Pulse #41

Hi folks, pleased to say that Terri completed her 41st pulse yesterday, improvements are still coming slowly but more importantly they are staying with us.The pulses are much easier now but it is still apparent that the Tinni is still doing its job. Tiredness and extra inflamation during or after pulsing is now down to just a few days and is so much easier to cope with.

We got to the optitians about a month ago, the first time in four years due to obvious mobility problems, although we could have made it at the back end of last year, we missed the window where we had a more than even chance of dry weather up here on Skye and so left it until this year, the fact that Terri didn't feel that her sight was too bad also helped.

Anyway, the good news is that Terri's eye's had not altered since her last test which is fantastic considering that she needed stronger lenses at every other test over the last 25 years.

Dexterity continues to improve as does conversation and humour. Before we get Terri out of bed on a morning she will exercise her legs, range of movement is improving as is strength.

Terri still can't quite straighten her right leg fully when stood but she is gaining more and more confidence in her balance, which might be improving but it is still too soon to tell for sure yet.

In the medium term we are looking at getting some private physio, probably after we get back down to England as we are so short of space here.

So far Tinni has been pretty easy with no side effects other than the desired effects, does anyone see any merit in changing to Metroi or should we just stick to what is working?

 

Best wishes


TandT


  


 

Comments

I used metronidazolei

I used metronidazolei exclusively, but I agree with Sarah.  If it's working, stay with tinidazole.  At some point, you might want to change it up, just to see if it will do more, but right now tini is doing the job pretty admirably.

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

Thanks Mac, your comments are

Thanks Mac, your comments are very much appreciated.


Best wishes


TandT

Optic Neuritis in teens. Diagnosed spmsi in 2001.

Started suppliments in Feb 2014 in readiness for ABXi.

Started Doxyi 17-04-14, Roxi 25-04-14, Full Doxy 02-05-14.

Started Tinii 16-07-14

Awwwww, good to hear all of

Awwwww, good to hear all of this!  Continued success to both of you!

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

Terri, it might have been a

Terri, it might have been a long time coming, but now you are doing amazingly well:  The fact that you have now gone for so long without needing a new prescription for your eyes says so much!

Personally, and having taken both metronidazolei and tinidazole, I should stick with what you know is working.  I think tini was developed to be kinder to take than metro, rather than to be less effective than the older drug............................Sarah

Completed Stratton/Wheldon regime for aggressive secondary progressive MSi in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Thanks Mac and Sarah.Thanks

Thanks Mac and Sarah.

Thanks for your thoughts on the Tinii Sarah.

 

Best wishes


TandT

Optic Neuritis in teens. Diagnosed spmsi in 2001.

Started suppliments in Feb 2014 in readiness for ABXi.

Started Doxyi 17-04-14, Roxi 25-04-14, Full Doxy 02-05-14.

Started Tinii 16-07-14