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Thought you might like to know...
By Michèle
Created 08/12/2008 - 4:03am

Whenever I send the welcome message out to a new member I get to see a serial number which indicates the number of people who have registered on the site.

At present we are 7 short of 1600.

Of course not all these people are active members, some have never posted but it just shows that the knowledge is spreading and that people are interested to find out what it is all about...

AAAAAnd that the feeling you get of being overwhelmed when you see how many new posts you are going to have to read before you log off is not because you are suffering from 'brain fog', but because there really are lots of messages to read which shows that our site is very popular and a great place to be, in spite of all its differences to other sites (or maybe that should be because of its differences).

And finally, the site will be three years old in two weeks time...

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Michèle (UK) GFAi [1]: Wheldon CAPi [2]i [2] 1st May 2006. Daily Doxyi [3]i [3], Azi MWF, metroi [4]i [4] pulse. Zoo keeper for Ella, RRMSi [5]i [5], At worse EDSSi [6]i [6] 9, 3 months later 7 now 6.5 Wheldon CAP 16th March 2006

‹ Thisisms denial of death from ms? [7] Radiofrequency and Extremely Low-Frequency Electromagnetic Field Effects on the Blood-Brain Barrier › [8]

So that means that you have

Submitted by speedbird on Tue, 2008-08-12 04:50.
So that means that you have sent out around 1600 welcome messages! Well done Michele. Cool

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Progressive MSi [9] dx2006. LDNi [10] & CAPi [2]: Wheldon version. All supps. Doxyi [3] 200mg. Zithi [11] 250mg. Metroi [4] 400mg.Pulses #17...I can because I think I can.

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Thanks Speedbird, but it

Submitted by Michèle on Tue, 2008-08-12 05:52.
Thanks Speedbird, but it must be more like a thousand as I was about the 250th member and I did not come to the idea of doing that until I had been around for a while...

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Michèle (UK) GFAi [1]: Wheldon CAPi [2] 1st May 2006. Daily Doxyi [3], Azi MWF, metroi [4] pulse. Zoo keeper for Ella, RRMSi [5], At worse EDSSi [6] 9, 3 months later 7 now 6.5 Wheldon CAP 16th March 2006

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A thousand or 1600, it's

Submitted by speedbird on Tue, 2008-08-12 06:26.
A thousand or 1600, it's still a massive effort. Smile

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Progressive MSi [9] dx2006. LDNi [10] & CAPi [2]: Wheldon version. All supps. Doxyi [3] 200mg. Zithi [11] 250mg. Metroi [4] 400mg.Pulses #17...I can because I think I can.

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Well done Michèle!!

Submitted by Sarah on Tue, 2008-08-12 12:31.

Well done Michèle!! Everytime I log on I see more new people so its not like the numbers are drying up....................Sarah

An Itinerary in Light and Shadow

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Completed Stratton/Wheldon regime for aggressive secondary progressive MSi [9] in June 2007, after nearly four years, three of which intermittent.   Still slowly improving and no exacerbation since starting. EDSSi [6] was 7, now 2, less on a good day.

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Michele - Thank you for

Submitted by Daisy on Tue, 2008-08-12 09:52.
Michele - Thank you for everything you do here!  You are a tremendous asset for all of us!

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Daisy - Husband on CAPi [2] 5/07.  "When Going Thru Hell, Just Keep Going", Winston Churchill

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Thanks for sharing that

Submitted by Reenie on Tue, 2008-08-12 10:26.
Thanks for sharing that info!  I know that I'm glad I found this site when I was searching and have shared my bounty with others.  I doubt this site has reached anywhere near the saturation it will, yet.  Wink

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NACi [12] 2.4g, Zithi [11] 250mg/MWF, minoi [13] 200mg, Tinii [14] 5day/1g/5 pulses, Valcyte
Iodoral 12.5mg, Supps, CFIDSi [15]/FMSi [16], Hashimoto's, Psoriasis, PA, IBSi [17], Sec Addisons

Don't believe everything you think!  

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Thanks Michele  What you,

Submitted by farandwide on Tue, 2008-08-12 16:02.

Thanks Michele 

What you, Mac, Jim, Sarah, and others who's names escape me at the moment do here to contribute and maintain the site is a blessing to all of us following a CAP.  Thank you so much and cheers to you all!

