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Well finally got to meet Dr Sriram.....................
By doglover
Created 08/16/2008 - 3:27pm

Had my first visit last Thursday August 14, 2008 with Dr. Sriram and it was awesome!! I definetly had reservations (one being having to fly-not my favorte thing to do) as to whether or not this was a good move, but after meeting and talking to him I am so glad that I went. He's really a nice man, very intelligent, very personable with a sense of humour. Turns out his in-laws only live about 40 miles from me. Such a small world. He normally treats patients who are still ambulatory. He has the best results with individuals who do not have as much damage as someone in a wheelchair. He agreed to try me on his protocol for six months to see how I do. If I don't respond favorably after six months he suggested that I go back to conventional methods of treatment. He changed the protocol I am on now significantly. I am to take the following medications: Rifamapin 250mg 2X day Zithromycin 500mg m,w,f Tinidazole 100mg 3x day seven days a month Vitamin Di [1] 50000 units week Vitamin B12 shots weekly Zanaflex 2mg 1 a day Calcium Pyruvate 3g 5 days a week He had blood drawn for the cpni [2] test (so glad he did that) and to check my vitamin levels. He also recommended water therapy once a week to help the spacisity in my legs. All in all it was a great trip. Flight was good, weather was wonderful and I left his office with renewed hope that I am on the right track. I highly recommend that if you can travel to consult with him, do it. He's definitely not afraid to think outside the box.

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If there is no wind..............row New Hampshire USA on CAPi [3]i [3] since 2-4-2006 for MSi [4]i [4] Currently on rifamapin 150 mg 2x day, azithromicin 500mg, m,w,f and 100mg tinidazole 3x a day for seven days 2x a month, 3g calcium pyruvate 5 days, 50000 units vit D

doglover- I'm so glad you

Submitted by Jim K on Sat, 2008-08-16 15:57.
doglover- I'm so glad you got in to see him. So different to have the guidance and support of a knowledgeable and caring doctor. His evolving protocol seems to have been a good one for those who have reported here. I'll look forward to your coming reports. Sounds like he's not using the pyruvate with you, yes?

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CAPi [3] for Cpni [2] 11/04. Dx: 25yrs CFSi [5] & FMSi [6]. Currently: 150mg BID Roxithromycin, Doxycycline 100mg BID, Tinii [7] 1000mg/day pulses; Vit D2000 units, T4 & T3

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hi doglover. how do you

Submitted by jak7ham9 on Sat, 2008-08-16 16:35.
hi doglover. how do you take 50000 d orally how often? why tinii [7] not flagyli [8]? Good luck! barbara

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NACi [9] and glutathione push for years all supplementsi [10] in protocol)IV vitaminsi [11] b1-12,F10/29/07 roxy300,doxy200,rifampin300aziyh mwfMS flagyli [8] 1day 500x2 11/23/20074th pulse 2.8.081500mg 8days 7/08 finished 10th pulse on 300 rifamp bid, doxybid 7/2008

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Oh my gosh-YES he did tell

Submitted by doglover on Sat, 2008-08-16 16:42.
Oh my gosh-YES he did tell me to use the calcium pyruvate. I forgot to list it!!! duh 1.5 grams calcium pyruvate on m, w, f 30 minutes after azith for two weeks, then 3 grams calcium pyruvate m,w,f 30 minutes after azith for 2 weeks, then 3 grams five days a week. Can't believe I forgot to list that!!

