Pulse 39 (1st with rifampicin)

A couple of hours ago I popped my final tablet of this pulse. It is actually the first time that I have pulsed whilst taking rifampicin and amoxacillin. Was it any different? It was certainly more arduous fitting everything in. Rifampicin, amoxicillini and azithromycin without food ... then doxycycline and tinidazole with food. Then on top of that one has to take probiotics away from all of the antibioticsi. There are only so many hours in the day and so sometimes I have had to give the probiotics a miss (like tonight).

It would be nice to hear reports of me walking the coastal path ... but I am hopeful but not deluded. The glimmer that I would really welcome would be the end of my foot drop. My right foot is badly affected by that. My core muscles are weak as am I generally.

I certainly think women do better on this treatment than men. I know one woman personally that has gotten better (Moggy) and have had internet contact with several other women that have gotten better too. I cannot recall any men that have really done well. Where's the Equality in all this? Surely all these feminists say that they believe in equality but then when it comes to the wellness, they're keeping it all for themselves!

As I say, I am quite weak these days but I shall use my energies fighting for Equality and Wellness for All ... (and defeat feminism along the way).

This could well have been my lucky pulse. I has certainly felt harder on me this time. If I don't wake up dead tomorrow, I will hopefully write about my predicted glimmers (as I say, I have to be helpful)

As well as wishing myself good luck, I wish all those other determined CAPers out there good luck too. Yes, that's you Jam, Froggy, Bo and many many more. And to the overtakers out there like Lucky Irene: watch out! We can all catch you up.

G.

Comments

One thing that no one needs

One thing that no one needs to say to you is "Stay with it".   Like me, it is obvious that you are in for the duration.  It has taken me thirteen or fourteen years, but I am still walking around breathing.  I really enjoy it.  I wish you the very, very best.

I was on Rifampin for (have to look this us on my blog) about ten years and then switched to Rifabutin.  WOW!  That hit really, really hard and I was never able to get up to the twice a day dose/  I weigh about 103 pounds so that may have something to do with it.

Anyway, stay with it. (Did I really say that!)  It is not easy but keep at it till you get NO reaction from the meds.

Rica

3/9 Symptoms returning. Began 5 abxi protocol 5/9 Rifampin 600, Amox 1000, Doxyi 200, MWF Azith 250, flagyli 1000 daily. Began Sept 04 PPMSi EDSSi 6.7 Now good days EDSS 1 Mind, like parachute, work only when open. Charlie Chan  In for the duration.&am

Glenn, I too am still walking

Glenn, I too am still walking round and breathing like Rica, yet I would find walking your coastal path very difficult without making use of an all-terrain rollator.  I think that even if I had never stopped taking CAPi I would still find the same.  Maybe one day I will be surprised because with taking about 200mg of biotin a day, my legs are definitely getting stronger.  David notices this because his study is on the first floor.  He hears me come out of the dining room on the ground floor, then in next to no time he sees me join him to have our morning meditate.

Looking back over he last ten years or more, I think that younger men with RRMSi largely don't try this treatment: they think it is stupid and want to rush into campath/lemtrada or tysabri, so you won't even get to hear about them.  There are a few younger men who have done very well with CAP: a Canadian man whose name I can't remember for one.  People with progressive disease will take longer and the older you are the more difficult it will be: not everyone is like Rica, you know, older than any one here.............Sarah

Completed Stratton/Wheldon regime for aggressive secondary progressive MSi in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.