___________________________________________________________

all my best

John

RRMSi [5]/EDSSi [6] was 4.5, 5, now 6 on Wheldon Protocol (naci [12], doxycycline, azithromycin, metronidazolei [4]) since 04/12/2006. Added Rifampin 2x150mg/daily 08/19/2007. Added INHi [18] 300mg/daily 03/17/2008 stopped 05/08

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Michele- I lost track of

Submitted by Jim K on Tue, 2008-08-12 21:22.
Michele- I lost track of the numbers since I don't seem to see a numerical listing any more. 1000? That says a lot, especially as lot's of folks use the site and it's information without ever signing up! We are about at our third birthday, so it's great to have a nice round number like that to go along. I can't tell you how much I appreciate the work you do greeting and orienting new folks. You are a very essential human first-contact at the site, and it's hard to imagine getting on if you weren't there doing the job for us. The work you've done on the Getting Started handbook is a blessing as well. You've made your mark here as one of the pioneers in this off-the-beaten-path direction.

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CAPi [2] for Cpni [19] 11/04. Dx: 25yrs CFSi [20] & FMSi [16]. Currently: 150mg BID Roxithromycin, Doxycycline 100mg BID, Tinii [14] 1000mg/day pulses; Vit D2000 units, T4 & T3

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Oh Shucks, people, I did

Submitted by Michèle on Wed, 2008-08-13 04:38.

Oh Shucks, people, I did not post this in search of praise, I do what I am good at, feretting around in the background and I do it because I am grateful and service is a way of saying thanks.   There are lots of people here who make valuable contributions that make me feel more secure when looking after my daughter's health and treatment and I want to thank all of them.

We are now close to 1600 registered members, although I'm not sure whether spammers have been discounted and removed from this number.   The 1000 figure could be the number of messages I have sent although I don't think it is quite that many as I did not start doing it until I'd been around for a year and others have helped me out at times too.

I'm not sure who can see the number of members we have, but I see it when I go to member's profiles and click on Write Private Message and then, as this is being processed, the number of the member appears briefly at the bottom left hand corner of the screen.  

I'm delighted if humbled to be thought of as a pioneer on this site but truly I am nothing like the other pioneers who have taken so many chances in the 3 years this site has been going and shared their experiences with the more scientifically challenged amongst us.

It would be great if we could have a virtual party on our birthday....

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Michèle (UK) GFAi [1]: Wheldon CAPi [2] 1st May 2006. Daily Doxyi [3], Azi MWF, metroi [4] pulse. Zoo keeper for Ella, RRMSi [5], At worse EDSSi [6] 9, 3 months later 7 now 6.5 Wheldon CAP 16th March 2006

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Michele, a virtual party

Submitted by Louise on Wed, 2008-08-13 05:15.

Michele, a virtual party what a creative idea.  Let's see how many folks pick up on this one.  Any thoughts for the arrangementsSmile?

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Louise  CFSi [20],CPNi [19]+/Bb+(Lyme) Cholestyramine 1-2 pks @ HS for Porphyriai [21] +fattyEndotoxins HS PRN, Wheldon CAPi [2] 6/07,all supps, Doxyi [3] 200QD, Roxi 300BID, Tinidazole 500 BIDx20day Pulses, VitD3-10,000IU,Iodoral25mg,SAM-e100mgQD+B-vits, Pyruvate3.75Gm at 1PM

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Well, obviously we can't

Submitted by Michèle on Wed, 2008-08-13 09:03.

Well, obviously we can't have a proper party, but we could set a reasonable time for all to raise a glass to the future of Cpnhelp. We could find an appropriate image to post here and we could find some wise sayings, quotes or jokes to inspire us...

We could also bring a present of a small donation to the site...

Just some thoughts, maybe others might have some to add to this and we could pick a couple.

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Michèle (UK) GFAi [1]: Wheldon CAPi [2] 1st May 2006. Daily Doxyi [3], Azi MWF, metroi [4] pulse. Zoo keeper for Ella, RRMSi [5], At worse EDSSi [6] 9, 3 months later 7 now 6.5 Wheldon CAP 16th March 2006

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thanks for everyone who

Submitted by ruthless1 on Wed, 2008-08-13 13:44.

thanks for everyone who ferrets around in the background, without you all we would have nothing to spread to the masses.

This is encouraging news that people I have told may well be checking us out!!

blessings

r

 

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CFIDSi [15]/ME 32 yrs, FMSi [16], IBSi [17], EBVi [22], CMV, Cpni [19], H1, chronic insomnia, Lymes, HME, Natural HRT peri-M, NAC 3 gm, Full CAP 6-2-08, all supplementsi [23] +Sea Kelp, Chitosan Pulse 16 1-4-09 1gm Flagyli [4]/day-3 days

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I don't know exactly which

Submitted by Michèle on Sat, 2008-08-16 04:06.