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If there is no wind..............row New Hampshire USA on CAPi [3] since 2-4-2006 for MSi [4] Currently on rifamapin 150 mg 2x day, azithromicin 500mg, m,w,f and 100mg tinidazole 3x a day for seven days 2x a month, 3g calcium pyruvate 5 days, 50000 units vit D

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He prescribed 3 pills a day

Submitted by doglover on Sat, 2008-08-16 16:52.
He prescribed 3 pills a day so thats a little over 7000 units a day. Not exactly how it is dispensed-tabs or capsules. He felt tinii [7] would be a little bit more effective and it's easier on the stomach. Linda

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If there is no wind..............row New Hampshire USA on CAPi [3] since 2-4-2006 for MSi [4] Currently on rifamapin 150 mg 2x day, azithromicin 500mg, m,w,f and 100mg tinidazole 3x a day for seven days 2x a month, 3g calcium pyruvate 5 days, 50000 units vit D

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doglover is that supposed

Submitted by garcia on Sat, 2008-08-16 17:18.

doglover is that supposed to be 100mg tinii [7] 3x a day, or is it supposed to be 500mg tini 3x a day?

 

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Hunter: Don't think - experiment

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you know it's funny I

Submitted by doglover on Sat, 2008-08-16 17:38.
you know it's funny I questioned that too when I saw the prescription but it does say 100 mg. The prescriptions were written by his associate Dr Pawate so I am going to check that Monday. Linda

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If there is no wind..............row New Hampshire USA on CAPi [3] since 2-4-2006 for MSi [4] Currently on rifamapin 150 mg 2x day, azithromicin 500mg, m,w,f and 100mg tinidazole 3x a day for seven days 2x a month, 3g calcium pyruvate 5 days, 50000 units vit D

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Hi Linda, Congratulations [12]

Submitted by lifeontheice on Sat, 2008-08-16 20:35.
Hi Linda, Congratulations about the visit. It is definitely a mistake. Tindamax comes in 250 and 500 mg tablets and is usually taken twice a day. They will contact the doctor on Monday and it will be corrected. Good luck. Barbara.

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Cured of multiple sclerosisi [4], stopped the Wheldon's protocol in Nov,2008. EDSSi [13] 0 for over 5 years.

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Linda, If you can edit the

Submitted by MacKintosh on Sat, 2008-08-16 21:17.

Linda, If you can edit the original post, it would probably help people to put your whole protocol together. Don't know if we can do that with the new version or not..

Congratulations on seeing 'the man'.Wink  I think I'll ratchet up my vitamin Di [1] from my usual 8-10,000 units a day and talk with my doctor about all of this.  Rifampin, here I come.

Good luck!!!!

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The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

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Linda, so glad to hear from

Submitted by macorn on Sat, 2008-08-16 23:36.
Linda, so glad to hear from you.  I've been thinking you were 'due' back soon. You sound you usual positive self; I sure hope you see results.  I'll look for updates from you. Bye for now, May Ann 

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Mary Ann

SPMSi [14]. Dx 1991. EDSSi [13] 6.5.  Weldon CAPi [3]; 3/08  NAC 2400, Doxy & Azith. 7th metroi [8] pulse 12/08 

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I think that 50,000 IU was

Submitted by Norman Yarvin on Sat, 2008-08-16 23:46.
I think that 50,000 IU was per week, not per day.
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Hey Linda,Happy for  you

Submitted by daughterofthemum on Sun, 2008-08-17 02:28.

Hey Linda,

Happy for  you to see the doc:) That can be a weird question but what is that m,w,f thing? I know, I am not very good at cryptics;) Also, I am not very familiar with the water theraphy. How can it help with your spasticity in your legs?

Ozlem

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Spokesperson for mum, MSi [4] since '94, on CAPi [3] since 03/07. Roxyi [15]&DoxyX2/day, MetroX2/15 days, Supps:NAC600, Acidophilus, Milk Thistle, CoQ10, Calcium, Omega-3, Vitamin A-B-B12-C-D-E, Urso, Questran. EDSSi [13] 9, no improvement

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Linda, just thought I would

Submitted by Michèle on Sun, 2008-08-17 03:41.

Linda, just thought I would mention that you are not brain fogged, you did mention the pyruvate in your original blog.  Your second mention of it gives us much more detail... thanks for that it help us all.  

