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Home again, on pulse number 4.
By Todybear
Created 08/26/2008 - 4:35pm

So I am home from my trip and managed well till I got home. After the first night at home I wakened to a tremendous fatigue and troll like symptoms. I managed through the unpacking and laundry etc, then decided it must be time for a pulse. It is a couple days early but after the last one I felt so good that I am striving for that again. I did 1000 mg yesterday and today, and I will see if I can last for four days in total. I definately feel some dieoff today, but I am not complaining; I hoped for that. My feet are burning, I have nausea off and on and what I call rubber legs. I took melatonini [1] last eve and I slept for 12 hours nonstop. I will repeat that tonight as I don't sleep super well on Flagyli [2]. So all in all, no bad stuff to report; just plugging away at the CAPi [3].

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SPMSi [4]i [4]< Supplementsi [5]i [5] & NACi [6], Doxyi [7]i [7] 200 mg, Azith 250 mg 3X/wk, most suppliments, currently Flagyli [2] 1500 mg x 4 days once per month

Delighted to hear your

Submitted by loulou on Tue, 2008-08-26 18:48.
Delighted to hear your news. Our symptoms seem so similar. 1000 mg. of what? - flagyli [2]. What is your perceived die off doing? We're all remarkably different even with all the similarities intact.Just want to substantiate die off?  I think I'm living most of the time with die off even with this incredible constipation. Lots to deal with. Thank you for informative post.

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diagnosed MSi [8] Jan.2000 ,  chronic neurological lyme disease Nov.2002.

doxyi [7] 100 mg. 1BID. roxyi [9].150 mg.? BID,adding rifampin soon, pulsed tinii [10]. every 3 weeks, as of oct.17/08, no rifampin as yet, just doxy and 1 gram daily of IV ceftriaxone, soon to

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Wonderful!

Submitted by MacKintosh on Tue, 2008-08-26 19:05.
Wonderful!

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The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

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Loulou, I am now up to 1000

Submitted by Todybear on Wed, 2008-08-27 10:56.
Loulou, I am now up to 1000 mg of Flagyli [2] every three weeks added to my every day 200 of Doxyi [7] and 250 of Azith three times a week. I always feel some real dieoff symptoms during my pulse. I know it is endotoxini [11] or porphyrins in my body, but I just call it dieoff. I get burning feet, weak and tired legs and some other emotional and mental effects. I get kinda wobley and feel like sleeping for twelve hours instead of eight. I hate a dirty house at the best of times but during my pulse I become very bugged by any mess and disorder which is a problem as I do have a family of living and breathing people and two cats. I sometimes get nausea, mostly late in the evening and have a lousy appetite. It's strange how I had constipation for years until I started this CAPi [3], and now have not had it since. After the pulse ends, I have lots of strengh in my legs compared to before. My husband and I like to go out for walks and pre treatment I was down to 30 meters and now I am walking a couple Kms. (Not during my pulse though. I am pretty useless during and for several days after.) So hopefully I have answered your questions.

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SPMSi [4]< Supplementsi [5] & NACi [6], Doxyi [7] 200 mg, Azith 250 mg 3X/wk, most suppliments, currently Flagyli [2] 1500 mg x 4 days once per month

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Links:
[1] http://www.cpnhelp.org/taxonomy/term/128
[2] http://www.cpnhelp.org/taxonomy/term/44
[3] http://www.cpnhelp.org/glossary/term/168
[4] http://www.cpnhelp.org/glossary/term/183
[5] http://www.cpnhelp.org/taxonomy/term/63
[6] http://www.cpnhelp.org/chlamydia_pneumoniae/supp
[7] http://www.cpnhelp.org/taxonomy/term/39
[8] http://www.cpnhelp.org/taxonomy/term/6
[9] http://www.cpnhelp.org/taxonomy/term/40
[10] http://www.cpnhelp.org/chlamydia_pneumoniae/an_0
[11] http://www.cpnhelp.org/glossary/term/116