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Azith Wipe Out 11/03 & 11/10 [1]

Submitted by Miying Meng on Wed, 2008-11-12 15:33.
  • Antibiotics [2]
  • Azithromycin [3]
  • Chronic Fatigue Syndrome [4]
  • Fibromyalgia [5]

Monday 11/03 I took my first Azith tablet. Soon I began sneezing and next I began to feel a heaviness like chronic fatigue symptom doctor called adrenal insufficiency from my past diagnosis. Also I had an increase in lung congestion, swollen feet and ankles, overall joint/tendon/muscle pains and stiffness, increase in hot flashes and a mild headache. But by the end of the week and weekend I was feeling "GOOD". "ENERGETIC". So much to my relief I spent a lot of the weekend working in the sunshine in our gardens catching up on chores that have been waiting for me to get done before winter embarks upon us.

Second Month on Mino about done. [6]

Submitted by Miying Meng on Sat, 2008-11-01 18:57.
  • Antibiotics [2]
  • Chronic Fatigue Syndrome [4]
  • Fibromyalgia [5]
  • Inflammation [7]
  • Minocycline [8]
  • NAC [9]
  • Supplements [10]

First of all ... I do not know why I ever complained about not sweating! I had daily & nightly fevers in Sept. Sweating was the way of my existence and drinking water was all I could think about as my thirst was so great. This past month the fevers are letting up. I only sweat a few hours a day usually after dinner or during the night. Occaisonally now I skip a day or maybe two or three at the most. Just when I think the fevers and sweats are going I get hit again. So this has caused me to stay home indoors a lot the past couple months cause my nap time is definitely therapeutic. By afternoon I am drained. However, I jump at the chance and have managed to drive two or three days during the good hours of my better days. Otherwise I think I would go stir crazy.

Cpn panel updated with D25, D1,25 test results [11]

Submitted by Miying Meng on Mon, 2008-10-13 19:00.
  • Bacterial load [12]
  • Chronic Fatigue Syndrome [4]
  • Fibromyalgia [5]
  • Infections [13]
  • Inflammation [7]
  • Lab testing [14]
  • Minocycline [8]
  • NAC [9]
  • Respiratory disease [15]
  • Serology [16]

I recently had a blood test done for Cpni [17] panel to see what I could learn. I realize these tests are not considered accurate. But I was curious & had the opportunity ... so why not?

The panel included C. trachomatis, C. pneumoniae & C. psittaci.

Both the C. trachomatis and C. psittaci results came back normal reference range and said "ANTIBODY NOT DETECTED".

However the C. pneumoniae came back marked high on two fronts.

IgG  1:512 H   (reference range: 1:64)

IgA   1:64  H    (reference range: 1:16)

IgM <1:10

Interpretation = PAST INFECTION

1st month review [18]

Submitted by Miying Meng on Sat, 2008-10-04 15:26.

Minomycin 100 mg daily caused many more symptoms to emerge. My increasing widespread muscle, tendon, joint, organ, vessel pain has caused me to look for inflammationi [7] relief. First I tried Yaeyama Chlorella but found after a few days my symptoms increased in intensity. Then I tried Boswellia with the same result. Out of desperation and frustration last night I took a 40 mg. tablet of Benicar. Sweet relief!

Added Yaeyama Chlorella [19]

Submitted by Miying Meng on Mon, 2008-09-22 15:13.
  • Bacterial load [12]
  • Chronic Fatigue Syndrome [4]
  • Fibromyalgia [5]
  • Infections [13]
  • Inflammation [7]
  • Minocycline [8]
  • NAC [9]
  • Supplements [10]

Presently I have been on Minocycline for over two weeks. The inflammation has been increasing in small increments daily. I was not keeping on top of the load of toxins/porphyria with my usual doses of glucose, Emergen-C and charcoal. So a couple of days ago (9/20) my recent supplement order was delivered which included some Yaeyama Chlorella to try out. Only after two days of use before lunch I am impressed of how effect it seems for me. It is the perfect pre-lunch mopper. Which is a time of day I really need help. It is when it is not convenient to take any of the other moppers I use. But to be clear, I definitely will continue all of them at the usual times I take them as well.

