Just so all you know the only symptoms remaining for me are: -occasional bouts of fatigue after too much exercise and stress. -minor inflammationi [9] of the vagal nerve which seems to lead to irregular heart beats or skips when I change position or swallow at times. -minor twitching. -occasional blurry vision. -rare brain fog if I drink too much alcohol. This is quite minor compared to my laundry list of symptoms when I started CAPi [4] in 06' and could barely function. I also went very slowly as reactions to Doxyi [2] and Zithi [1] sent me to the ER several times with tachycardia and all kinds of porphyriai [10] symptoms (I learned my lesson!). I have done very few Flagyli [3] pulses because of my work load and still feel quite well now but my Dr. will be making sure I add it in once I have adjusted to the Rifampin. I tested positive for Bartonella which is why he wants me on Rifampin and thinks this will take me to remission (I hope). Thanks all! Chris

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CAPi [4] since 11/06 for Cpni [5], Lyme, Bartonella, Myco P, CMV, HHV-6 infectionsi [6]. Doxyi [2] 200mg daily, Zithromax 250mg MWF. NACi [7] 2250mg daily. All other supplementsi [8].

Chris,

My husband has been on Rifampin 600mg once a day for about 9 months.  He has definitely made improvement while taking it. 

Here's [11] a good thread I was reading today re Bartonella on another website. 

Best of Luck!

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Daisy - Husband on CAPi [4] 5/07.  "When Going Thru Hell, Just Keep Going", Winston Churchill

Chris- It's a pleasure to hear how well you are doing given your starting place, and your agonizing 'way back when about protocolsi [12]. I'm so glad! I'll be interested to hear how your Rifampin journey goes as I'm still Rifampin-phobic (an irrational fear of...). You are another "poster child" for secondary porphyriai [13], aren't you! Look forward to hearing another rifampinaut journey.

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CAPi [4] for Cpni [5] 11/04. Dx: 25yrs CFSi [14] & FMSi [15]. Currently: 150mg BID Roxithromycin, Doxycycline 100mg BID, Tinii [16] 1000mg/day pulses; Vit D2000 units, T4 & T3

Chris, this is indeed good news, like Jim I remember the hard times you were having not so long ago.   I hope you do well on the Rifampicin, but I know that you will feel it at work.

 

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Michèle (UK) GFAi [17]: Wheldon CAPi [4] 1st May 2006. Daily Doxyi [2], Azi MWF, metroi [3] pulse. Zoo keeper for Ella, RRMSi [18], At worse EDSSi [19] 9, 3 months later 7 now 5.5 Wheldon CAP 16th March 2006

Chris I added Rifampin back in August 2007 and still take it. In my case, I stick to the 2x150mg dosage a day levels. Mostly, I don't notice any reaction from it...mostly. However, that's after being on it nearly a year now. When I first started taking it, I did notice it more. In my case, it would feel like a flare up in symptoms briefly (maybe for an hour) and then subside.

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all my best

John

RRMSi [18]/EDSSi [19] was 4.5, 5, now 6 on Wheldon Protocol (naci [7], doxycycline, azithromycin, metronidazolei [3]) since 04/12/2006. Added Rifampin 2x150mg/daily 08/19/2007. Added INHi [21] 300mg/daily 03/17/2008 stopped 05/08

Thanks for everyone's comments and I will keep you posted! Chris

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CAPi [4] since 11/06 for Cpni [5], Lyme, Bartonella, Myco P, CMV, HHV-6 infectionsi [6]. Doxyi [2] 200mg daily, Zithromax 250mg MWF. NACi [7] 2250mg daily. All other supplementsi [8].

Chris,

I am taking rifampin 300 mg twice a day.  I am following the Vanderbilt protocoli [22] with zithro and flagyli [3] also.  I would say that rifampin has been the easiest antibiotic for me.  I don't really notice any side effects that I can attribute to it.  The zithro give me stomach problems sometimes and the flagyl makes me more tired and can also cause stomach upset.   I do experience dizziness at times but I had that before I started rifampin. 

Lori 

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