Hi Y'all!

I've been living on the yahoo porph site for a few months, trying to get my heart to quit trying to quit on me.  I ate a lot of sugar, got fatter, learned to love cholestyramine.

(Quick refresher:  I have primary porphyriai [3], Lyme, Babesia, and cpni [4].  I had a heart attack in January from (?) dental lidocaine and IV Rocephini [5]/Lyme die-off.  Glueing Humpty together again since then.)

Help!  My partner's cpni [4] tests are negative!  IgG, Igm, IgA, Quest Diagnostics. 

I test positive; in the last 8 yrs, he's been getting more and more of the symptoms I have --- I KNOW cpn is very contagious --- is it THAT hard to get a positive antibody titer for cpn?

I am afraid that now his doc won't prescribe the Abxi [8].   Also, could he somehow not have caught cpn, and all his coughing, achiness, fatigue, sensitivities, skin eruptions, joint stuff, swollen glands, sore throats, neurological issues, increasing general ill health --- all the stuff he had NONE of before me --- could it really have NOTHING to do with cpn...?

More hemei [10] pathway questions....

This may have been posted already, but:

I feel as if I just gambled... and lost.  I staked my old, really bad state of health in an abxi [8] poker game; the winner's pot would have been increased health.  And I lost.  

Now my heart is messed up, I can't exert myself without cardio symptoms.  And I know this about my body:  it can't clear toxins without exercise. 

I don't even know where to start, and the pain is so bad I can't sleep.

As Scarlett said, tomorrow is another day (or something like that); and I'll think of... something.  But oh, tonight is dark and ... almost hopeless. 

I know --- I hope --- you folks will understand.  I wear my warrior's mask most of the time; it's better for those I love, and for me.  It's just, sometimes, I need to weep. 

 : (    My beautiful post on xylitol and insulin got called a spam!!  Well I never---!!!  does that happen often?  Oh well.  Maybe it will "pass" later.... 

Anyway, I have truly awe-ful porphyriai [3] going on, I see that now.

So I've given up--- get ready for it!---

-bananas, raisins, maple syrup, honey, all fructose, sucrose, etc.

-anything purple, like blueberries or red grapes

-anything cruciferous, broccoli, cabbage

-any red/dark meat, and fish 

(and these hideous sacrifices are helping with some symptoms, like the headaches and abdominal pain --- but not the cold feet or diarrhea.)

Hello new friends---

I've been "studying" all this info and yr postings like crazy, and I have another crazy question.

I get sick from using the computer.  Laptop, desktop--- don' matter, I hurt.  Headache, cold feet, eye soreness, fierce neck pain, and then I get the dizzy/nauseous/fiery ab. pain/leg & feet cramps --- YOU know the drill! (Actually,  feels kinda like a drill, in head and joints...)

Hi  from Wini,

You guys rock!  I've been reading stuff on this site, and giving it to my ND for several months.  Right now, I am freakin' desperate... and  I bet if I glop some of my sad saga in here, y'all will have helpful info for me.

I've been fall-down sick intermittently since my teens; I'll be 49 in 4 days, whoohoo!  Youthful diagnoses were, gosh, there sure is something wrong with ya, but dunno what, take Prozac/tetracycline/gamma globulin/more prozac.  You know the drill, I'm sure...

CFSi [16]/Fibro/MCS wasn't really helpful because, heck, whadda you do?

Blood ozone, all OG diet, meditation, yoga, lots of water, enough supplementsi [17] to cure the Brit. navy of scurvy --- it all helps, but.....