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White Knight (mid-pulse)
By blackfoot
Created 07/06/2008 - 6:53am

  • Chronic Fatigue Syndrome

Getting near 8 month mark of CAPi [1].  I am doing this blog mid-pulse for a change, perhaps for some balance.  I usually only blog when I feel awful.

So, where was I?  Not feeling so bad is about what I can come up with.  Sleep (generally) well now at night, not needing naps during day since my last-but-one flagyli [2] pulse.  Still need my sleep desperately - often manage 9 hours straight through.  Occasionally nap in day but usually short, sometimes only 20 mins.  Though I still often wake in a slightly paralysed state, which feels weird.

I look kinda well ATM, I get very depressed when I look sick.

Legs still strangely weak and tired.  I can still get painful legs after not too much exertion e.g. catching the bus there and back to the pet shop to get my son a goldfish (didn't happen as its all so complicated now, a bowl is no good, you need a bit more decent equipment).  Don't like painful legs for no reason, no.  perhaps there is still a 'killing field' going on behind the scenes represented by this. Though earlier last week I spent a whole day shopping, and another half day cleaning with not too much ill-effects.

Anyway, now I face Pulse 7 which will be quite a big one (started today) i.e. the first full 4-day pulse!!!!  I watch with interest as to how this affects me, as i seem more in control of my faculties to observe.  partly also from taking a decent break from the last pulse. 

I will report on Pulse 7 in 3 - 4 weeks, and we shall see .......  it might be Black Knight Returns! haha!

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M.E./CFSi [3]i [3] 20 years, intermittent.  Wheldon Protocol - Started NACi [4] and supplementsi [5]i [5] Sept 2007. Doxyi [6]i [6] and Roxy full dose by Dec '07.  First Flagyli [2] pulse January 2008.

Sounds positive on the

Submitted by Michele on Sun, 2008-07-06 13:53.
Sounds positive on the whole.   I imagine there is going to be something going on behind the scenes for a few more months.  

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Michèle (UK) GFAi [7]: Wheldon CAPi [1] 1st May 2006. Daily Doxyi [6], Azi MWF, metroi [2] pulse. Zoo keeper for Ella, RRMSi [8], At worse EDSSi [9] 9, 3 months later 7 now 5.5 Wheldon CAP 16th March 2006

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Source URL (retrieved on 12/01/2008 - 5:15pm): http://www.cpnhelp.org/node/4755

Links:
[1] http://www.cpnhelp.org/glossary/term/168
[2] http://www.cpnhelp.org/taxonomy/term/44
[3] http://www.cpnhelp.org/glossary/term/163
[4] http://www.cpnhelp.org/chlamydia_pneumoniae/supp
[5] http://www.cpnhelp.org/taxonomy/term/63
[6] http://www.cpnhelp.org/taxonomy/term/39
[7] http://www.cpnhelp.org/glossary/term/162
[8] http://www.cpnhelp.org/glossary/term/184
[9] http://www.cpnhelp.org/glossary/term/171