I have been scheduled for a gadolinium enhanced MRI of brain and spine on Sept. 3/08.

As of now, I am thinking through brain fog that if results of MRI are showing more lesions enhanced or otherwise, that I should stop CAPi [2] .

Am I thinking correctly? Should I just wait?

I am on daily 2 pills of rulid, 2 pills of doxycycline, 3 week pulses of tinidazole, all of the supplementsi [3] as listed in Wheldon protodol.

Hope I get some feeedback?

Loulou

I have seemingly once again started feeling most desperate.

Sounds like I need a shoulder to cry on..........I do!!!!!!!

I am attempting to get a cpni [5] test done. Hopefully a reputable lab???

I remain on rulid and doxi in correct dosages. Doctor prescribing knows all too well that I have been on rifampin in the not too  distant past when I was following similar protocol not one for cpn but for chronic neurolyme. So much similarity!!

To what extent have any fellow post(ers) known for sure that chronic stress impinges any noticeable progress?Hoping some responses can make me more determined? I am by nature an optimist but this is getting so hard to bare.

My EDSSi [6] just keeps going up not down as I was so hoping for??

I have been following Wheldon protocol in earnest since Feb.2008. This was instituted after many anti bombos based on chronic lyme diagnosis and also after following methylprednisolone and varying beta interferon, etc. etc. The list of everything I have done is long and arduous. That's for sure.

I am feeling so discouraged and alone...............

Hoping someone can talk me into enduring. So far, I haven't found anything better. Neuroi [8] who I saw in July was inferring that now we're probably talking about chemotherapy. I left at that point.

If you can relate hope you'll write back either on forum or privately.

Loulou

I only recently was hearing about chlamydia and its positive response to vitamin E.  I googled  this topic  and was met with some lack of evidence. Didn't go further to read detail(s) and decided to post on forum to share ideas and knowledge.

As always,

Thank you,

Loulou

No long details. Too much brain fog, fatigue, etc. etc.

Prior to msi [11] diagnosis I was diagnosed as having parasites, dientamoeba fragilis, blastocystis hominis, etc. followed with a h pylorii [12] diagnosis followed with ms followed with a chronic stage lyme disease diagnosis with subinfections of babesia and probable bartonella. Confusing, I know?

Has anyone been in similar situation? I have been also told that artemisinin can be possible remedy for at least babesia, lyme. It is herbal and can surpass malaria drugs such as mepron which I have used but my liver can't tolerate....................

Also, as a side issue many years ago when I was approx. 15 years old I suffered from alopeciai [13] areata. That resolved within a year on its own.

My prescribing doctor wants to order some cholestyramine for me to try.She was informed by pharmacy that only form of cholestyramine that they make is questran which has aspartame in it.Does anyone know of a prescribing pharmacy who makes  this without aspartame which my doc believes  is neurologically damaging.I think she's probably right. She is so research based-all current-and an excellent physician.

She as well as myself strongly suggested that I post this query, wait for responses from the forum, and then make a decision whether or not to order questran with aspartame, look for something else,etc...........leading into plan B???

Hoping for opinions and input?

Loulou

I continue following along with Wheldon Protocol in earnest.

My only query, at this time is whether or not in the world of antibioticsi [16], there a suitable alternative for roxithromycin?

Hoping for feedback????????????

Loulou

Hello,

I am visiting neuroi [8] tomorrow. Won't even try and convince him of anything - figured out a long time ago what a waste of time that is?

Know he'll say I'm progressive which is what I appear to be - walker, wheelchair bla, bla, bla, bla..............

Is there anything I should be asking or saying?

I rely on all of you for words of wisdom and good advice.

Second attempt with computer. I am continuing with rulid and doxyi [18] for now but am easing off on tini  at least for now.

Emotional support isn't there either. Going to sign off now. Hopefully computer won't cancel out on me as it did with first attampt???????????

Best,

Loulou

I remain on doxyi [18] and rulid as well as pulsing tinidazole.

I am always feeling very poorly.

Newest ones now include extreme headachy feelings combined with nausea.

I am hoping that this blog entry , however, short will provide some feedback - negative or positive doesn't matter!

Hopefully, someone can convince me to  stay the course????

I have been on varying antis.since 2002 and on Wheldons protocol since Feb. 2008.

Loulou

I have pulsed tinidazole 6 times as per protocol.All else continues the same.

I seem more tired. Still clinging to walker.Seems like more arthritic like symptoms, etc. etc. etc.

Still won't give up even though I feel very much alone, most of the time.

So grateful for this website. Restores my hope and my faith. Incidentally, Faith is my middle name - it should be my first one.

You are so wonderful and you help me keep on track. Praying for that light at the end of the tunnel????

Loulou

First diagnosed with RRMSi [23] then onto chronic persistent lyme disease then spmsi [24] and on and on and on and on.

I have been following wheldon protocol in earnest since February/08.

I am struggling along using a walker, etc. etc.

I am prepared to do this for as long as it takes in order to make any headway.

Anyone is welcome to write me back privately or regular posting. I am in need of a lot of support and I will be truly grateful for any help and direction I can attain.

LouLou