Pulse #31

Hi everyone, Terri starts pulse #31 next week and is still experiencing slow steady improvements and ample evidence that the anti’s are still doing their job.

We got to three week pulses but found them too onerous with not enough recovery time between pulses and so we reverted back to four week pulses.

Strength is still improving and Terri can now lift and move her right foot (whilst holding grab rails) when standing. She still can’t quite straighten her right leg when standing but it is improving month by month. The stiffness in Terri’s legs and back is improving which makes life easier in so many ways.

There are so many little areas of improvement that on their own are don’t yet merit a mention, but when added together they are making life noticeably easier.

 

Best wishes to all

TandT

Comments

Oh, how nice to hear this! 

Oh, how nice to hear this!  So, she was trying to do a full pulse every three weeks?  Ouch.  Your body (and emotions) really do need some recovery time, in order to be able to handle that next pulse and do it all over again!

Thanks for sharing your good news!

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

I join Mac in congratulating

I join Mac in congratulating you both and also to say that I never was so brave as to do three week pulses, since you DO need time to recover.........................Sarah

Completed Stratton/Wheldon regime for aggressive secondary progressive MSi in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Hi Mac and Sarah, thankyou

Hi Mac and Sarah, thankyou both for your kind words.

We did do it slowly and it seemed quite tolerable until we got to three weeks and then bam, lesson learned.

TandT

 

Optic Neuritis in teens. Diagnosed spmsi in 2001.

Started suppliments in Feb 2014 in readiness for ABXi.

Started Doxyi 17-04-14, Roxi 25-04-14, Full Doxy 02-05-14.

Started Tinii 16-07-14