I take Doxyi [2] all in one go first thing, but you may find that is too much for you and have to split the dose as some others do.

I have no knowledge of pyruvate so I'll leave that to someone who does.

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Progressive MSi [8] dx2006. LDNi [9] & CAPi [1]: Wheldon version. All supps. Doxyi [2] 200mg. Zithi [10] 250mg. Metroi [11] 400mg.Pulses #10/16...I can because I think I can.

Hi Sphinx,  From where I sit I would concentrate on working up to the full Wheldon Protocol before enhancing the effect of it with Pyruvate.  You are at about the two month mark, bravo.  And also some folks around this first 8 - 12 weeks begin to get spontaneous die off effects from the effect of the antireplicant abxi [12].  If you have a high bacterial loadi [13] (which is hard to know until you feel the effects) you may get overwhelmed with porphorins and endotoxinsi [14].  You are still working up.  Take the next month or so with the full doxyi [2] and full azytro and let them do their work.  Then as the protocol states add your flagyli [11] or tinii [7] first pulse and see what happens.

Some folks have used pyruvate as an energy support during the day.  If taken prior to abxi [15] ingestion you may get an enhancement of the antibiotics effect and this may or maynot be the best thing as you start the protocol. 

I tend to be a bit concervative in my views to say that up front.  I did not have overt neurological involvment so do not have mobility issues.   I was really out of it for the first three months though and that is a call that no one can really make in advance.

I see in your signature ACC did you mean NACi [16]?  If not what is ACC? 

Louise

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Louise  CFSi [17], CPN+/Bb+,Wheldon CAPi [1] 6/07, Cholestyramine 1-2 pks @ HS for Porphyriai [18] & Endotoxinsi [14] PRN, Doxyi [2] 200daily, Roxi 300BID, Tini500BIDx14day pulses,VitD3-10,000IU, Iodoral 25mg, {S.O.D.3/QD[KAL Brand], Pyruvate 3.75G, SAM-e For Energy Support

Hi Louise,

it´s nice to hear from you. Your  responses are very supporting .

 

ACC or NACi [16] ,the same stuff.

I hope  not to have a high bacterial loadi [13], because of the MSi [8].

 

 Well, I think I had some die-off effects  in the beginning, like being  in a sweat for two months , taking naps during the day, having severe nerve-pain, (felt like pseudo-relapses), but after two days these problems vanished. They were bad, bad not as bad as the MS events before.

Thanks for  convincing  me, to take the next month with full Doxyi [2] and Azi.

I´m more scared of flagyl  than Tinii [7] , I´ll start with tini, and see what will happen.

I´m so positive about the protocol, therefore it will help me.

All my best wishes to you, Louise.

 

sphinx

 

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sphinx /On Wheldon CApi [1] ,14 th May 2008, currently/ Minoi [3] 200 ,ACC 1200  plus supplementsi [4] ,RRMSi [5] since 92, SPMSi [6] 06,  EDSS 7  ,Azi 3 times a week, 3  Tinii [7] pulses

Thanks a lot for your answer.

I will give both versions a try.

 

sphinx

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sphinx /On Wheldon CApi [1] ,14 th May 2008, currently/ Minoi [3] 200 ,ACC 1200  plus supplementsi [4] ,RRMSi [5] since 92, SPMSi [6] 06,  EDSS 7  ,Azi 3 times a week, 3  Tinii [7] pulses

Sphinx, although N acetyl cysteine is not an absolute essential on this regime, it is very useful and in the end helps you stop getting a re-infection, so please explain what ACC is: I wouldn't like you to be taking something else thinking that it was going to be equally helpful.

As for pyruvate it is not essential either but is being tried at Vanderbilt to see if it can make the regime easier or shorter.  Many people who have tried it have stopped because of bad reactions, so its up to you.  I completed the treatment last year after four years with only ever having taken doxycycline, roxithromycin, pulses of metro and then tinii [7], N acetyl cysteine and a selection of supplementsi [4].  It took me down from an EDSSi [19] of 7 to less than 2 and I have has no MSi [8] episode since starting.

I used metronidazolei [11] for about a year before swapping to tinidazole.  It tastes horrible and made me feel tearful and depressed, but I had none of the really bad reactions that some people have had....................Sarah

An Itinerary in Light and Shadow

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Hallo Sarah,

thank you for your answer, you and Rica are my shining  examples of chances.

 ACC tabs ,which I use,is acetyl-Cysteine, only without N. I try to take nearly the complete list of supplementsi [4] ,as long as I can afford it.

Is tinidazol as nasty as  metronidazol? I don´t want to be depressed, I need my new energy .

I pray that it will help me ,too. I´d like to visit galleries again, as I used ,too. By the way, are there galleries in the web, where I could see your wonderful paintings?

There´s a German website based on cpni [20] infection, with links to cpnhelp,the knowledge will gain currency. I posted  the links at the German  MS website, well ,some crucified me,some are interested.

It´s not a "mission impossible".

Your response is very helpful ,I´m not alone on this planet.

 

sphinx

 

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sphinx /On Wheldon CApi [1] ,14 th May 2008, currently/ Minoi [3] 200 ,ACC 1200  plus supplementsi [4] ,RRMSi [5] since 92, SPMSi [6] 06,  EDSS 7  ,Azi 3 times a week, 3  Tinii [7] pulses

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