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Prague, The Czech Republic, on CAPi [1] from December, 2005. Diagnosis before the treatment: chronic fatigue syndromei [2]i [2], chronic glandular fever and Epstein-Barr virus (EBVi [3]i [3]), cHSP60 (chlamydia heat schock proteini [4]i [4]) + 4,8.
Links:
[1] http://www.cpnhelp.org/glossary/term/168
[2] http://www.cpnhelp.org/chlamydia_pneumoniae/chro
[3] http://www.cpnhelp.org/glossary/term/120
[4] http://www.cpnhelp.org/glossary/term/111
[5] http://www.cpnhelp.org/taxonomy/term/44
[6] http://www.cpnhelp.org/glossary/term/167
[7] http://www.cpnhelp.org/taxonomy/term/6
[8] http://www.cpnhelp.org/glossary/term/163
[9] http://www.cpnhelp.org/chlamydia_pneumoniae/supp
[10] http://www.cpnhelp.org/glossary/term/170
[11] http://www.cpnhelp.org/taxonomy/term/63
[12] http://www.cpnhelp.org/taxonomy/term/38
[13] http://www.cpnhelp.org/glossary/term/175
[14] http://www.cpnhelp.org/taxonomy/term/26
[15] http://www.cpnhelp.org/taxonomy/term/39
Zdenicka, about four months
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Feeling 98% well and going for 100! Still testing + for Cpni [6] since June '08.CAPi [1] since 8-05 for Cpn and Mycoplasma P. for MSi [7] and/or CFSi [8]. Also EBVi [3] and HHV6 NACi [9], Iodoral, T3, BHRT, Methylcobalamin injections, Nitro patch, LDNi [10] and Methylation supplementsi [11]
I didn't drive the first
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The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi
Zdenika, In my opinion it
Zdenika, In my opinion it would be hard to tell prior to treatment how a person will react or be able to tolerate treatment and preform complex activities such as driving. Personally, early on Brain Fog was a factor in my choosing not to drive at times. I was taking bateriocidal dosage of Doxycycline (high dose, 400 mg/day per order of MD) and die-off and porphria were both contributing to my situation. For me at times it seemed unsave to drive.
My observation, after reading these pages for the past year is that the type of presentation of chronic illness that one has been dealing with has some relevance in the downtime one experiences. For me the first 4 months were the most difficult. And changing from high dose mono abxi [12] (high dose doxy alone) to Doxy/Roxi CAPi [1] was much easier on me. When I started Tinidazole pulses I also started cholestyramine with the pulse so cannot say how it would have been for me had I not had that anti-porphrin measure in place. I continue to use cholestryamine intermittently as needed with or without pulse when I begin to feel signs of increasing brain fog and the other porphria symptoms.
Thanks for asking this question and nice to hear from you again. Louise
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Louise CFSi [8], CPN+/Bb+,Wheldon CAPi [1] 6/07, Cholestyramine 1-2 pks @ HS for Porphyriai [13] & Endotoxinsi [14] PRN, Doxyi [15] 200daily, Roxi 300BID, Tini500BIDx14day pulses,VitD3-10,000IU, Iodoral 25mg, {S.O.D.3/QD[KAL Brand], Pyruvate 3.75G, SAM-e For Energy Support
I know, I only wanted to
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Prague, The Czech Republic, on CAPi [1] from December, 2005. Diagnosis before the treatment: chronic fatigue syndromei [2], chronic glandular fever and Epstein-Barr virus (EBVi [3]), cHSP60 (chlamydia heat schock proteini [4]) + 4,8.