Has anyone had a die-off reaction as far out as 4 weeks after a pulse?

My friend had no reaction to a 28 day challenge of Tinidazole. His Quest Cpni [2] titer was normal, but his EBVi [3] and HHV6 were high. He started ramping up on the supplement protocol (NACi [4], Vit E, B's, CoQ10, etc.) and for the last two weeks had reached full dose on most of them.

Does anyone know how the significant amount of calcium in calcium pyruvate (300mg calcium per 1500mg pyruvate in the one I bought) does not interfere with antibioticsi [6]?

My CAPi [7]-prescribing doctors have cautioned taking any calcium within several hours of taking antibiotics. Also my atbx bottles say not to take with milk because the calcium interferes with the efficacy of the drugs.

Someone asked me if perhaps weakening my meds was why I felt better taking 7-8g of calcium pyruvate an hour before Zithro, Doryx, or Tinidazole. I didn't have a good answer. I really feel it's helping me and sure would like to explain this better.

Thanks for any info you can share!

Cheers,

Marysia

Is the Vanderbilt Chlamydia Lab really already open? Hooray!

I noticed Mac's post about the reopening on LymeNet just now: "And, by the way, Vanderbilt's research lab has just reopened and they are seeking a faster, more efficient treatment, so we pioneers may be the only ones who have to do treatment for a couple of years' time."

Does anyone know if there are any trials we can sign up for or if we can visit the lab as patients?

Thanks!

Marysia

Does anyone have a sense of how many cpnhelp members use Cholestyramine/Questran?

If anyone has had a difficult time with it, i.e. a herx reaction, do you by chance have low cholesteroli [11]?

Trying to solve the mystery of why some "herx" (or just plain have a bad reaction?) on it and others don't.

Thanks!

Marysia

Has anyone had symptoms of paralysis on Diflucan/Fluconazole, Flagyl/Metronidazolei [13], or Tindamax/Tinidazole?

I believe my experience may have been porphyriai [14]-related, but I was hoping to talk to others to see what I could learn.

My experience 7 months ago was slow onset of first weakness, then paralysis in my legs after 24 days on Diflucan/Fluconazole at 100mg twice a day. It took a week or two for the paralysis to clear up after immediately stopping the medicine, and many weeks/months before the weakness cleared up. There were many other symptoms as well that could have been herx or perhaps also porphyria, but paralysis was the most puzzling.

Hi Everyone,

I'm a new member and am seeking a doctor literate in CPNi [2] or porphyriai [14] (or ideally both) in the Portland, OR area (NW US).

I was diagnosed with Lyme disease with a CDC-criteria positive Western Blot in February of 2006 and have been doing various CAPs for the last two years and have had definite though limited improvement.

I've just recently discovered the CPN link through researching a mysterious attack of partial paralysis induced by Diflucan 7 months ago that I now know was porphyria. Some fellow Lymies clued me in to the connection between secondary porphyriai [10] and CPN treatment and one friend found the final clinching info through this very website. Thank you, thank you! It's so good to have answers finally.