Good news: I can exercise again. Bad news: Porphyria

___________________________________________________________
CAPi [1] since 11/06 for Cpni [4]i [4], Lyme, Bartonella, Myco P, CMV, HHV-6 infectionsi [3]. Doxyi [5]i [5] 200mg daily, Zithromax 250mg MWF. NACi [6] 2250mg daily. All other supplementsi [7]i [7].

I await the responses, too,

Submitted by MacKintosh on Sun, 2008-10-12 23:48.

I await the responses, too, Myco. Meanwhie, I'm thinking you need magnesium or potassium.

___________________________________________________________

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

P.S - One thing I did want

Submitted by mycoplasma1 on Mon, 2008-10-13 00:43.

P.S - One thing I did want to add is that my Dr. added Diflucan to my regimen about 40 days ago (200mg daily) and what was left of my symptoms (some brain fog, coated tongue) has disappeared. In fact I have a very clear head now. He thought I had a yeast infection from what he could see and thought these symptoms would clear and they have. This may be helpful to some of you who still feel foggy after a years of CAPi [1]. Diflucan apparently has beneficial effects in Lyme cycles and other infectious microbe cycles if used for a few months (see Dr. Shardt's comments on the net). One thing that has remained is my borderline high BP which can fluctuate from 135/82-145/90 in the afternoon. Haven't taken it in the morning yet. Best, Chris

___________________________________________________________
CAPi [1] since 11/06 for Cpni [4], Lyme, Bartonella, Myco P, CMV, HHV-6 infectionsi [3]. Doxyi [5] 200mg daily, Zithromax 250mg MWF. NACi [6] 2250mg daily. All other supplementsi [7].

Maybe you exercised so much

Submitted by Janice C on Mon, 2008-10-13 06:51.

Maybe you exercised so much some ATP got used up past ADP to AMP. If so, some ribose might help. Congratulations on how far you've come!

___________________________________________________________
Combined Antibiotic Protocol minocycline, azithromycin, metronidazolei [10] for muscle pain, insomnia, interstitial cystitisi [11], sinus, disphonia, dry eyes, stiff neck, veins, thyroid, TMJ.

Heya Chris... I remember

Submitted by jeanneroz on Mon, 2008-10-13 13:56.

Heya Chris... I remember you having breathing problems from Azith! Great that you are able to now exercise and doing so much better (we started CAPi [1] and had similar problems at about the same time).

Am curious, though, one of your last posts stated you had not pulsed yet... have you yet? (Since you think it may have been porphria.....) It's taken me almost a year before I reached the point of even being able to attempt a pulse (am only on my 5th pulse and not even up to the full dosage yet).

Hope all keeps going well for you!

JeanneRoz

___________________________________________________________

JeanneRoz~CPNi [4] diagnosed & started protocol 4/2007, also HHV6, EBVi [12]. CFIDSi [13]/FM diagnosed: 6/07; 100mg/doxyi [5]/BID ~ 250 mg AZITH M/W/F ~~~1st Tinii [14] pulse 4/17/08- 1 250 mg. tab for 2 days~~. Pulse 5: 9/28/08, 250 mg TINI BID, 3 days. Sup

No, I have not attempted a

Submitted by mycoplasma1 on Mon, 2008-10-13 14:08.

No, I have not attempted a pulse. When I finish the diflucan I will see where I am. My dr. will probably put me on Rifampin, Doxyi [5] and Zithi [15] since I have bartonella also. To be honest I am feeling so well the thought scares me a bit.

But Chris, though the

Submitted by katman on Mon, 2008-10-13 14:28.

But Chris, though the pulses are sometimes hard, when the aftermath is cleared you may feel better than you have for years. Take heart and you will get through it.

___________________________________________________________

Rica PPMSi [16] EDSSi [17] 6.7 at beginning - now 2. Began CAPi [1] Sept, 2004 with Rifampin 150 mg 2xd, Doxyi [5] 100 mg 2xd, added regular pulses Jan 2005. Jan 2006 switched to Doxy, Azith, cont. flagyli [10] total 55 pulses LDNi [18] Rifampin 8/08 again NC USA

Have to clear the

Submitted by mycoplasma1 on Mon, 2008-10-13 15:51.