And about 7000 Vit D units a day equals 50.000 units a week which is what you told us in your original blog also.

If you want I can gather all the information and post it when I have done.   You can correct me if I have made a mistake somewhere.   I was going to do it for my own records so if it helps everyone I can post it here too.   Let me know what the outcome of the tinidazole question is. 

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Michèle (UK) GFAi [16]: Wheldon CAPi [3] 1st May 2006. Daily Doxyi [17], Azi MWF, metroi [8] pulse. Zoo keeper for Ella, RRMSi [18], At worse EDSSi [13] 9, 3 months later 7 now 6.5 Wheldon CAP 16th March 2006

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m,w,f is Monday,

Submitted by doglover on Sun, 2008-08-17 07:38.
m,w,f is Monday, Wednesday,Friday and water therapy is basically swimming. Trying to get me to use my legs more. Linda

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If there is no wind..............row New Hampshire USA on CAPi [3] since 2-4-2006 for MSi [4] Currently on rifamapin 150 mg 2x day, azithromicin 500mg, m,w,f and 100mg tinidazole 3x a day for seven days 2x a month, 3g calcium pyruvate 5 days, 50000 units vit D

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I'll keep you posted. I

Submitted by doglover on Sun, 2008-08-17 07:41.
I'll keep you posted. I emailed Dr. Sriram but I will call tomorrow to make sue he got the email. Thanks Linda

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If there is no wind..............row New Hampshire USA on CAPi [3] since 2-4-2006 for MSi [4] Currently on rifamapin 150 mg 2x day, azithromicin 500mg, m,w,f and 100mg tinidazole 3x a day for seven days 2x a month, 3g calcium pyruvate 5 days, 50000 units vit D

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Linda, whatever the results

Submitted by Sarah on Sun, 2008-08-17 10:33.
Linda, whatever the results of your emailing Dr Sriram I am very pleased for you and you do sound so positive now.

Swimming is one of the best things you can do to get your legs moving, because you are effectively weightless when in the water.................Sarah

 

 

An Itinerary in Light and Shadow

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Completed Stratton/Wheldon regime for aggressive secondary progressive MSi [4] in June 2007, after nearly four years, three of which intermittent.   Still slowly improving and no exacerbation since starting. EDSSi [13] was 7, now 2, less on a good day.

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LindaSo happy for you that

Submitted by loriyas on Sun, 2008-08-17 12:33.

Linda

So happy for you that you were able to see Dr. Sriram and so glad the appointment went well.  He has been great with me with email.  So for any questions/concerns don't hesitate to email him.

I have switched from flagyli [8] to tinii [7] which I begin tomorrow.  It appears that the rest of the protocol is the same is the one I am doing.  It has not been too hard on me-hope it is the same for you!

Lori 

Lori 

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Started Vanderbilt protocoli [19] 1/9/08  Rifampin twice a day, azithromycin MWF, Tindamax for 7 days out of a month at 250 mg three times a day,  b12 injection monthly NACi [9] daily, DHA, calcium pyruvate, prilosec, low dose naltrexone 4.5 mg

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Thanks, Norman; will hold

Submitted by MacKintosh on Sun, 2008-08-17 16:54.
Thanks, Norman; will hold at my current vitamin Di [1] intake.  Wink

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The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

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[2] http://www.cpnhelp.org/glossary/term/167
[3] http://www.cpnhelp.org/glossary/term/168
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[5] http://www.cpnhelp.org/glossary/term/163
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[10] http://www.cpnhelp.org/taxonomy/term/63
[11] http://www.cpnhelp.org/taxonomy/term/57
[12] http://www.cpnhelp.org/print/4987#comment-38209
[13] http://www.cpnhelp.org/glossary/term/171
[14] http://www.cpnhelp.org/glossary/term/183
[15] http://www.cpnhelp.org/taxonomy/term/40
[16] http://www.cpnhelp.org/glossary/term/162
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