1st week on Mino & wondering? [20]

Submitted by Miying Meng on Fri, 2008-09-12 00:24.
  • Antibiotics [2]
  • Azithromycin [3]
  • Bacterial load [12]
  • Chronic Fatigue Syndrome [4]
  • Fibromyalgia [5]
  • Infections [13]
  • Inflammation [7]
  • Minocycline [8]
  • NAC [9]
  • Supplements [10]
  • Vitamin D [21]
  • Vitamins [22]

Well, I don't have to tell you that I am pleased things turned out pretty good for me. The first few days of Minoi [8] were misery but then things began to settle down. The last couple days I haven't had to take extra Emergen-C but I am still stiff and achy. Plus my eyes are so red some folks at the store look at me as if I am crying OR stoned... sympathy or disdain. Of course either way I don't appreciate the vibes so quickly move on. Also I have daily coughing sessions and about gag at times trying to break loose the mucus stuck in my bronchial airways. (sorry) Sometimes it just feels like a hair stuck in my throat. It is worse for me in the mornings.

9/4 - started CAP - OUCH! [23]

Submitted by Miying Meng on Sat, 2008-09-06 22:07.
  • Antibiotics [2]
  • Bacterial load [12]
  • Chronic Fatigue Syndrome [4]
  • Fibromyalgia [5]
  • Inflammation [7]
  • Minocycline [8]
  • Sinusitus [24]

Between 24-36 hours after my last dose of SMZ/TMP DS 800-160 otherwise known as Bactrim double strength I felt the tide turn and the infection was rushing back in much too quickly. Fear of what would be if I did not take action. With new found confidence that I CAN take full dose antibioticsi [2] I swallowed my first 50 mg of Minocycline. Gulp and deep breath ... here we go.... Oh my gosh ... what have I done? ha ha ha ( in a diabolical tone) Why does something with such a formidable name as the first above stated antibiotic have less reaction than a silly little dose of Minocycline? 

Help me please! RX'd SMZ/TMP DS [25]

Submitted by Miying Meng on Tue, 2008-08-26 20:43.
  • Antibiotics [2]
  • Urinary tract problems [26]

My urine culture came back showing S. saprophyticus which will not be stopped with the Cephalixin I was taking. The nurse called to say I need a sulfa med. The doctor RX'd me SMZ/TMP DS 800-160. I had no clue what it was so did a little search and found that it is double strength Bactrim. I read here that it kills Cpni [17]. I am thinking ... UH OH. Is this something I should do? I am suppose to take one PM and one AM until gone for 7 days.

Slammed in the head! [27]

Submitted by Miying Meng on Wed, 2008-08-06 12:42.
  • Bacterial forms/stages [28]
  • Bacterial load [12]
  • Fibromyalgia [5]
  • Heat shock protein [29]
  • Inflammation [7]
  • NAC [9]
  • Porphyrias [30]
  • Sinusitus [24]
  • Supplements [10]
  • Vitamin D [21]
  • Vitamins [22]

As I write this today I am not fully recovered but will try my best to convey what my latest experience involved. Am writing this with my right eye closed as a matter of fact. So anyway ... what I want to write about in my blog today is reflective of years of chronic illness that I merely pushed off as hormonal induced migraines that we women had to bear in life. Of course ... I think I know better now. Not that hormones cannot play a role in this illness but that I know the true instigator I believe.

2400 mg. NAC daily - first week done deal. [31]

Submitted by Miying Meng on Tue, 2008-07-22 01:05.
  • Fibromyalgia [5]
  • NAC [9]

Finally! Sweet success. I am able to take 2400 mg. NACi [9] every day. Took me three months to get here. I have had to avoid using the FIRi [32] sauna for two weeks and keep all things low key. Seems too much anything gives me burning red eyes, sore throat and wheezing bronchials. So I limit certain foods, too much sunlight, working too hard, too much stress, too much this, that and the other. But I am here ... I did it! Yay!

Doing the Bron-Y-Aur Stomp baby! Cool  MM

PS... will go change my signature now. My new badge. Wink

Update added FIR sauna & moving along slowly. [33]

Submitted by Miying Meng on Tue, 2008-06-24 12:32.
  • Alpha Lipoic Acid [34]
  • Bacterial load [12]
  • Fibromyalgia [5]
  • Inflammation [7]
  • Melatonin [35]
  • NAC [9]
  • Porphyrias [30]
  • Supplements [10]
  • Vitamin D [21]
  • Vitamins [22]

We got our FIRi [32] sauna set up last weekend and I have been eagerly but cautiously using it for 10 min. at the start of my day after drinking water to hydrate first thing. Probably the most interesting result thus far is it restarted the eye burning, sneezing, bronchial irritation with resulting cough. These are all at minor degrees but nevertheless it is a direct response to using the sauna I believe as nothing else has changed in  my environment. The heat from the sauna feels soothing on my sore back and shoulders but causes some itching and then later in the day they ache again especially at night. But less so than on the MPi [36] and prior to starting the NACi [9], supplementsi [22], etc.

