeful mentioned above.

My understanding is that in decades past that doctors would treat hypothyroidism based on symptons alone.  Nowadays, doctors like to rely on blood tests and thus some people have thyroid hormone issues not detected by the standard tests go untreated.

Below is a cursory summary of Dr. Powell's theory on thyroid hormone imbalances that you might find interesting:

http://www.fmtlc.com/treatment.html< (see #2 Hormones)

Started CAPi for Cpni on 11/14/10 - Per my doctor, paused Abxi 5/18/13 - NACi, T3, St Johns Wort, B-complex, Vit C, Vit D3 (8,000/day), Vit E, Astragalus, Chlorella, Chelation with Alpha Lipoic Acid">i. Started Buhner protocal (2nd edition) on 8/30/16.

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