Have to clear the bartonella first. My remaining symptoms stem from Bart: Anxiety, Panic, etc...body feels stronger than it has in years.

Hi Chris, You know when I

Submitted by Reenie on Mon, 2008-10-13 18:14.

Hi Chris,

You know when I read your symptoms, they sound like porphyrins which may be a by product of HSP60 from cryptics especially if you're not doing a bactericidal agent as in pulses. I recall reading in some of the literature that there are two known entitities that can cause these endotoxinsi [19], (if I recall correctly) and that would be mycoplasma and chlamydia species.

So, although I don't know what might be happening when you exercise, I think your symptoms may be signalling you to do a pulse rather than trying to clear bart first as you say. Just my nickel's worth.

BTW, I do believe Lyme and it's co-infectionsi [3] also go cystic to avoid the antibioticsi [20] which might be why you're feeling better but still having these issues.

___________________________________________________________

NACi [6] 2.4g, Zithi [15] 250mg/MWF, minoi [21] 200mg, Tinii [14] 5day/1g/5 pulses, Valcyte
Iodoral 12.5mg, Supps, CFIDSi [13]/FMSi [22], Hashimoto's, Psoriasis, PA, IBSi [23], Sec Addisons

Don't believe everything you think!

Signor, I'm guessing you

Submitted by Eric Johnson on Tue, 2008-10-14 22:05.

Signor, I'm guessing you are already aware of buspirone? Lo, on introspection I descried within my own person the symptoms of "Generalized Anxiety Disorder," wherefore I quickly hastened to order buspirone, that I might eat thereof forthwith. Supposedly it has less tolerance and habituation potential than benzodiazapines. Another very sensible reason to take it is its extemely cool looking structure diagram - no joke, this is the coolest looking FDA approved molecule you can find, hands down... I would not pull your chain about a matter of such gravity. I hope it will do something - I don't get any lasting anxiolysis (or anything at all) from the many antidepressants I have sampled.

Re magnesium, I am still doin up the hard core cardiopulmonary jonx... and I had a little incident last spring where I ingested far too much Mg and ended up with some GI effects that still haven't totally gone away (quite possibly reflecting a semipermanent floral change) - not recommended dude! Indeed I still can't eat any amount of Mg whatever without nasty side effects, which is kind of inexplicable, but Nelly reports same. However I can tolerate very small amounts of epsom salt (magnesium sulfate heptahydrate) taken topically, dissolved in skin lotion (I haven't actually weighed the amounts I'm using, but I titrated up). The effects are bizarre - not only do I seem to be more vigorous, I also don't get sore even after heavy exercise of muscle groups I haven't used in ages. This is really strange. Even a normal person gets very sore under such circumstances. It's all the weirder since, earlier in my post-CFSi [24] exercise regimes, I would get very sore every single time I ran - rather than only when out of shape as would happen to a normal person.

Two days ago I did a monster 30-minute piece on a rowing ergometer. I haven't erged in well over a year, nor done anything else with my lats or lower back. And the resulting soreness is barely even noticable. Totally crazy. Damn, I love to pump up some exercise.

Oddly, if I take too much Mg sulfate, another effect is that I have a brief, strong mania, followed by a longer rebound depression of comparable magnitude. This, along with a bad GI, will happen if I use, say, the amount of epsom suggested for a bath on the epsom package, or anywhere near that amount. I don't see anything about this in the literature, so I may have a phenomenon of my very own here. I am of course bipolar to begin with, very modestly. The GI effects may actually not be the result of Mg moving into the GI lumen, since Norman and I found in the literature that the kidney is supposed to strip out Mg from the serum quite rapidly when the concentration becomes elevated. There could be indirect effecs via the nervous system, which obviously does experience some effects, or I guess it is possible some of the good and bad effects I observe could come from the sulfate rather than the mag. If I can ride my bike through pastures in the hills, I don't absolutely have to know how the sausages are made. Hypervigilantly yours, EZ Johnson.