Lou, I somewhat doubt if Canadian neuros are any different from British ones, so there is little point in saying anything about antibiotics.  Having said that a very definitely SPMSi [6] woman was told by her neuro in Scotland that abxi [7] were worth a try if her GP was willing to prescribe: wouldn't go as far as to prescribe herself though.  Mine, more usually, just said that there was nothing to help except IV steroids if I had a very bad turn and I should arrange to see an MS nurse.  Well, I didn't: I didn't want to know how to self catheterise and suchlike.

Try to tell him/her what you are doing and see the response: it'll be good for a laugh if nothing else and who knows, like the Scottish lad you might be pleasantly surprised.  Print out David's pdf file and the two papers by him and Stratton which I gave you a while back and see how you go...............Sarah

An Itinerary in Light and Shadow

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Well, You were right Sarah. I wish I would have been pleasantly surprised, but alas NO. Gave neuroi [1] David's pdf file. Told him antis. I'm on. That was it. In a nutshell, said "no proof".Said I'm secondary progressive MSi [3]. Nothing offered. Said he'll requisition another mri but in this socialized medicine country will take 3 mos. of wait time. Suggesting possible chemotherapy, at a later date if I continue to go downhill. Was definitely insistent that all of the antis. may make me worse and create lots of new problems.So, that was it.He said I should enjoy life and stop looking!Famous last words. So, all in all, hope he will at least read david's pdf file but I'm not counting on it. At least, Dr. M. in US will prescribe antis. and is supporting me in my hopes and endeaveours.

Loulou

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diagnosed MSi [3] Jan.2000 ,  chronic neurological lyme disease Nov.2002.

doxyi [2] 100 mg. 1BID. roxyi [4].150 mg.? BID,adding rifampin soon, pulsed tinii [5]. every 3 weeks, as of oct.17/08, no rifampin as yet, just doxy and 1 gram daily of IV ceftriaxone, soon to

Lou, now where have I heard that before?  Stop looking and enjoy, life indeed! In my book it is downright insulting for a neuroi [1] to talk down to you like that, but at least you have your Dr. M to prescribe for you.  Quite honestly, I would accept chemo only as a very last resort: I was never even offered it, deemed too far gone even for that I guess, so hang in there and give him a big surprise when next you see him!...........Sarah

An Itinerary in Light and Shadow

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Loulou will the MRI be scheduled?  Another 3 months of CAPi [9] (or longer) may be good for a test result that may at the very least puzzle him!  Hoping to hear that is shows remarkable results.

Louise

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Louise  CFSi [10], CPN+/Bb+,Wheldon CAPi [9] 6/07, Cholestyramine 1-2 pks @ HS for Porphyriai [11] & Endotoxinsi [12] PRN, Doxyi [2] 200daily, Roxi 300BID, Tini500BIDx14day pulses,VitD3-10,000IU, Iodoral 25mg, {S.O.D.3/QD[KAL Brand], Pyruvate 3.75G, SAM-e For Energy Support

Many thanks to Sarah and Louise. Sarah, you are my gold standard in the midst of all of trials and tribulations.Louise, MRI will be scheduled for me and will be approx. 3 mos. from now.

Here's hoping that I'll be able to floor my neuroi [1] with good results.

I read and reread your blogs when ever I feel like giving up and I must say they keep me going.

Thank you from the bottom of my heart.

Loulou

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diagnosed MSi [3] Jan.2000 ,  chronic neurological lyme disease Nov.2002.

doxyi [2] 100 mg. 1BID. roxyi [4].150 mg.? BID,adding rifampin soon, pulsed tinii [5]. every 3 weeks, as of oct.17/08, no rifampin as yet, just doxy and 1 gram daily of IV ceftriaxone, soon to