I don't know exactly which day next week the site is three years old, but maybe Jim will tell us.   In the mean time here are some times I suggest we might try to get online on whichever day it is.   It might be too much for the site for loads of us to be online together but we can try.

PST 1PM

CST 3PM

EST 4PM

AST 5PM

BST 10PM

If your time zone is not mentioned here sorry, but the list could be long...

Have a glass of something, (maybe not wine if you are at work) and raise a toast to Cpnhelp and its founders.... 

___________________________________________________________

Michèle (UK) GFAi [1]: Wheldon CAPi [2] 1st May 2006. Daily Doxyi [3], Azi MWF, metroi [4] pulse. Zoo keeper for Ella, RRMSi [5], At worse EDSSi [6] 9, 3 months later 7 now 6.5 Wheldon CAP 16th March 2006

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  Maybe the time should be

Submitted by Sarah on Sat, 2008-08-16 09:29.
 

Maybe the time should be altered by a few hours: if I get up early, I sometimes see Pacific coast people still online, sometimes even Mackintosh in Chicago.  I don't mind just raising an orange juice, but at 10pm bst too many people are going to be at work in the US.

Here's what I did when we were one:

http://www.cpnhelp.org/happy_birthday_cpnhelp#comment-6949 [24]..................Sarah

An Itinerary in Light and Shadow

___________________________________________________________

Completed Stratton/Wheldon regime for aggressive secondary progressive MSi [9] in June 2007, after nearly four years, three of which intermittent.   Still slowly improving and no exacerbation since starting. EDSSi [6] was 7, now 2, less on a good day.

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I suppose it depends what

Submitted by Michèle on Sat, 2008-08-16 10:02.

I suppose it depends what day of the week it is... I don't mind when; consider this a starting point for discussion...

 

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Michèle (UK) GFAi [1]: Wheldon CAPi [2] 1st May 2006. Daily Doxyi [3], Azi MWF, metroi [4] pulse. Zoo keeper for Ella, RRMSi [5], At worse EDSSi [6] 9, 3 months later 7 now 6.5 Wheldon CAP 16th March 2006

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I don't really have an

Submitted by Jim K on Sat, 2008-08-16 20:35.
I don't really have an exact "birthdate" except that I've been a member for "2 years 52 weeks." So I will declare Sunday, August 24, 10am EST as our official date and time. How's that?

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CAPi [2] for Cpni [19] 11/04. Dx: 25yrs CFSi [20] & FMSi [16]. Currently: 150mg BID Roxithromycin, Doxycycline 100mg BID, Tinii [14] 1000mg/day pulses; Vit D2000 units, T4 & T3

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Great, I'll post a new blog

Submitted by Michèle on Sun, 2008-08-17 04:09.

Great, I'll post a new blog with that time, hope to see a few people here, for a hip hip hoorah.

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Michèle (UK) GFAi [1]: Wheldon CAPi [2] 1st May 2006. Daily Doxyi [3], Azi MWF, metroi [4] pulse. Zoo keeper for Ella, RRMSi [5], At worse EDSSi [6] 9, 3 months later 7 now 6.5 Wheldon CAP 16th March 2006

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[2] http://www.cpnhelp.org/glossary/term/168
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[4] http://www.cpnhelp.org/taxonomy/term/44
[5] http://www.cpnhelp.org/glossary/term/184
[6] http://www.cpnhelp.org/glossary/term/171
[7] http://www.cpnhelp.org/thisisms_denial_death_ms
[8] http://www.cpnhelp.org/radiofrequency_and_extrem
[9] http://www.cpnhelp.org/taxonomy/term/6
[10] http://www.cpnhelp.org/glossary/term/170
[11] http://www.cpnhelp.org/taxonomy/term/41
[12] http://www.cpnhelp.org/chlamydia_pneumoniae/supp
[13] http://www.cpnhelp.org/taxonomy/term/42
[14] http://www.cpnhelp.org/chlamydia_pneumoniae/an_0
[15] http://www.cpnhelp.org/glossary/term/164
[16] http://www.cpnhelp.org/taxonomy/term/24
[17] http://www.cpnhelp.org/taxonomy/term/19
[18] http://www.cpnhelp.org/chlamydia_pneumoniae/anti
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[20] http://www.cpnhelp.org/glossary/term/163
[21] http://www.cpnhelp.org/glossary/term/175
[22] http://www.cpnhelp.org/glossary/term/120
[23] http://www.cpnhelp.org/taxonomy/term/63
[24] http://www.cpnhelp.org/happy_birthday_cpnhelp#comment-6949