My first - established double doses of NAC 6-09-08 [37]

Submitted by Miying Meng on Tue, 2008-05-20 21:15.
  • Fibromyalgia [5]
  • NAC [9]
My first double dose of NACi [9]. Oh boy. The day after. I was feeling quite cocky as I was managing one 600 mg. of NAC daily without too much trouble. But then my brain began to feel that most unwelcome feeling ... like beginning to puff up which leads to feeling poisoned. So remembering when I began NAC it helped a great deal with relieving that awful symptom  .... so yes ... why not?

Miying's 3rd + week on NAC [38]

Submitted by Miying Meng on Tue, 2008-05-13 21:31.
  • Chronic Fatigue Syndrome [4]
  • Fibromyalgia [5]
  • Inflammation [7]
  • NAC [9]
  • Supplements [10]

Third + week on NACi [9]

5/04/08 - Sun. (600 mg. NAC x1)

Miying's 2nd week on NAC [39]

Submitted by Miying Meng on Sun, 2008-05-04 22:06.
  • NAC [9]

Second week on NACi [9] -

Other supplementsi [10] = Methyl B12, calcium, magnesium, selenium, Vit. C & Liv-Gall Cleanse (milk thistle, silymarin, tumeric, curcumin, dandelion,inulin & artichoke) - the rest are on order and I will add them one by one when I receive them.

4/27/08 - Sun. (600 mg. NAC x1)

1st week - diary of my NAC experience [40]

Submitted by Miying Meng on Sat, 2008-04-26 22:00.
  • Fibromyalgia [5]

NACi [9] Diary

First day = 4/19/08 - Sat.

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Source URL (retrieved on 12/04/2008 - 3:28pm): http://www.cpnhelp.org/blog/miying_meng

Links:
[1] http://www.cpnhelp.org/azith_wipe_out_1103_1110
[2] http://www.cpnhelp.org/taxonomy/term/38
[3] http://www.cpnhelp.org/taxonomy/term/41
[4] http://www.cpnhelp.org/chlamydia_pneumoniae/chro
[5] http://www.cpnhelp.org/taxonomy/term/24
[6] http://www.cpnhelp.org/second_month_mino_about_d
[7] http://www.cpnhelp.org/taxonomy/term/67
[8] http://www.cpnhelp.org/taxonomy/term/42
[9] http://www.cpnhelp.org/chlamydia_pneumoniae/supp
[10] http://www.cpnhelp.org/taxonomy/term/63
[11] http://www.cpnhelp.org/cpn_panel_results
[12] http://www.cpnhelp.org/taxonomy/term/55
[13] http://www.cpnhelp.org/taxonomy/term/58
[14] http://www.cpnhelp.org/taxonomy/term/27
[15] http://www.cpnhelp.org/taxonomy/term/9
[16] http://www.cpnhelp.org/taxonomy/term/52
[17] http://www.cpnhelp.org/glossary/term/167
[18] http://www.cpnhelp.org/1st_month_review
[19] http://www.cpnhelp.org/added_yaeyama_chlorella
[20] http://www.cpnhelp.org/1st_week_mino_wondering
[21] http://www.cpnhelp.org/chlamydia_pneumoniae/vita
[22] http://www.cpnhelp.org/taxonomy/term/57
[23] http://www.cpnhelp.org/94_started_cap_ouch
[24] http://www.cpnhelp.org/taxonomy/term/10
[25] http://www.cpnhelp.org/help_me_please_rxd_smztmp
[26] http://www.cpnhelp.org/taxonomy/term/14
[27] http://www.cpnhelp.org/slammed_head
[28] http://www.cpnhelp.org/taxonomy/term/45
[29] http://www.cpnhelp.org/taxonomy/term/31
[30] http://www.cpnhelp.org/taxonomy/term/28
[31] http://www.cpnhelp.org/2400_mg_nac_daily_first_w
[32] http://www.cpnhelp.org/glossary/term/177
[33] http://www.cpnhelp.org/node/4678
[34] http://www.cpnhelp.org/taxonomy/term/127
[35] http://www.cpnhelp.org/taxonomy/term/128
[36] http://www.cpnhelp.org/glossary/term/174
[37] http://www.cpnhelp.org/my_first_double_dose_of_n
[38] http://www.cpnhelp.org/miyings_3rd_week_on_nac
[39] http://www.cpnhelp.org/miyings_2nd_week_on_nac
[40] http://www.cpnhelp.org/1st_week_diary_of_my_nac_
[41] http://www.cpnhelp.org/blog/miying_meng?page=1